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  • Pooka1
    replied
    Originally posted by pilar View Post
    Hi Rita!
    I'm new here too and it is wonderful.
    I'm 30 years old and I wore a milwaukee too when I was 12 for about a year. It certainly was not fun. I'm going to make you fell better saying that I have a 95* curvature. And those chest pains that you have I have them too. You are NOT alone. And I'm soo happy that I am not alone too. I 'm contemplating surgery as well. In fact, I have schedule the surgery for sep 3rd. I'm just nervous and hesitant about it. I do not have leg pains or back pains (only lower back sometimes and chest pains) but I don't want to have any pains in the future, so that's why I will probably go ahead with the surgery. I'm scared because it is a complicated open anterior and posterior ( that is 2 surgeries), so I guess I will have to be in the hospital for lomg time.
    I have my last appointment with my surgeron next week so we'll see.
    Pilar
    I've only been reading this forum for about 18 months but I can't recall reading any testimonials from folks who had little pain before surgery coming out with much more pain long term. I think the surgeon would know about the stats on that.

    Good luck.

    Leave a comment:


  • pilar
    replied
    Hi Rita!
    I'm new here too and it is wonderful.
    I'm 30 years old and I wore a milwaukee too when I was 12 for about a year. It certainly was not fun. I'm going to make you fell better saying that I have a 95* curvature. And those chest pains that you have I have them too. You are NOT alone. And I'm soo happy that I am not alone too. I 'm contemplating surgery as well. In fact, I have schedule the surgery for sep 3rd. I'm just nervous and hesitant about it. I do not have leg pains or back pains (only lower back sometimes and chest pains) but I don't want to have any pains in the future, so that's why I will probably go ahead with the surgery. I'm scared because it is a complicated open anterior and posterior ( that is 2 surgeries), so I guess I will have to be in the hospital for lomg time.
    I have my last appointment with my surgeron next week so we'll see.
    Pilar

    Leave a comment:


  • S4Sarah
    replied
    Have you tried Physical Tehrapy, CLEAR Institute, Spinecor or any alternatives to surgery yet?

    Leave a comment:


  • JenniferG
    replied
    I hesitate to stick my neck out here, but reading of your pain, I am going to suggest you try a magnetic wrap, in the meantime. I used to use one before my surgery and it worked. And I never expected it would. A friend talked me into trying it. I know many (including myself, once) would be sceptical, but it worked for me, perhaps it will for you too.

    Considering the degree of your pain, you might be willing to try anything. The best ones are the non-rigid ones. They are like a wide piece of elastic with magnets sewn into it. They are held by velcro. They were also much cheaper than the rigid ones.

    Leave a comment:


  • RitaR
    replied
    I cannot even fathom if after surgery this pain is even some better.
    I cannot walk for more gthan 10 minues without being in sheer agony. And, I know walking is a must to keep limbered up - but if it causes this much pain. What to do? It effects everything you do - everything you think. I long for those days when I had no pain and just forgot about even having his dreadful curve thing. Waiting until Aug 19th for my appt is going to be a very long time I'm afraid. I am sooooo glad I have this site to vent. Ugh! Anyone have any ideas of what they've done to make walking a litlte more tolerable? I can't even p repare dinner without being in sheer agony that by the tikme Im ready to eat - nothing sounds good if you're dying in pain.
    Sorry, is this whining?

    Leave a comment:


  • debbei
    replied
    Originally posted by RitaR View Post
    Well, I have to say, I took someone's advice on here, mostly because I am a newbie of sorts to this forum and already seeking advice I guess. I tried calling Dr. Lenke's office this morning around 9:00 and by 10:30 she called me back and made an appointment for me. I see him on Aug 19th, which sounds long ways off, but when you think about it, could have been lots further out, like November or December. More worrisome, however, is that he is currently scheduling surgery for February. OMG! But, she said they always move people up if they're bad enough and experiencing a lot of problems, so we'll just wait and go from there. She was very nice and sympathetic to my symptoms, travel distance, etc. So, if you can go by first impressions, I'm off and running already.
    So, my hats off to whomever suggested I call the dr myself - I hadn't thought of doing that yet, but it certainly worked.
    I'll be on here periodically, mostly looking for a sympathetic ear probably while I wait for my appt.
    THANKS!
    Rita,

    I'm so glad!! Persistence can sometimes pay! I was in the hospital for 6 days. When I was there, my husband stayed in the hospital guest house right across the street, which (in NYC) was a bargain at $100 per night. He wanted to stay close and not have to go home to NJ every night which distance-wise isn't far, but can take a long time to get back and forth.

    I hated drugs too, but for me there was no question. I just needed some relief. It's not like the drugs I was on took all the pain away either; they just made it tolerable. Of course, over the weeks after surgery, the pain gradually decreased. Even though it's hard to believe that in the beginning, it's true.

    Leave a comment:


  • RitaR
    replied
    Just wondering here - can someone give me an idea how long they were in the hospital with this surgery? And, where did your family member stay while you were in the hospital? I'm assuming it's going to be a while before I can travel home after having surgery. Although knowing they do have drugs, but I am just not a drug person, if you know what I mean.... as soon as I can I'm off those goofy acting drugs. I hate the way they make you feel. I'd almost rather be in pain - well, almost... (tee hee!)
    Last edited by RitaR; 06-03-2009, 10:02 PM.

    Leave a comment:


  • RitaR
    replied
    Well, I have to say, I took someone's advice on here, mostly because I am a newbie of sorts to this forum and already seeking advice I guess. I tried calling Dr. Lenke's office this morning around 9:00 and by 10:30 she called me back and made an appointment for me. I see him on Aug 19th, which sounds long ways off, but when you think about it, could have been lots further out, like November or December. More worrisome, however, is that he is currently scheduling surgery for February. OMG! But, she said they always move people up if they're bad enough and experiencing a lot of problems, so we'll just wait and go from there. She was very nice and sympathetic to my symptoms, travel distance, etc. So, if you can go by first impressions, I'm off and running already.
    So, my hats off to whomever suggested I call the dr myself - I hadn't thought of doing that yet, but it certainly worked.
    I'll be on here periodically, mostly looking for a sympathetic ear probably while I wait for my appt.
    THANKS!

    Leave a comment:


  • RitaR
    replied
    Hey Jennifer,
    Nice to meet you - Yes, I love this site. I no longer feel ALONE with all this pain. It helps to know there are others who feel the same.
    We will talk again I am sure.
    PS: I now have appt with Dr. Lenke - Aug 19th. OMG! Hope I can wait till then....

    Leave a comment:


  • Sherie
    replied
    Originally posted by RitaR View Post
    Hey Sherie,
    I saw your private message, but i just went into Outlook and sent you a message from there. So, you'll have to get in your email to read my message. Sorry. I didn't think about replying in here. See, told ya I was a newbie on here.....
    Oh and nice to meet you....
    It's already been nice talking with you...
    Nice to meet you too.
    Glad to help in anyway I can.

    Leave a comment:


  • JenniferG
    replied
    Good luck Rita. Being in pain is very lonely. But many here have experienced pain and understand. When you're here, you can talk about anything scoliosis related and you're bound to find someone who's been there, done that, and better still, can offer some support. This site is fabulous.

    Jen

    Leave a comment:


  • RitaR
    replied
    I don't know why my scoliosis wasn't addressed three years ago either. No, I don't have a hot tub, but I think after this ordeal is finished I should be able to get a prescription for one from my doctor - like that would ever happen...

    Leave a comment:


  • titaniumed
    replied
    Hi Rita

    Welcome to the forum.

    We feel your pain. I'm wondering why your scoliosis wasn't addressed 3 years ago? Why was one level fused?

    One would think that if you have an 80 degree curve going on that the whole spine would be addressed?

    Have you tried massage and hot tubs? I did that for years.

    Ed

    Leave a comment:


  • RitaR
    replied
    Hey Sherie,
    I saw your private message, but i just went into Outlook and sent you a message from there. So, you'll have to get in your email to read my message. Sorry. I didn't think about replying in here. See, told ya I was a newbie on here.....
    Oh and nice to meet you....
    It's already been nice talking with you...

    Leave a comment:


  • Sherie
    replied
    I'll send you one instead with my email. When you log on to NSF, look at the upper right corner box, there's a link for Private Messages, click on that and you can go to your inbox from there.

    To send a private message, left-click on the recipients user id, you'll get an option to send a private message.

    Leave a comment:

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