Hello all, I have been reading many posts for 4 months now and I am so overwhelmed! Everyone is so supportive and I thank you all in advance. My daughter Jessika is 12 1/2 and having spinal fussion surgery September 1. She is disabled. Prader Willi Syndrome, mental retardation and slightly Autistic. She is actually excited about surgery. I am worried that she will have a tantrum in the hospital or when we come home and harm herself. Is there help at home? The hospital told me that the discharge nurse will take care of things. So, I wait untill we are about to leave the hospital? Also, how long is the stay? I read that some people take Iron pills, her Dr. never mentioned it. I do not know what Jessika's lung capacity is, but she is not that active. (favorite things are Math workbooks and puzzles! ) What is the test called for this? Her Dr. said that we are not doing a test and to tell him what the test is. She is my sunshine and I want to make sure that this is all right. Her curves are 62 and 40. We have gone to 4 different Dr.'s and they have all said surgery. Jessika takes Growth Hormone injections nightly to improve her muscle tone. Any advice will be greatly apreciated!
Thank you! ~Jeannie
Thank you! ~Jeannie
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