First post from me, looking for views (causes, treatments etc.) from parents or patients who have experieced similar pain as my daughter.
My daughter was diagnosed with scoliosis close to her twelfth birthday. As the curve soon progressed to beyond 60 degrees, she had surgery in June 2008. Prior to surgery she had been experiencing 'normal' pain for the condition when she became tired, had walked too far etc.
Surgery went fairly smoothly and her rods went down to her first Lumbar vertebrae. The one aspect that didn't quite work out was that her spine couldn't be fully straightened (spinal monitoring etc.) and she was left with a small curve, 12 degrees, below the rods.
Prior to surgery she led a very active life participating in all sports at school to a high level, as well as trampolining, skiing and ballet (4 times per week).
All went well with her recovery and she gradually returned to low level activities (no trampolining or skiing) but running and other activities came back into her life. So did ballet albeit with restrictive movement due to the rods and progressive fusion.
After 9 months she began to get pain in her lower back, not in the area of surgery or indeed in the area that had pain prior to surgery. This has now been with her for 3 months and has gradually caused her to cease all physical activity except ballet. It hurts when she runs, jumps or bends. Also when she laughs.
She has been x-rayed and examined and no underlying cause was found. There is no muscle spasm, no infection, no loose hardware. The remaining curve has not progressed and the surgeon is not concerned about it at all. He says that partial straightening is perfecrly acceptable and should not lead to any different post surgical symptoms than a fully straightened spine. I have absolutely no reason to question this.
So here's the request: has anyone else had any experience of making a 'full' pain free recovery, only for pain to then set in some 10 months afterwards? If so what kind of pain, where was it, any views on the cause, any ideas on how to get rid of it etc.
My daughter was diagnosed with scoliosis close to her twelfth birthday. As the curve soon progressed to beyond 60 degrees, she had surgery in June 2008. Prior to surgery she had been experiencing 'normal' pain for the condition when she became tired, had walked too far etc.
Surgery went fairly smoothly and her rods went down to her first Lumbar vertebrae. The one aspect that didn't quite work out was that her spine couldn't be fully straightened (spinal monitoring etc.) and she was left with a small curve, 12 degrees, below the rods.
Prior to surgery she led a very active life participating in all sports at school to a high level, as well as trampolining, skiing and ballet (4 times per week).
All went well with her recovery and she gradually returned to low level activities (no trampolining or skiing) but running and other activities came back into her life. So did ballet albeit with restrictive movement due to the rods and progressive fusion.
After 9 months she began to get pain in her lower back, not in the area of surgery or indeed in the area that had pain prior to surgery. This has now been with her for 3 months and has gradually caused her to cease all physical activity except ballet. It hurts when she runs, jumps or bends. Also when she laughs.
She has been x-rayed and examined and no underlying cause was found. There is no muscle spasm, no infection, no loose hardware. The remaining curve has not progressed and the surgeon is not concerned about it at all. He says that partial straightening is perfecrly acceptable and should not lead to any different post surgical symptoms than a fully straightened spine. I have absolutely no reason to question this.
So here's the request: has anyone else had any experience of making a 'full' pain free recovery, only for pain to then set in some 10 months afterwards? If so what kind of pain, where was it, any views on the cause, any ideas on how to get rid of it etc.
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