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6 y/o w/"thoracic curve"

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  • #16
    I'll only contribute my curve was caught at almost 10 years old, 35 ... definitely JIS (menarche didn't occur until almost 15), and I'm not an inch taller than I was at 10 ... or 14.

    I never progressed in adulthood (even through two pregnancies), and held steady at 48-53.

    Yes ... have her checked out by a pedi ortho ... but measure her progress to base your actions. Thankfully, there ARE other options than bracing. I didn't have that choice.

    I elected surgery due to pain at 39 years old. Many have MORE pain with lesser curves, and LESS pain with 70 curves. It's so individual ...
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

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    • #17
      Pam,

      So you had done all of your growing by 10 and were pretty tall? It seems that most progression occurs during growth. When did you progress from 35 to 48/53?

      Laura
      UK based Mum of Imogen, 38 degree curve at 9 years old. SpineCor since 15/6/07, 31 degrees in brace.
      10th December 07 - 27 degrees, 23rd June 08 - 26 degrees, Feb 09 - 24 degrees, Aug 09 - 35 degrees, Jul 10 - 47 degrees, Dec 10 - 50+ degrees.
      Surgery due to take place early December 2011 at the RNOH, England.

      Comment


      • #18
        Originally posted by RugbyLaura View Post
        Pam,

        So you had done all of your growing by 10 and were pretty tall? It seems that most progression occurs during growth. When did you progress from 35 to 48/53?

        Laura
        Only if you consider 5'2" "tall" - LOL ... okay, and maybe I grew an inch or less. Definitely not more than that.

        It's debatable whether most progression occurs during growth. There's a whole generation of adults who were told they'd never progress after they stopped growing and did. Then again, you could say my curve DID progress during growth ... most of which occurred before age 10.

        To answer your question, I progressed between the ages of 10-14, and I did so both IN the brace (in the absence of any real growth), and OUT of the brace.

        I became non-compliant (from what I recall) about age 12-13 (when I hit Junior High): I had an early Athletics period for track, and I'd stuff my brace in my locker room locker first thing when I got to school. My parents had no idea I was out of it all day ... and I never wore it playing ball. So basically I slept in it - unless, of course, I was away from home.

        Consider this: My initial thoracic Cobb of 35 could have easily been 40 with the margin of error. This potentially means I COULD have only progressed 8 from 10-14 if you use the low end of of the range for my consistently measured 48-53 curve.

        BTW, In 1978, you weren't generally seen by a pediatric specialist. The same ortho who treated my scoli did my knee surgeries in '92, '94 and '96. He was by no means a scoliosis expert - so that hard number of 35 is somewhat suspect.

        Anyway, I believe my case was just one of those on which bracing had no effect (other than to cause a lot of fighting around the house). It's also somewhat of an anomaly in that it was at a point my entire adult life where stats say it *should* have been progressing. I can say with absolute certainty it was not.

        I'm pretty sure I've posted this before, but here's the book I received when diagnosed ...

        Regards,
        Pam
        Fusion is NOT the end of the world.
        AIDS Walk Houston 2008 5K @ 33 days post op!


        41, dx'd JIS & Boston braced @ 10
        Pre-op 53, Post-op < 20
        Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


        VIEW MY X-RAYS
        EMAIL ME

        Comment


        • #19
          Originally posted by txmarinemom View Post
          There's a whole generation of adults who were told they'd never progress after they stopped growing and did.
          Our surgeon seemed pretty insistent that the figure is only 5%.

          You make it to Risser = 5, you have a 95% chance of holding that curve through life as I interpret the situation.

          I did not get that impression from reading this group but of course, the posters on this group are the tiniest smidgen of an anecdote possible. It is impossible to draw any conclusion at all about the general populace from this forum.

          And it may be the 5% who do move are largely the women who have children and the associated hormone load.
          Sharon, mother of identical twin girls with scoliosis

          No island of sanity.

          Question: What do you call alternative medicine that works?
          Answer: Medicine


          "We are all African."

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          • #20
            Originally posted by Pooka1 View Post
            Our surgeon seemed pretty insistent that the figure is only 5%.

            You make it to Risser = 5, you have a 95% chance of holding that curve through life as I interpret the situation ...

            And it may be the 5% who do move are largely the women who have children and the associated hormone load.
            Sharon, I have no idea of my Risser because they didn't GIVE you that figure in 1978.

            I carried 2 children to term with a 50 curve and it never worsened. I did, however, have my back mapped so they could hit an epidural on the first shot (with a 2 hour labor - natural, NOT by choice - with my first kid, I was NOT doing that again).

            And no one with a 50 curve has a good chance of holding that through adulthood. They're expected to progress at 1 per year.

            Regards,
            Pam
            Fusion is NOT the end of the world.
            AIDS Walk Houston 2008 5K @ 33 days post op!


            41, dx'd JIS & Boston braced @ 10
            Pre-op 53, Post-op < 20
            Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


            VIEW MY X-RAYS
            EMAIL ME

            Comment


            • #21
              Originally posted by txmarinemom View Post
              And no one with a 50 curve has a good chance of holding that through adulthood. They're expected to progress at 1 per year.
              Well, maybe the 5% that he refers to are largely the people above a certain angle who will progress about a degree a year even though they are at Risser = 5.

              If so, then I take him to mean that if you make it to a Risser of 5 at an angle that is below some threshold then your curve will not worsen 95% of the time.

              Still, if true, that means 95% of folks do not make it to that threshold and therefore stay stable for life (of the population that didn't have fusion).
              Last edited by Pooka1; 10-05-2008, 09:19 AM.
              Sharon, mother of identical twin girls with scoliosis

              No island of sanity.

              Question: What do you call alternative medicine that works?
              Answer: Medicine


              "We are all African."

              Comment


              • #22
                Update

                Emma had a follow-up appointment yesterday at Childrens Hosp. They did x-rays of course and they showed that her curve had actually lessened. It's now at 10*. The surgeon was very encouraged. And of course we were elated. We will follow up again in 6-8 months.

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                • #23
                  Woo hoo! I love to hear news like this! You must be totally psyched. Thanks for keeping us updated and please keep us in the loop in the future.
                  daughter, 12, diagnosed 8/07 with 19T/13L
                  -Braced in spinecor 10/07 - 8/12 with excellent in brace correction and stable/slightly decreased out of brace curves.
                  -Introduced Providence brace as adjunct at night in 11/2011 in anticipation of growth spurt. Curves still stable.
                  -Currently in Boston Brace. Growth spurt is here and curves (and rotation) have increased to 23T/17L

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                  • #24
                    December appt

                    Just another update. Emma had an appt w/her pediatric ortho in Dec. Her x-rays showed no progression of her curve over the past year. We were thrilled of course!

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                    • #25
                      Great news!!

                      I'm so happy for you
                      mariaf305@yahoo.com
                      Mom to David, age 17, braced June 2000 to March 2004
                      Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

                      https://www.facebook.com/groups/ScoliosisTethering/

                      http://pediatricspinefoundation.org/

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