(I posted this in the adolescent section under surgery and probably should have posted it here instead, so here it is...My daughter actually has infantile scoliosis, but she's turning 10 very soon.)
Hi,
I have been a member here for a long time but haven't posted in a few years. My daughter, Bronwen, will be 10 in less than two weeks. She's had scoliosis since she was 18 months old. She wore a brace full time for a long time, then there was a period where her curves reduced down below 20 and she didn't wear a brace, then they started creeping back up and we did vertebral body stapling. That we had to do twice, once in May 2007 (age 8) and again in March 2008 (age almost 9) (both at the Philadelphia Shriners Hospital). In March last year, the curves were both about 35º. She has a lumbar curve, and a compensatory thoracic curve. Initially the correction was under 20º for each curve.
We saw her doctor (Dr. Sturm at Shriners Chicago) last week, and her curves have been creeping up again. Right now the lumbar is at 43º and the thoracic is at 40º. So now we have moved on to discussing some type of fusion, because we expect the curves to keep increasing. He said we can pick between a regular fusion and growth rods. He also said that at age 10, 90% of spinal growth is done. I don't want to put her through many more surgeries (she has had 9 surgeries already; she has had other problems besides scoliosis: hip dysplasia and an umbilical hernia) but I don't want to stunt her growth any more than we have to.
I am wondering if her spine might possibly be stabilizing in the low 40s. Well, I suppose I am hoping. ;-) Last November, her curves measured 35º L and 20º T, but now they are closer together at 43 and 40.
Anyway, does anyone have experience with a fusion or growth rods in a 10-year old? What should we ask the doctor about? Any other options out there? We go back mid-June.
In case there is confusion about the hospitals above: we live not far from Chicago and have been going to the Shriners there since Bronwen was 3. When we wanted the stapling done, Dr. Sturm didn't do it yet. So, we traveled to Philadelphia for it. She had the first one with Dr. D'Andrea and the second one with Dr. Asghar, both under the oversight of Dr. Betz. Dr. Sturm was going to assist on the first surgery but at the last minute could not, but did assist on the second and is now trained to do the surgery. He also replaced a staple that came dislodged, in May 2008. That we did in Chicago.
The reason the stapling had to be done twice is that Dr. D'Andrea only stapled the lumbar curve, because she thought there was too much kyphosis on the thoracic curve (kyphosis is a contraindication for stapling). The next year it was clear it was not working and so we hoped that by also stapling the upper curve, it would work better. There was no kyphosis at that time, according to Dr. Asghar.
Thanks,
Nola
Hi,
I have been a member here for a long time but haven't posted in a few years. My daughter, Bronwen, will be 10 in less than two weeks. She's had scoliosis since she was 18 months old. She wore a brace full time for a long time, then there was a period where her curves reduced down below 20 and she didn't wear a brace, then they started creeping back up and we did vertebral body stapling. That we had to do twice, once in May 2007 (age 8) and again in March 2008 (age almost 9) (both at the Philadelphia Shriners Hospital). In March last year, the curves were both about 35º. She has a lumbar curve, and a compensatory thoracic curve. Initially the correction was under 20º for each curve.
We saw her doctor (Dr. Sturm at Shriners Chicago) last week, and her curves have been creeping up again. Right now the lumbar is at 43º and the thoracic is at 40º. So now we have moved on to discussing some type of fusion, because we expect the curves to keep increasing. He said we can pick between a regular fusion and growth rods. He also said that at age 10, 90% of spinal growth is done. I don't want to put her through many more surgeries (she has had 9 surgeries already; she has had other problems besides scoliosis: hip dysplasia and an umbilical hernia) but I don't want to stunt her growth any more than we have to.
I am wondering if her spine might possibly be stabilizing in the low 40s. Well, I suppose I am hoping. ;-) Last November, her curves measured 35º L and 20º T, but now they are closer together at 43 and 40.
Anyway, does anyone have experience with a fusion or growth rods in a 10-year old? What should we ask the doctor about? Any other options out there? We go back mid-June.
In case there is confusion about the hospitals above: we live not far from Chicago and have been going to the Shriners there since Bronwen was 3. When we wanted the stapling done, Dr. Sturm didn't do it yet. So, we traveled to Philadelphia for it. She had the first one with Dr. D'Andrea and the second one with Dr. Asghar, both under the oversight of Dr. Betz. Dr. Sturm was going to assist on the first surgery but at the last minute could not, but did assist on the second and is now trained to do the surgery. He also replaced a staple that came dislodged, in May 2008. That we did in Chicago.
The reason the stapling had to be done twice is that Dr. D'Andrea only stapled the lumbar curve, because she thought there was too much kyphosis on the thoracic curve (kyphosis is a contraindication for stapling). The next year it was clear it was not working and so we hoped that by also stapling the upper curve, it would work better. There was no kyphosis at that time, according to Dr. Asghar.
Thanks,
Nola
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