At Becca (11) well check last summer her ped noticed she had a curve in her spine and we went and got xrays that day. We got confirmation that she had a curve and got referred to an orthopedic. We got her MRI done to rule out any underlying problems that could be causing her scoliosis. Then in January I found out about the Scottish Rite Hospital that treats scoliosis in children and got a referral to go there. We had our first appt in February and her curve was measuring at 20*. Her doc there recommended we just keep an eye on it and recheck in 6 months. So.. last week she had her 6 month check and her curve has progressed to 38*!!! Yesterday we had the fitting and brought home her boston brace. The goal is to wear it 20 hours. Now we are working on getting her used to the brace. 1 hour in the brace then a 20-30 min break. We work it up an hour at a time and then once she gets used to wearing it 6 hours she should start getting used to sleeping in it.
Becca right now is having a hard time with it. She does ok for the most part but she can't seem to get comfortable in her room. Sitting in her sling chairs hurt, laying in bed hurts, she is complaining of back pain now when she didn't have any pain to begin with from the scoliosis. Is this something I need to call the dr on? How long does this weaning in the brace process last? How long do I let her wear it for only an hour before adding another hour? I just feel so frustrated for her. She is a trooper but she is getting frustrated.
Those of you that have kids in PE... how do you handle that? She isn't able to get the brace on and off by herself yet, I can barely spread it enough for her to slide in. Do they have the nurse or PE teacher help them in and out so they can participate in PE and sports?
I feel so lost not knowing anyone going through this, so any advice support you can offer I will appreciate. Thanks
Kelly
Becca right now is having a hard time with it. She does ok for the most part but she can't seem to get comfortable in her room. Sitting in her sling chairs hurt, laying in bed hurts, she is complaining of back pain now when she didn't have any pain to begin with from the scoliosis. Is this something I need to call the dr on? How long does this weaning in the brace process last? How long do I let her wear it for only an hour before adding another hour? I just feel so frustrated for her. She is a trooper but she is getting frustrated.
Those of you that have kids in PE... how do you handle that? She isn't able to get the brace on and off by herself yet, I can barely spread it enough for her to slide in. Do they have the nurse or PE teacher help them in and out so they can participate in PE and sports?
I feel so lost not knowing anyone going through this, so any advice support you can offer I will appreciate. Thanks
Kelly
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