Love your initial response, Linda
I also was told - THERE ARE NO GUARANTEE'S. Additionally my surgeon would not explain what my gait might be like, if I'd feel my iliac screws (I don't) or if I'd gain or lose any more height. All he did was show me X-rays of similar surgeries like mine and even gave me their phone numbers.
I had a negative experience in anesthesia that eventually meant I received no pain medication during rehab. Take a look at my X-rays and let me know if you think you could white-knuckle that? It was pure hell but I survived. No guarantees; you just have to weigh the potential positive with the negative and certainly do your homework on your surgeon. Interview at least 5 if you can.
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Originally posted by Back-out View PostMistakes are mistakes. of course. However, when someone's life and/or quality of life lies in the balance, the highly paid specialist making it, ought IMO be held accountable. I'm very surprised if you are indeed suggesting otherwise.
I think that surgeons who make a lot of mistakes and surgeries where gross errors were committed are an entirely different story.
--Linda
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Originally posted by Back-out View PostThose of us contemplating this surgery are, ALWAYS deciding to take a major risk. In a sense, it's not merely a crap shoot, but Russian roulette. Perhaps the understood tipping point in undergoing the surgery, is not so much that we're willing to live with any outcome, but that we're no longer willing to live in our present state - least of all, if it's certain to worsen.
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Originally posted by LindaRacine View Post
If you honestly feel that you would not have undergone surgery because the list of risks above includes something with which you're unwilling to live, you should not have surgery.
Those of us contemplating this surgery are, ALWAYS deciding to take a major risk. In a sense, it's not merely a crap shoot, but Russian roulette. Perhaps the understood tipping point in undergoing the surgery, is not so much that we're willing to live with any outcome, but that we're no longer willing to live in our present state - least of all, if it's certain to worsen.
*I fervently hope this condition has been reversed for her. I have never forgotten her story.
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Still confused about when doctors can legitimately be held liable for errors
Originally posted by LindaRacine View PostI don't know what you do for a living, but when you've made mistakes at your job (and we all do at some point), did you make them intentionally?
If you make a mistake because you are impaired, that would be an intentional error. If you make the mistake while you are unimpaired, should you lose your job, pay a harsh fine, be shunned by your co-workers?
A patient can file a malpractice claim at any time, even if they have a good outcome. There's nothing but integrity stopping us. In the case of spine surgery, it might be hard to claim that one didn't know there were risks after signing a consent stating that the risks of surgery were discussed. All we can do is try to make informed decisions, and then hope that everything goes well. As we've seen in this thread, even the very best surgeons have bad outcomes.
If you honestly feel that you would not have undergone surgery because the list of risks above includes something with which you're unwilling to live, you should not have surgery.
To take but a single example (operating on wrong level) do you really think a surgeon should be help blameless? Of course, this could just be sensationalism, but I recall numerous cases where surgeons have been help liable - and scorned - for removing the wrong limb or other body part. Hence patients are sometimes advised (facetiously?) to label that part before surgery. Same thought about sponges left inside, misplaced screws, etc.
Mistakes are mistakes. of course. However, when someone's life and/or quality of life lies in the balance, the highly paid specialist making it, ought IMO be held accountable. I'm very surprised if you are indeed suggesting otherwise.
BTW I am a portrait artist. If a client doesn't like the portrait, I "adjust" the offending part as much as I can or redo it completely. Who wants to turn over a portrait the model throws darts at? (What Winston Churchill did with a portrait he hated!)
(Definition of a portrait: "A picture with 'a little something the matter with the mouth'")
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Chance of death with major spine surgery? I am >65 and was told 1/100. Dr. Hu probably rounded up the .5 chance.
Susan
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Originally posted by Chihuahua Mama View PostMy surgeon will do the best he can but when you are facing a surgery that has almost a 20% chance of death - you have to choose.
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Boachi lawsuit
[QUOTE=LindaRacine;163630]I had known that Dr. Boachie was going to retire for at least a year before it actually got announced.
How many times have you heard of surgeons telling patients that there are no guarantees? In case someone forgot, THERE ARE NO GUARANTEES.
/QUOTE
Unfortunately I have to agree with Linda on this one. Although I feel terrible for this young girl; the first thing my surgeon said to me "THERE IS NO GUARANTEE". My surgeon will do the best he can but when you are facing a surgery that has almost a 20% chance of death - you have to choose.
Life in a wheelchair or the chance to walk?
EVERYTHING possible is listed on the consent you sign; up to and including death. The surgeon admitted he could nick my spinal cord. THIS IS WHY YOU DO YOUR HOMEWORK, INTERVIEW MANY SURGEONS, THEN SPEND TIME USING YOUR BRAIN GOD GAVE YOU, AND PRAY!
Pray you found the right one - that feeling in your gut. I chose my first surgeon - Dr. Pashman. Then my daughter's BOSS called me and convinced me Dr. Kropf would be better. What to do? Gut said Pashman - I should have gone with him. He even said "how many times do you want to face surgery"?
I did NOT follow my gut on my first surgery - instead I was helping my daughter. No more daughter tending - from now own I do the best for me medically after I pray and consider what God tells me. That's it.
You can sue and try to attempt to get some money. I'd rather "store my treasure in heaven" and do my best to live and help others. This young lady is able to do what she likes.
Susan
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Originally posted by Back-out View PostI'm unclear about the risks you detailed earlier in this thread. Some, even most, do seem to be the "luck of the draw". However, others (leaving a sponge or other equipment inside, operating on the wrong level, a misplaced screw) seem to constitute surgical error or negligence.
Are we to understand that a surgeon can be given a pass on any mistake or lapse of judgment? When is a patient or his/her estate allowed to claim malpractice (NOT just referring to clearly egregious neglect, but such instances as cited above)? Such errors are AFAIK compounded by the apparently many instances when the patient's complaints are "blown off" afterwards.
If you make a mistake because you are impaired, that would be an intentional error. If you make the mistake while you are unimpaired, should you lose your job, pay a harsh fine, be shunned by your co-workers?
A patient can file a malpractice claim at any time, even if they have a good outcome. There's nothing but integrity stopping us. In the case of spine surgery, it might be hard to claim that one didn't know there were risks after signing a consent stating that the risks of surgery were discussed. All we can do is try to make informed decisions, and then hope that everything goes well. As we've seen in this thread, even the very best surgeons have bad outcomes.
If you honestly feel that you would not have undergone surgery because the list of risks above includes something with which you're unwilling to live, you should not have surgery.
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Originally posted by Back-out View PostSorry my lengthy post above was a hard to read. I was simultaneously searching for airline tickets and (I guess this was the problem) the many open windows with comparative prices made it impossible to edit it or even to delete it.
I remain confused about the issue of informed consent.
Days ago, I was forced into signing a (supposedly) informed consent form for a mastectomy which included absolutely no itemization of risks at all - simply an assertion that the patient [me] had been informed verbally about all risks. This was not true. When I was granted my (all too brief) audience with the surgeon's NP, I tried to clarify what the risks were and she said she wasn't in a position to disclose them.
This mattered to me especially as the surgeon had refused to do a double mastectomy (my request) precisely because by doubling my risks, it constituted an unacceptable medical risk overall., according to him. I still don't know what those risks are, and was (just as frustrating) forced to sign a form stating I knew what they were AND had "been given answers to all my questions".
Unlike most complex spinal surgery, cancer operations have a far more restrictive window of safety (though that is impossible to identify with certainty). I DO know, however, that I was not in a position to search out a new surgeon and facility at this point, for whatever reason. My surgeon's "offer" that I could do so, was very misleading especially given my circumstances. I couldn't even consult a different surgeon in his same facility for a second opinion.
This is just one more instance of make-believe "informed consent", though here not through excessive information but insufficient. Note, that if I turn out to need a further work-up and surgery on the "contralateral breast", especially from my remotely situated hometown, it will constitute just one more delay in undertaking the spinal surgery for which I came on board here. That makes it all the more unlikely that the serious neurological deficits I have developed. can ever be reversed.
I'm feeling sad and trapped by the prerogatives of the medical profession. Increasingly, I'm suspecting that no one except other professionals and their families are treated with respect by the highest level surgeons.
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Linda Racine - risks list
I'm unclear about the risks you detailed earlier in this thread. Some, even most, do seem to be the "luck of the draw". However, others (leaving a sponge or other equipment inside, operating on the wrong level, a misplaced screw) seem to constitute surgical error or negligence.
Are we to understand that a surgeon can be given a pass on any mistake or lapse of judgment? When is a patient or his/her estate allowed to claim malpractice (NOT just referring to clearly egregious neglect, but such instances as cited above)? Such errors are AFAIK compounded by the apparently many instances when the patient's complaints are "blown off" afterwards.
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Misc about patient rights
Sorry my lengthy post above was a hard to read. I was simultaneously searching for airline tickets and (I guess this was the problem) the many open windows with comparative prices made it impossible to edit it or even to delete it.
I remain confused about the issue of informed consent.
Days ago, I was forced into signing a (supposedly) informed consent form for a mastectomy which included absolutely no itemization of risks at all - simply an assertion that the patient [me] had been informed verbally about all risks. This was not true. When I was granted my (all too brief) audience with the surgeon's NP, I tried to clarify what the risks were and she said she wasn't in a position to disclose them.
This mattered to me especially as the surgeon had refused to do a double mastectomy (my request) precisely because by doubling my risks, it constituted an unacceptable medical risk overall., according to him. I still don't know what those risks are, and was (just as frustrating) forced to sign a form stating I knew what they were AND had "been given answers to all my questions".
Unlike most complex spinal surgery, cancer operations have a far more restrictive window of safety (though that is impossible to identify with certainty). I DO know, however, that I was not in a position to search out a new surgeon and facility at this point, for whatever reason. My surgeon's "offer" that I could do so, was very misleading especially given my circumstances. I couldn't even consult a different surgeon in his same facility for a second opinion.
This is just one more instance of make-believe "informed consent", though here not through excessive information but insufficient. Note, that if I turn out to need a further work-up and surgery on the "contralateral breast", especially from my remotely situated hometown, it will constitute just one more delay in undertaking the spinal surgery for which I came on board here. That makes it all the more unlikely that the serious neurological deficits I have developed. can ever be reversed.
I'm feeling sad and trapped by the prerogatives of the medical profession. Increasingly, I'm suspecting that no one except other professionals and their families are treated with respect by the highest level surgeons.
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Hi Susan,
Interesting story about the couple with CF---sounds like they really didn't get it during genetic counseling or something. They thought all odds were black and white and spread over the course of all their pregnancies, not a new relative risk for each pregnancy unrelated to the prior pregnancies. How sad.
You unfortunately really were on your own island with your spinal cord injury since it was such an unusual situation…I'm sure considering that you would have accepted much higher odds than 10-15% chance of paralysis. I think your strength, humor, and positive attitude pulled you through, and I certainly try to emulate you. We met because you needed surgery and agonized about it before proceeding, you only wanted one surgery. When we became friends I was the success story, and yet, several years later, you have been through so much, way more than anyone here could have imagined, and yet here you are giving me comfort and support! I am lucky to have your support and friendship. You are an amazing lady!
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Originally posted by leahdragonfly View PostI was quoted my risk of blindness as 1 in 600,000 or something like that. You just have to hope the guy before you wasn't number 599,999.
When I had my spinal cord injury from a screw that was impinging on my spinal cord, I had been a paraplegic for 2 weeks. I remember Dr. Hiratzka saying that I had a "10-15% chance of being a permanent paraplegic". I would have agreed to a higher risk, since my legs had barely moved for 2 weeks and Dr. Hiratzka offered the only hopeful intervention in 2 weeks. My situation was different than almost everyone on the forum since it was an Emergency surgery and not an elective surgery.
Susan with 4 rodsLast edited by susancook; 08-28-2016, 02:12 AM.
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It's a very grey area. Most complications have odds ratios published. Believe it or not, the disclosure of more information about complications doesn't seem to affect informed choice. I think it's human nature for a large percentage of the population to believe that they won't have a serious complication.
I'm sure it happens, but I don't recall ever hearing about anyone changing their mind about deformity surgery because of the informed consent process.
--Linda
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