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  • Cause of New Pain?

    Havenít been on forum for awhile but check in every so often. Have posted as single older person getting ready for surgery. My return appt w/ dr Gupta in January resulted in delays for my surgery then this virus hits. I have been suffering from chronic pain both from Scoliosis (30 degrees thoracic & 40 Lumbar) + Degenerative disc disease for a long time. When I read about others stories I am amazed at how you survive the pain. Iív never been able to tolerate pain. Presently I have a new type of pain in thoracic area. I am on short acting opioid since last September to do PT but have continued to use because nothing else helps. I have concerns staying on opioid for a long period of time (am well educated about addiction). I can feel my curves lying down on my back. This new pain started a couple of days ago. Given it will probably be 2 yrs for a vaccine to be confirmed for the Coronvirus I will be about 66. I am pretty sure Ií not going into a germ invested hospital until a proven vaccine is confirmed. Does the increase of curvature result in more pain? I donít know how to handle it. Advice appreciated.

  • #2
    It seems plausible that more curvature could cause new pain.

    I don't blame you for wanting to avoid hospitals right now. I'm wondering if I'm going to go to a doctor's office in the near future and what it would take to get me there. Let alone a dentist, or nail salon, or hair dresser...The nail salon is not frivolous when your toenails are drawing blood because you can't reach them to trim them.

    I have no confidence in the fact that politicians are relaxing things. That doesn't mean everything will be just fine. People at risk still need to watch themselves, as you said.
    Last edited by Tina_R; 05-10-2020, 12:03 PM.

    Comment


    • #3
      Real fast....Here is a list of things I have done, and others have done for scoliosis and scoliosis pain. Highly disorganized.

      1) Sleep, lay down
      2) Hot shower, Bath Bath with Epsom salt
      3) Exercise, Physical therapy, Exercise ball 24" dia, Stretching, Counter rotating rib and lumbar humps with cliff
      4) Aspirin
      5) Hot water immersion Hot tub, Spa 106 degrees F
      6) Chiropractic
      7) Osteopathy
      8) Ultrasound
      9) Electrostim
      10) Swimming, Ocean swimming, Scuba diving
      11) Having someone walk on back
      12) Traction Manual, or Computerized. Vax-D machine
      13) Analgesics Topical Tiger balm, Ben gay Etc
      14) NSAIDS. Prescription Anti-inflammatories... Celebrex, Diclofenac, Naproxen Etc
      15) Yoga, meditation Lomi Lomi Vacations
      16) Accupressure, Accupuncture, Accupuncture with electricity, Chinese modalities with and without Chinese training. (I think it means something)
      17) Massage Massage immediatly after hot water immersion.
      18) Cannabis, CBD
      19) Opioids (Oral)
      20) Surgery Open, Minimally Invasive, Tethering
      21) Hot pads
      22) Pneu-back system de-weighting on tredmill
      23) Pain shots
      24) Vibration Large vibrator on lumbar hump
      25) Massage chairs
      26) Arch tables
      27) Personal stretching machinery
      28) Anesthesia, Morphine injections, Dialuid, and Lortab
      29) Gabapentin
      30) Muscle relaxers Robaxin, Flexiril Etc
      31) Ignore pain
      32) Pray
      33) Ketamine. Anesthesia, and Infusion
      34) Write about scoliosis, posting here on NSF Communicating with other scoliosis patients
      35) Not thinking about scoliosis
      36) Copes Brace Hard braces, soft braces
      37) Tempurpedic bed
      38) Soft down pillows
      39) Travel in RV Soft Captains chairs.
      40) Foam for bed. Use Latex foam 2-4 inches thick
      41) Eat healthier
      42) Drink more water
      43) Go to scoliosis meetings
      44) Education on scoliosis topics
      45) Comedy Benny Hill, Roseanne Roseannadanna, George Carlin Etc
      46) Scroth, Magical suit, Power tools, Spinecore
      47) 3D printed braces
      48) Ice
      49) Medrol packs Methylprednisolone
      50) Revision surgery
      51) Dr Menmuir
      52) Arm bike for bear traps. (Pedal with Arms) Emulate with cans of food 1# Forward and backwards
      53) Rotational stretches (In chair, or machine) See Dingo's threads

      Thats all I can think of for now.

      Ed
      Last edited by titaniumed; 05-11-2020, 11:49 AM.
      49 yr old male, now 63, the new 64...
      Pre surgery curves T70,L70
      ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
      Dr Brett Menmuir St Marys Hospital Reno,Nevada

      Bending and twisting pics after full fusion
      http://www.scoliosis.org/forum/showt...on.&highlight=

      My x-rays
      http://www.scoliosis.org/forum/attac...2&d=1228779214

      http://www.scoliosis.org/forum/attac...3&d=1228779258

      Comment


      • #4
        Thanks!

        Originally posted by titaniumed View Post
        Real fast....Here is a list of things I have done, and others have done for scoliosis and scoliosis pain. Highly disorganized.

        1) Sleep, lay down
        2) Hot shower, Bath Bath with Epsom salt
        3) Exercise, Physical therapy, Exercise ball 24" dia, Stretching, Counter rotating rib and lumbar humps with cliff
        4) Aspirin
        5) Hot water immersion Hot tub, Spa 106 degrees F
        6) Chiropractic
        7) Osteopathy
        8) Ultrasound
        9) Electrostim
        10) Swimming, Ocean swimming, Scuba diving
        11) Having someone walk on back
        12) Traction Manual, or Computerized. Vax-D machine
        13) Analgesics Topical Tiger balm, Ben gay Etc
        14) NSAIDS. Prescription Anti-inflammatories... Celebrex, Diclofenac, Naproxen Etc
        15) Yoga, meditation Lomi Lomi Vacations
        16) Accupressure, Accupuncture, Accupuncture with electricity, Chinese modalities with and without Chinese training. (I think it means something)
        17) Massage Massage immediatly after hot water immersion.
        18) Cannabis, CBD
        19) Opioids (Oral)
        20) Surgery Open, Minimally Invasive, Tethering
        21) Hot pads
        22) Pneu-back system de-weighting on tredmill
        23) Pain shots
        24) Vibration Large vibrator on lumbar hump
        25) Massage chairs
        26) Arch tables
        27) Personal stretching machinery
        28) Anesthesia, Morphine injections, Dialuid, and Lortab
        29) Gabapentin
        30) Muscle relaxers Robaxin, Flexiril Etc
        31) Ignore pain
        32) Pray
        33) Ketamine. Anesthesia, and Infusion
        34) Write about scoliosis, posting here on NSF Communicating with other scoliosis patients
        35) Not thinking about scoliosis
        36) Copes Brace Hard braces, soft braces
        37) Tempurpedic bed
        38) Soft down pillows
        39) Travel in RV Soft Captains chairs.
        40) Foam for bed. Use Latex foam 2-4 inches thick
        41) Eat healthier
        42) Drink more water
        43) Go to scoliosis meetings
        44) Education on scoliosis topics
        45) Comedy Benny Hill, Roseanne Roseannadanna, George Carlin Etc
        46) Scroth, Magical suit, Power tools, Spinecore
        47) 3D printed braces
        48) Ice
        49) Medrol packs Methylprednisolone
        50) Revision surgery
        51) Dr Menmuir
        52) Arm bike for bear traps. (Pedal with Arms) Emulate with cans of food 1# Forward and backwards
        53) Rotational stretches (In chair, or machine) See Dingo's threads

        Thats all I can think of for now.

        Ed
        Gee Ed youíre like a walking encyclopedia (ha, ha) - seriously thanks for all the info- what would Dr Menmuir offer that other docs donít? He did your surgery right?

        Comment


        • #5
          Originally posted by Scared View Post
          Havenít been on forum for awhile but check in every so often. Have posted as single older person getting ready for surgery. My return appt w/ dr Gupta in January resulted in delays for my surgery then this virus hits. I have been suffering from chronic pain both from Scoliosis (30 degrees thoracic & 40 Lumbar) + Degenerative disc disease for a long time. When I read about others stories I am amazed at how you survive the pain. Iív never been able to tolerate pain. Presently I have a new type of pain in thoracic area. I am on short acting opioid since last September to do PT but have continued to use because nothing else helps. I have concerns staying on opioid for a long period of time (am well educated about addiction). I can feel my curves lying down on my back. This new pain started a couple of days ago. Given it will probably be 2 yrs for a vaccine to be confirmed for the Coronvirus I will be about 66. I am pretty sure Ií not going into a germ invested hospital until a proven vaccine is confirmed. Does the increase of curvature result in more pain? I donít know how to handle it. Advice appreciated.
          Hi there, Scared, Our lives are somewhat parallel as I also have [had] Adult Degenerative Scoliosis and I had my surgery when I was ???67??? give or take. Our curves are similar. I found that my pain increased with time, but my curve stayed about the same. My kyphosis worsened. I used a lot of ice bags on my back and ate a lot of cold dinners [husband got the warm dinner, but I was in big time pain by the time that I finished stir frying that the ice bag and I convened for 30 minutes while my dinner became cold.] By the time that I finally had surgery, I tried everything else and just felt that I should, "Get 'er done!" I was never scared, probably because I completely trusted my surgeon by that point and I felt that I did not have any other choice.

          There will always be a virus, bacteria, or something else that goes bump in the dark to haunt us in hospitals. I also probably take the prize for the most "adverse events" that could go wrong after a major surgery....except the big one: "Buying the farm" which I have so far avoided.

          I wish you well. There will never be a perfect time, but when your time comes to really need the surgery, you will know it.

          Susan
          Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

          2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
          2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
          2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
          2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
          2018: Removal L4,5 screw
          2021: Removal T1 screw & rod

          Comment


          • #6
            Originally posted by Scared View Post
            Gee Ed youíre like a walking encyclopedia (ha, ha) - seriously thanks for all the info- what would Dr Menmuir offer that other docs donít? He did your surgery right?
            Today, I am not really sure because technology has changed over the last 12 years. I really like what Dr Uribe is doing down in Phoenix with the 3D Printing technology. Dr M is in Florida now, I dont know if he is doing scoliosis surgeries. He has the training, no doubt about that. Using 3D printing technology is the cats meow now. They can print any part of your body. The only way to know, is to ask.

            I did just about everything on that list over the last 45 years living with scoliosis. Readers can look through, and say "I did that". Of course I wanted to post before I forget these things. I hope it helps someone. I can elaborate on each and every line on that list if anyone has questions. A lot of it I have posted about here in the past.

            Since there are no questions right now, here is a blast from the past. Gilda Radner November 1978 SNL
            "Its always something"
            https://www.youtube.com/watch?v=9hYGtXIqDa0

            Ed
            49 yr old male, now 63, the new 64...
            Pre surgery curves T70,L70
            ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
            Dr Brett Menmuir St Marys Hospital Reno,Nevada

            Bending and twisting pics after full fusion
            http://www.scoliosis.org/forum/showt...on.&highlight=

            My x-rays
            http://www.scoliosis.org/forum/attac...2&d=1228779214

            http://www.scoliosis.org/forum/attac...3&d=1228779258

            Comment


            • #7
              Itís the Pain

              Originally posted by susancook View Post
              Hi there, Scared, Our lives are somewhat parallel as I also have [had] Adult Degenerative Scoliosis and I had my surgery when I was ???67??? give or take. Our curves are similar. I found that my pain increased with time, but my curve stayed about the same. My kyphosis worsened. I used a lot of ice bags on my back and ate a lot of cold dinners [husband got the warm dinner, but I was in big time pain by the time that I finished stir frying that the ice bag and I convened for 30 minutes while my dinner became cold.] By the time that I finally had surgery, I tried everything else and just felt that I should, "Get 'er done!" I was never scared, probably because I completely trusted my surgeon by that point and I felt that I did not have any other choice.

              There will always be a virus, bacteria, or something else that goes bump in the dark to haunt us in hospitals. I also probably take the prize for the most "adverse events" that could go wrong after a major surgery....except the big one: "Buying the farm" which I have so far avoided.

              I wish you well. There will never be a perfect time, but when your time comes to really need the surgery, you will know it.

              Susan
              I was ready for surgery it was the dr who held things up (kept emphasizing the risks). Now itís the virus thatís delaying it. How am I suppose to survive for 2 more years? I did many things Ed suggested but canít afford to do some of them like see another dr in another state (we are on lock down where I live). I will be doing this alone which has been the usual senecio in my life. But this time itís something Iím not sure I can do alone. I hate that you have had to go thru all those surgeries. Thank you Susan

              Comment


              • #8
                Are your ducks in a row?

                Originally posted by Scared View Post
                I was ready for surgery it was the dr who held things up (kept emphasizing the risks). Now itís the virus thatís delaying it. How am I suppose to survive for 2 more years? I did many things Ed suggested but canít afford to do some of them like see another dr in another state (we are on lock down where I live). I will be doing this alone which has been the usual senecio in my life. But this time itís something Iím not sure I can do alone. I hate that you have had to go thru all those surgeries. Thank you Susan
                Scared....surely, your mother gave you another name....I would wonder why your doctor "kept emphasizing the risks". Were you questioning her/him? I saw 2 spine surgeons before my first surgery. Yes, they were were specific about the risks, maybe a little pessimistic [I suppose that surgeons remember the bad outcomes or are haunted by them, than the good ones]. Surgery is always a Risk vs "Possible, hoped for, this is what I want to happen" Great Outcome, Everyone goes into surgery with a pair of rose colored glasses on. Yes, we hear what is said, but somehow we feel immune or special. I thought that my surgery with a smallish curve but loads of messed up vertebrae/discs would to one of the top spine surgeons be "a relatively easy day" . I asked Dr. Hu, "On a scale of 1-10, one being easy and 10 being extremely difficult, what # would you give my surgery?" She said, "8". Kinda blew my socks off. I was thinking that I was a 5-6 or so ;+} .

                I flew to Washington DC from Portland on one of the first flights after 9/11. Was I afraid? Nope. I figured that every possible measure was taken to prevent another hijacking that could be done. The plane was less than 1/10th full.

                But, I am not you. The worst case scenario is for anybody to go into a major surgery feeling that your ducks are not in line. [Can't resist telling a joke: "Not only are my ducks not in a row, I don't even know where they are!"] Do you need another opinion for another spine surgeon that does surgery on older persons? [By the way, do you have osteoporosis?]

                Susan
                Last edited by susancook; 05-12-2020, 07:03 PM.
                Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                2018: Removal L4,5 screw
                2021: Removal T1 screw & rod

                Comment


                • #9
                  Originally posted by titaniumed View Post
                  Real fast....Here is a list of things I have done, and others have done for scoliosis and scoliosis pain. Highly disorganized.

                  1) Sleep, lay down
                  2) Hot shower, Bath Bath with Epsom salt
                  3) Exercise, Physical therapy, Exercise ball 24" dia, Stretching, Counter rotating rib and lumbar humps with cliff
                  4) Aspirin
                  5) Hot water immersion Hot tub, Spa 106 degrees F
                  6) Chiropractic
                  7) Osteopathy
                  8) Ultrasound
                  9) Electrostim
                  10) Swimming, Ocean swimming, Scuba diving
                  11) Having someone walk on back
                  12) Traction Manual, or Computerized. Vax-D machine
                  13) Analgesics Topical Tiger balm, Ben gay Etc
                  14) NSAIDS. Prescription Anti-inflammatories... Celebrex, Diclofenac, Naproxen Etc
                  15) Yoga, meditation Lomi Lomi Vacations
                  16) Accupressure, Accupuncture, Accupuncture with electricity, Chinese modalities with and without Chinese training. (I think it means something)
                  17) Massage Massage immediatly after hot water immersion.
                  18) Cannabis, CBD
                  19) Opioids (Oral)
                  20) Surgery Open, Minimally Invasive, Tethering
                  21) Hot pads
                  22) Pneu-back system de-weighting on tredmill
                  23) Pain shots
                  24) Vibration Large vibrator on lumbar hump
                  25) Massage chairs
                  26) Arch tables
                  27) Personal stretching machinery
                  28) Anesthesia, Morphine injections, Dialuid, and Lortab
                  29) Gabapentin
                  30) Muscle relaxers Robaxin, Flexiril Etc
                  31) Ignore pain
                  32) Pray
                  33) Ketamine. Anesthesia, and Infusion
                  34) Write about scoliosis, posting here on NSF Communicating with other scoliosis patients
                  35) Not thinking about scoliosis
                  36) Copes Brace Hard braces, soft braces
                  37) Tempurpedic bed
                  38) Soft down pillows
                  39) Travel in RV Soft Captains chairs.
                  40) Foam for bed. Use Latex foam 2-4 inches thick
                  41) Eat healthier
                  42) Drink more water
                  43) Go to scoliosis meetings
                  44) Education on scoliosis topics
                  45) Comedy Benny Hill, Roseanne Roseannadanna, George Carlin Etc
                  46) Scroth, Magical suit, Power tools, Spinecore
                  47) 3D printed braces
                  48) Ice
                  49) Medrol packs Methylprednisolone
                  50) Revision surgery
                  51) Dr Menmuir
                  52) Arm bike for bear traps. (Pedal with Arms) Emulate with cans of food 1# Forward and backwards
                  53) Rotational stretches (In chair, or machine) See Dingo's threads

                  Thats all I can think of for now.

                  Ed
                  Ed, Have you tried acupressure, -puncture with and without Chinese training? What was it like? My neurologist believes in acupuncture and I think practices it but I have never tried it.

                  Comment


                  • #10
                    Originally posted by Tina_R View Post
                    Ed, Have you tried acupressure, -puncture with and without Chinese training? What was it like? My neurologist believes in acupuncture and I think practices it but I have never tried it.
                    Yes. My Chiro had a Chinese acupressure therapist that worked there who worked MIRACLES. She trained in China. I did approx 100 sessions with her back in the day. (Before scoliosis surgery) She was amazing.

                    I had an Non-Chinese Osteopath MD who did not train in China who performed acupuncture on me, and that did not work at all. I did a few of those sessions and stopped going. He did do a sacral adjustment on me that removed probably 20 years of pain in one adjustment. It was a leveraged leg rotational movement that the Chiros do not do, so it was worth seeing him. He also used electricity (9volts) on some of the leg needles and it was not pleasant. (Before scoliosis surgery)

                    Its hard to find the right people and scoliosis patients need to find the right people. I call this the "doctor tour" Been there, done that. Its hard to say if any of these modalities will work for you. They only way to know, is to try. You could have great sucess if you find the right person.

                    On #15 I mention vacations....which I dont know if thats a great idea since on many of my vacations, I have been in major pain for various reasons. I am not sure if this is a good idea now that I think about it. Good for the mind, bad for pain. Airplane rides and bad beds might have contributed to the pain....

                    Most of the items on my list involve money. I spent a fortune on scoliosis over the years. $100,000 on massages alone. Scoliosis is expensive, there is no doubt about that.

                    Ed
                    49 yr old male, now 63, the new 64...
                    Pre surgery curves T70,L70
                    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                    Dr Brett Menmuir St Marys Hospital Reno,Nevada

                    Bending and twisting pics after full fusion
                    http://www.scoliosis.org/forum/showt...on.&highlight=

                    My x-rays
                    http://www.scoliosis.org/forum/attac...2&d=1228779214

                    http://www.scoliosis.org/forum/attac...3&d=1228779258

                    Comment


                    • #11
                      Originally posted by titaniumed View Post
                      Yes. My Chiro had a Chinese acupressure therapist that worked there who worked MIRACLES. She trained in China. I did approx 100 sessions with her back in the day. (Before scoliosis surgery) She was amazing.
                      Ed...

                      Obvious question... If it worked so well, why did you stop?

                      I tried acupuncture when I first started having back pain. I would get short term relief, but the pain always returned by the next day. I sort of thought it might be wishful thinking, and that my pro-science mind always betrayed my hope that I'd find a miracle.

                      --Linda
                      Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                      ---------------------------------------------------------------------------------------------------------------------------------------------------
                      Surgery 2/10/93 A/P fusion T4-L3
                      Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                      Comment


                      • #12
                        Originally posted by LindaRacine View Post
                        Ed...

                        Obvious question... If it worked so well, why did you stop?

                        I tried acupuncture when I first started having back pain. I would get short term relief, but the pain always returned by the next day. I sort of thought it might be wishful thinking, and that my pro-science mind always betrayed my hope that I'd find a miracle.

                        --Linda
                        Acupressure worked well during my 30's and the begining of my 40's. Of course, degeneration involving disc herniations took a foothold and the effort required, or frequency of visits increased. Disc herniations are very hard to deal with, especially 4 lumbar herniations in a 70 degree lumbar curve.

                        I stumbled across Celebrex which kept me going. That was in Jan 2002. That neurogenic pain was quelled 90% with Celebrex....but hard on the stomach, and I put on a bunch of weight with that one. The NSAID usage lasted on and off until Oct 2007 when I submitted to my surgeries. I used Chiro and Accupressure along with Celebrex and Bextra all those years. And a whole bunch of massage!!!! That's an expensive habit. 2-3X week, 2 hour massages after a hot soak. $1500/$2000 per month. The massages would get me out of pain. Enough to drive back home and get to bed.

                        Since Accupressure and Accupuncture are relatively easy things to try, it might be worth it to try. Depends on the pain threshold, and the wallet. The wallet is the common denominator in all our pain modalities.

                        When you try all the things on my list and it doesnt work anymore, or last any amount of time, its time for surgery. I cant believe I did that. I needed surgery at age 16. (Or earlier) Scoliosis survival with big curves starting with 50/50 for 33 years takes a lot of trial and error and effort. They also didnt want to operate on me fusing to the pelvis so had to do the alternative rounds.

                        My testimonial is of course from an "S" patient. I have an S curve. Nicely balanced, no real plumb issues, little sagittal plane problems, but a lot of pain.

                        Glad to see you posting Linda...hope things are well. This COVID-19 thing is a whirlwind of new unknown material, sort of like dealing with scoliosis with not knowing what is going to happen. Sound familiar? Most of us here have had this happen to us. The uncertainty of our medical circumstances....I suppose there is no room for getting overly excited, we will make it through all of this in time. Again, changes will be made and hope for a vaccine is necessary. President Trump made a statement that there is now and army working on COVID-19, as monumental as the Manhattan Project during WW2. I am very hopeful that more answers will be coming soon so we can get back to business as usual. Recovery rates are increasing so thats good news.

                        Ed
                        Last edited by titaniumed; 05-16-2020, 01:05 AM.
                        49 yr old male, now 63, the new 64...
                        Pre surgery curves T70,L70
                        ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                        Dr Brett Menmuir St Marys Hospital Reno,Nevada

                        Bending and twisting pics after full fusion
                        http://www.scoliosis.org/forum/showt...on.&highlight=

                        My x-rays
                        http://www.scoliosis.org/forum/attac...2&d=1228779214

                        http://www.scoliosis.org/forum/attac...3&d=1228779258

                        Comment


                        • #13
                          Originally posted by titaniumed View Post
                          Since Accupressure and Accupuncture are relatively easy things to try, it might be worth it to try. Depends on the pain threshold, and the wallet. The wallet is the common denominator in all our pain modalities.
                          I suppose my insurance might cover it since it would be done by my neurologist. For myself I feel weird about covering up pain as long as it is bearable. If you cover it up, you're masking the problem that it is a symptom of. I don't blame people in a lot of pain from trying to stop it, of course. Thankfully I've never had that much pain, mostly just loss of proper function from scoliosis.

                          Originally posted by titaniumed View Post
                          This COVID-19 thing is a whirlwind of new unknown material, sort of like dealing with scoliosis with not knowing what is going to happen. Sound familiar? Most of us here have had this happen to us. The uncertainty of our medical circumstances....I suppose there is no room for getting overly excited, we will make it through all of this in time. Again, changes will be made and hope for a vaccine is necessary. President Trump made a statement that there is now and army working on COVID-19, as monumental as the Manhattan Project during WW2. I am very hopeful that more answers will be coming soon so we can get back to business as usual. Recovery rates are increasing so thats good news.

                          Ed
                          How come they can't work on manufacturing enough masks, alcohol, and disinfectant as well? Those are weapons for fighting this war that ordinary people should have while the medical experts are working on their treatments. They are always out of stock.

                          Comment


                          • #14
                            Tina, As we all know, being in pain is no fun....The amount of pain will dictate what you do about it and for some of us, we will take what we can get in our battles....even if its temporary. Its almost like being hungry and starving and eating anything that comes across the table. Well, almost anything....depends on how hungry you are. The surgeons and doctors usually have great insurance people that work for them. Ask them, and get a referral. Some Insurance plans will sometimes pay for Massages and Chiropractic, PT and so forth. Ask your doctor. There are no guarantees that anything will work for pain on a permanent basis. All we can do is try. Many times in the past all I wanted was a break from pain, even if it was for a few hours so I can get some sleep.

                            Availability of certain items can run short if people hoard and buy up in a panic state. People like 3M will sell masks to the highest bidder, even if its China....
                            Its the trade deals. This is a great example on how these deals can end up being a double edged sword.

                            I eventually found some toilet paper at Walmart. The person working there told me they get shipments every day, and its all sold off by 9AM. Your chances are better by shopping early in the morning. There are also less people which is exactly what I like when shopping....In and out fast. The virus also affects production figures when COVID hits these plants.

                            I had a friend with a 3D printer print me a Rowan mask. This is what I am using when I venture out. Its not a replacement for an N95 mask. But I do use furnace filter material that is rated for bateria and viruses. I guess it offers some protection. Its probably going to protect others more than it will protect me.
                            https://engineering.rowan.edu/resear...ask/index.html

                            Ed
                            49 yr old male, now 63, the new 64...
                            Pre surgery curves T70,L70
                            ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                            Dr Brett Menmuir St Marys Hospital Reno,Nevada

                            Bending and twisting pics after full fusion
                            http://www.scoliosis.org/forum/showt...on.&highlight=

                            My x-rays
                            http://www.scoliosis.org/forum/attac...2&d=1228779214

                            http://www.scoliosis.org/forum/attac...3&d=1228779258

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                            • #15
                              Originally posted by susancook View Post
                              Scared....surely, your mother gave you another name....I would wonder why your doctor "kept emphasizing the risks". Were you questioning her/him? I saw 2 spine surgeons before my first surgery. Yes, they were were specific about the risks, maybe a little pessimistic [I suppose that surgeons remember the bad outcomes or are haunted by them, than the good ones]. Surgery is always a Risk vs "Possible, hoped for, this is what I want to happen" Great Outcome, Everyone goes into surgery with a pair of rose colored glasses on. Yes, we hear what is said, but somehow we feel immune or special. I thought that my surgery with a smallish curve but loads of messed up vertebrae/discs would to one of the top spine surgeons be "a relatively easy day" . I asked Dr. Hu, "On a scale of 1-10, one being easy and 10 being extremely difficult, what # would you give my surgery?" She said, "8". Kinda blew my socks off. I was thinking that I was a 5-6 or so ;+} .

                              I flew to Washington DC from Portland on one of the first flights after 9/11. Was I afraid? Nope. I figured that every possible measure was taken to prevent another hijacking that could be done. The plane was less than 1/10th full.

                              But, I am not you. The worst case scenario is for anybody to go into a major surgery feeling that your ducks are not in line. [Can't resist telling a joke: "Not only are my ducks not in a row, I don't even know where they are!"] Do you need another opinion for another spine surgeon that does surgery on older persons? [By the way, do you have osteoporosis?]

                              Susan
                              Apparently you have not read my previous posts even though you responded to my 1st. I have no idea why the dr emphasized the risks after I repeatedly told him I understood & was ready for the surgery. My only conclusion was he was covering his ass. This current post was a cry for help. I am in so much pain & canít do hardly anything. You would think the dr would have given me the go ahead. I am surprised at some of the things you said. I donít appreciate your reference to my username. Ií use whatever name I damn well want. I thought you of all the people who have posted given what you have been through would have some compassion & understanding for those of us who are going through hell. I suggest that you watch that sharp tongue of yours as itís cutting edge hurts.

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