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9 year old daughter just diagnosed

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  • 9 year old daughter just diagnosed

    Does anyone have any experience with this....my daughter apparently has scoliosis from on leg being shorter than the other...1/2 inch...we have been refered to a specialist for xrays and evaluation,...but that will probably take some time,. so I am trying to educate myself now.....Can anyone tell me the treatment for this situation ? and maybe what I can expect...right now we really don't know the degree of spinal curvature.
    Thanks and God bless all !

  • #2
    Hi and welcome to the board.

    First, try to take this one step at a time. Write a list of questions that are specific to your daughter and put them in priority order. This will help you when you meet with a specialist. She should be seeing a PEDIATRIC orthopedist who specializes in scoliosis in young children.

    Has your daughter used a lift to treat the leg length difference? Did they tell you that this is the actual cause for the scoliosis? I'm having a hard time believing that a 1/2 inch leg length difference is the sole cause of a scoliotic curve. The specialist you see should check her hips and her entire skeletal structure to see how much one affects the other. For example, if her hips are uneven, that could contribute to both the leg length difference and the scoliosis. By leveling the hips, it could compliment and help the other problems.

    My son has a true leg length difference (dysplastic right leg from the hip down - basically the right leg and foot did not develop as much as the left leg). He also has congenital scoliosis and malformed ribs and hips. However, he is doing great. We've had very good medical care for him. His body "looks" healthy and he is very active. His structural problems don't stop him from doing most things 9yr old boys love to do (i.e., play in the dirt, ride his bike, play on the playground equipment, dig for bugs, etc.). If you have 100% confidence in your physician, and that doctor treats you, the parent, as a partner in the decision making, then you have good care. The doc should also be very experienced in treating children with similar issues.

    I wish you the best. Keep us posted.
    Carmell
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/

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    • #3
      Carmell
      Thanks so much for your reply. I only found out about this a few hours ago. I am with the US Marines and deployed to Afghanistan so I don't have all the info straight from our pediatrician. Today my wife took our daughter in for her 9 year check-up. The doc noticed some spinal curvature visually and then found that 1 leg was shorter than the other. Next step is for my wife to take her in for xrays. Your point is well taken and I was wondering about that myself....it is like a... which came first...the chicken or the egg ? proposition....is the spinal curvature the result of 1 short leg, or is the 1 short leg a false manifestation of a curved spine ? I did read on WebMD that a short leg is a common cause, but it did not specify the degree of leg length disparity to look for.
      Thanks again for your help !!
      JKP

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