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Failure to Fuse - What Does It Mean?

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  • #46
    Great videos. There is also a video on a spinal cord stimulator by my physician, Dr. Adam Young. He isn't at Rush location now but is practicing in Morton Grove, Illinois.
    So Tina, if you can get there, he will listen well to you and do his best to help.
    T10-pelvis fusion 12/08
    C5,6,7 fusion 9/10
    T2--T10 fusion 2/11
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16
    Broken neck 9/28/2018
    Emergency surgery posterior fusion C4- T3
    Repeated 11/2018 because rods pulled apart added T2 fusion
    Removal of partial right thoracic hardware 1/2020
    Removal and replacement of C4-T10 hardware with C7 and T 1
    Osteotomy

    Comment


    • #47
      Thanks for all the recommendations for doctors. The ones you have mentioned would require long-distance travel for me. I live in an area that other people usually travel to when it comes to medical care, it has that reputation. So I should be able to find highly competent people. But keep those recommendations coming, I will file them away just in case.

      Right now I'm trying to get my radiology and other tests together and get them to the right doctors. I have had radiology done all over the place. It's cumbersome, but the only way to share it between hospitals and practices is to get it on disc and mail it or bring it with you to the appointment. You would think there would be electronic transfer, but that's not an option.

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      • #48
        Another difficulty. The spine surgeon I'm going to see received my disc with the myelogram images from another hospital and he should also have received a report.

        That's not enough, he wants something else (his office called me). I take it there is also data associated with a myelogram. Maybe in the form of graphs, charts, whatever. Does anyone know about this? What would this be called?

        His office was no help in communicating to me exactly what he wants, only that the images aren't enough; they seem to be medically challenged in knowledge when it comes to discussing this. The part of the hospital radiology department that mails discs out has no idea what I want; they are only used to sending images and reports.

        I can only conclude that this myelogram data is either part of my medical records, a separate department from radiology, or is possessed by the neurologist who ordered it. The best option seems to be to get the spine surgeon to call the neurologist. One doctor would easily be able to get through to another doctor. But it seems a bit ridiculous to have to do this.

        These kinds of snags keep holding up my appointments.
        Last edited by Tina_R; 01-10-2021, 09:13 PM.

        Comment


        • #49
          Any time I have had any type of test like a myelogram, the only records are the disc and report. Since the test results are yours , you can request your own copy.
          I have learned to ask for a copy as soon is the test is done.
          You can also call the location and ask how to obtain your copy of you didn't do that.
          This way your copy travels with you where ever you choose to seek treatment and can go with you to a different appointment.
          You can obtain the office notes also. Sometimes there is a change. It just depends but it is so worth it.
          T10-pelvis fusion 12/08
          C5,6,7 fusion 9/10
          T2--T10 fusion 2/11
          C 4-5 fusion 11/14
          Right scapulectomy 6/15
          Right pectoralis major muscle transfer to scapula
          To replace the action of Serratus Anterior muscle 3/16
          Broken neck 9/28/2018
          Emergency surgery posterior fusion C4- T3
          Repeated 11/2018 because rods pulled apart added T2 fusion
          Removal of partial right thoracic hardware 1/2020
          Removal and replacement of C4-T10 hardware with C7 and T 1
          Osteotomy

          Comment


          • #50
            Tina the only graphs I know of is the degree measurements the orthopaedic of neurosurgeon uses in assessing scoliosis.
            A lot of surgeons like to do there own.
            T10-pelvis fusion 12/08
            C5,6,7 fusion 9/10
            T2--T10 fusion 2/11
            C 4-5 fusion 11/14
            Right scapulectomy 6/15
            Right pectoralis major muscle transfer to scapula
            To replace the action of Serratus Anterior muscle 3/16
            Broken neck 9/28/2018
            Emergency surgery posterior fusion C4- T3
            Repeated 11/2018 because rods pulled apart added T2 fusion
            Removal of partial right thoracic hardware 1/2020
            Removal and replacement of C4-T10 hardware with C7 and T 1
            Osteotomy

            Comment


            • #51
              Jackie, according to his office person, the new surgeon I'm going to see had been sent "fluoroscopic images from the myelogram" but he hasn't got "the CT myelogram itself" and he wants it. She wrote this down verbatim but doesn't understand it and I don't know why the patient is expected to figure it out.

              The fluoroscopic images are the images on the disc. The report would have been on the disc, too, or on a separate sheet of paper that he would have received with the disc.

              I think there's more to it. It isn't always just pictures (disc) and words (report from radiologist) that come out of these tests. There's probably some kind of data that the test produced that the surgeon wants to see. Charts, graphs, lists of numbers that tell him something.

              Comment


              • #52
                The reports I get are on paper not on the disc. They may be on the disc after a disc is requested later but not when you get a disc at the time the test was done. The radiologist hasn't read it yet.
                Just call or go back to get your copy of both.
                Where I have been it is easy. But call first, since it takes a little time to burn the disc.
                Then go to medical records because you need to sign. I think it can be done by mail for a small fee but this way it is yours and then the other doctor can down load the images but you have your copy and your copy of the radiologist report that you can read.
                T10-pelvis fusion 12/08
                C5,6,7 fusion 9/10
                T2--T10 fusion 2/11
                C 4-5 fusion 11/14
                Right scapulectomy 6/15
                Right pectoralis major muscle transfer to scapula
                To replace the action of Serratus Anterior muscle 3/16
                Broken neck 9/28/2018
                Emergency surgery posterior fusion C4- T3
                Repeated 11/2018 because rods pulled apart added T2 fusion
                Removal of partial right thoracic hardware 1/2020
                Removal and replacement of C4-T10 hardware with C7 and T 1
                Osteotomy

                Comment


                • #53
                  I continue to do well. It is still a balance struggle and the right hand is also still an issue..
                  I did manage to change part of my signature. It wouldn't let me post everything. It was too long.
                  Ed you are a wealth of information. You are so important on helping people through their decisions.
                  Maybe you have a suggestion on how to include my long journey with surgery an injury.
                  T10-pelvis fusion 12/08
                  C5,6,7 fusion 9/10
                  T2--T10 fusion 2/11
                  C 4-5 fusion 11/14
                  Right scapulectomy 6/15
                  Right pectoralis major muscle transfer to scapula
                  To replace the action of Serratus Anterior muscle 3/16
                  Broken neck 9/28/2018
                  Emergency surgery posterior fusion C4- T3
                  Repeated 11/2018 because rods pulled apart added T2 fusion
                  Removal of partial right thoracic hardware 1/2020
                  Removal and replacement of C4-T10 hardware with C7 and T 1
                  Osteotomy

                  Comment


                  • #54
                    Originally posted by jackieg412 View Post
                    Maybe you have a suggestion on how to include my long journey with surgery an injury.
                    On your signature, you could detail it and throw it on a new thread. Link that thread in your signature like the way I have the bending and twisting photos in my signature.

                    You could e-mail your proposed new signature to me....I don't know what is missing? Type in everything.

                    I will e-mail it back to you after my edits.

                    Ed
                    49 yr old male, now 63, the new 64...
                    Pre surgery curves T70,L70
                    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                    Dr Brett Menmuir St Marys Hospital Reno,Nevada

                    Bending and twisting pics after full fusion
                    http://www.scoliosis.org/forum/showt...on.&highlight=

                    My x-rays
                    http://www.scoliosis.org/forum/attac...2&d=1228779214

                    http://www.scoliosis.org/forum/attac...3&d=1228779258

                    Comment


                    • #55
                      Hi Ed, I will try to write all of it in a post but remember for some reason I can't email you direct. Yours seems to be working and mine is working but I guess the email accounts don't like each other.
                      T10-pelvis fusion 12/08
                      C5,6,7 fusion 9/10
                      T2--T10 fusion 2/11
                      C 4-5 fusion 11/14
                      Right scapulectomy 6/15
                      Right pectoralis major muscle transfer to scapula
                      To replace the action of Serratus Anterior muscle 3/16
                      Broken neck 9/28/2018
                      Emergency surgery posterior fusion C4- T3
                      Repeated 11/2018 because rods pulled apart added T2 fusion
                      Removal of partial right thoracic hardware 1/2020
                      Removal and replacement of C4-T10 hardware with C7 and T 1
                      Osteotomy

                      Comment


                      • #56
                        Sounds good....I don't know why you cannot e-mail me. I do get my e-mails so you must have my address spelled wrong.

                        I would use Rod Strewart as an e-mail address, but Rod is probably using it. (smiley face)

                        Ed
                        49 yr old male, now 63, the new 64...
                        Pre surgery curves T70,L70
                        ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                        Dr Brett Menmuir St Marys Hospital Reno,Nevada

                        Bending and twisting pics after full fusion
                        http://www.scoliosis.org/forum/showt...on.&highlight=

                        My x-rays
                        http://www.scoliosis.org/forum/attac...2&d=1228779214

                        http://www.scoliosis.org/forum/attac...3&d=1228779258

                        Comment

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