Hi all,
Hope everyone is well
I had scoliosis surgery around 10 years ago now for fairly severe adolescent idiopathic scoliosis when I was 24. I had a double "S" curve of around 80 degrees pre surgery, which was corrected by around 50-60%. I have largely been pleased with the results of my surgery and went on to do many amazing things post recovery. However, in the last few years I have developed numbness down my right leg, that wasn't there before. I don't have pain at all, it's just numb down my leg and into my toes. It's been that way for years now. Since developing these symptoms, I have had nerve conduction tests, blood tests and MRI scans of my head and whole spine to investigate. My original surgeon has looked at the scans, as well as a neurologist. They have said that based on the scans, they don't know the cause of this numbness, as there is nothing that would cause this showing on the scans and that I just have to live with it. It causes me great anxiety because I don't know the cause or if it will get worse and it's there all the time. I have other numb patches on my body, most of my back is numb from the surgery. I also have a numb patch on my stomach which I'm not 100% sure has always been there or not. Anyway I suppose I just wondered if anyone else had experiences like this? Part of me thinks it surely must be something to do with my back and my surgery but I just don't know.
Louise X
Hope everyone is well

I had scoliosis surgery around 10 years ago now for fairly severe adolescent idiopathic scoliosis when I was 24. I had a double "S" curve of around 80 degrees pre surgery, which was corrected by around 50-60%. I have largely been pleased with the results of my surgery and went on to do many amazing things post recovery. However, in the last few years I have developed numbness down my right leg, that wasn't there before. I don't have pain at all, it's just numb down my leg and into my toes. It's been that way for years now. Since developing these symptoms, I have had nerve conduction tests, blood tests and MRI scans of my head and whole spine to investigate. My original surgeon has looked at the scans, as well as a neurologist. They have said that based on the scans, they don't know the cause of this numbness, as there is nothing that would cause this showing on the scans and that I just have to live with it. It causes me great anxiety because I don't know the cause or if it will get worse and it's there all the time. I have other numb patches on my body, most of my back is numb from the surgery. I also have a numb patch on my stomach which I'm not 100% sure has always been there or not. Anyway I suppose I just wondered if anyone else had experiences like this? Part of me thinks it surely must be something to do with my back and my surgery but I just don't know.
Louise X
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