Announcement

Collapse
No announcement yet.

looking for an answer

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • looking for an answer

    My daughter is 13 and was a level 7 gymnast.
    Started with back pain and after cat scan and a bone scan was told she had a pars fracture
    after 3 months off and Physical Therapy then returned to gymnastics .
    6 months pain free. Then pain was back, returned to Ortho doc. He said it was just muscle and "welcome to life as a gymnast." Noted lumbar curve of 9* scoliosis.
    Did Physical Therapy for several months and was discharged still in pain.

    After competing in states she was in so much pain she had to lay flat on the back seat of the car to try to get relief.

    Found another Orthopedic MD. Had MRI it was normal. This Doc felt she had refractured her pars. Off of gymnastics again, after 6wks still having pain so put her in Boston Back Brace for 13wks. Still pain but it had improved (Mind you she was to do nothing physical,,No stretching, no running).

    Referred her to a Spine specialist Doc. Another cat scan. He said there was no sign of any fracture! Her curve had progressed to 22* and he felt it was the scoliosis. Said come back in a year and referred her to pain management. Not ready to give up on the cause of the pain.
    We are off to Childrens Hospital of Philidelphia on Monday for a 4th opinion. AAAGH!
    Last edited by momfor5; 10-28-2009, 07:04 PM.

  • #2
    Hi Mom...

    I wanted to welcome you, and tell you that I hope your daughter's curve doesn't progress. You didn't actually ask a question (despite the Title of your thread), so you might not get any other responses.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

    Comment


    • #3
      Hi. Sorry about your daughter's pain.

      Has anyone suggested an MRI yet? That might be in order at this point.

      Also, are you working only with board-certified pediatric orthopedic surgeons, preferably associated with the scoliosis research society and preferably with experience with sports injuries? I would limit the consults to that crowd as you may be seeing variation in opinion due to no talking to the right guys.

      Good luck.
      Sharon, mother of identical twin girls with scoliosis

      No island of sanity.

      Question: What do you call alternative medicine that works?
      Answer: Medicine


      "We are all African."

      Comment


      • #4
        LindaRacine... It was a retorical question I was just explaining my quest for an answer. Sorry to have confused you.

        Pooka1....As stated in my original post she has had an MRI which did not show any abnormalities.. Worked with two pediatric sports orthopods and the spine specialist we were referred to by one of them. This was the first person to say the scoliosis is causing the pain. The other MD's said the scoliosis was NOT contributing.

        I know it seems like I am doctor shopping but I am looking for an answer to the cause of her pain. Not ready to go to pain management when noone can say for sure why she is hurting.

        Comment


        • #5
          Since the pain started when the scoliosis was so small (curves under 10 degrees are technically not considered to be scoliosis), I'd bet a lot that the pain is causing a functional scoliosis.
          Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
          ---------------------------------------------------------------------------------------------------------------------------------------------------
          Surgery 2/10/93 A/P fusion T4-L3
          Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

          Comment


          • #6
            Functional scoliosis?
            Makes sense... I'll certainly have to ask about that on Monday. Thank You!

            Comment


            • #7
              Went to CHOP in Philly and they think she might have an osteoid osteoma.
              She hat a bone scan with SPECT and we will go back on Nov. 16 to find out the results.
              This would be the best case scenario....After treatment she should be pain free and he even feels her curvature would improve. Lots of prayers and fingers crossed in this household!

              Comment


              • #8
                So sorry

                So sorry to hear of your trials. Unfortunately, we were told that the only sport contradictory to scoliosis is indeed gymnastics. My two kids are both in gymnastics, but non-competition and we'll keep it that way. We also ask the coach to eliminate back bends because that is a big offender. Keep seeking the information you need, but I thought I'd point that out - see what your research says, but this information came from Luke Stikeleather, an orthopedist who makes braces for scoliosis patients all day every day, a reliable source.
                Tina

                • Mom of Cynthia, age 8, 67 degree curve, former Spinecor Patient and current Cheneau Brace wearer
                • Mom of Vaughn, age 5, 18 degree curve - not yet braced, but closely monitored
                • Wife of Andy, adult with 26 degree curve, diagnosed as a teenager, no bracing or surgery

                www.scoliosisfamilyadventures.wordpress.com
                www.EmBracedInComfort.com

                Comment

                Working...
                X