Thank god! There are a lot of useful information, suggestions and supports form this Forums. This is my first post. Our son is 13 years old and was diagnosed with scoliosis when he was 10. Since his scoliosis was mild (about 16 degrees), he did not receive any treatment at that time. His orthopedic surgeon Dr. H had been monitoring and taking x-rays for him during the past 3 years. Since his orthopedic surgeon Dr. H told us his scoliosis was mild and we did not have any family history, we would not have to worry about it. No further suggestions and discuss from his orthopedic surgeon besides monitoring him by x-rays ( the curvature went from 16 to 22 degress, then 33 degrees last years). His orthopedic Surgeon Dr. H told us cause of our son growth spurt, his curvature has become worse - up to about 33 degrees in June last year. His orthopedic surgeon Dr. H started him on the Boston Brace with regular check ups scheduled every 3 to 4 months. He wore the brace at least 20 hours a day. However, during the visit in April 2007, his curvature had increased to 40 degrees with the brace. The brace did not seem to help much, and the muscles around his back were weakening as well. Without the brace, his back seems to have a decreased awareness of body position and muscle control. We discussed with Dr. H if there is any traditional and alternative treatments not involving surgery. He was not helpful at all and strong recommended surgery is the best options.
We found out this Forums and got a lot of information in May.We also traveled to Montreal and switched to SpineCor around the end of May. The brace did correct his curvature to 31 degrees. He feels more comfortable and has more flexibility with SpineCor which has allowed him to participate more in different sports. Also, when he is not wearing the brace, he feels his muscles are stronger and able to support him better. However, the follow up result was not optimistic last week. The curvature had increased to 39 degrees (in brace). We are concerned that with the current brace we are not achieving as much correction as we should/ could be getting, and as we are due a new brace anyway, we are reconsidering our options.
His curvature is 44 (T6) without the brace now, he does not feel any discomfort. He still has 3 more years to growth by his bone age. We were informed that surgery was an option that had been recommended early by his orthopedic surgeon Dr. H. The option of surgery poses a huge concern to us for many reasons. The largest concern is the percentage of paralysis. Therefore, we went to get second opinion from Children hospital. Dr. E is very helpful. He discussed with us all the options at this stage. And he suggests us to try the Chevaue brace if we go with the non-surgical option. He mentioned the SpineCor would be benefit more for the young age children with small curvature. Our son is older and the curvature is bigger. It would be benfit him to try the Chevaue brace before surgeon scheduling. We are willing to try anything since our son is very sensitive about the surgery. Our ultimate goal is to avoid surgery if possible. It would be helpful if we have Dr. E as our son’s doctor the past three year, we would be more knowledgeable about all options of scoliosis. Also don’t wait to take action – we did, based on his orthopedic surgeon Dr. H advice to wait, and we are sorry now we did and we went out of time.
We are well aware of the importance to not miss any step regarding his treatments at this stage. Is there anyone try the Chevaue brace who would like to share your experience? We would like to know if there are the differences in between fitting brace in Barcelona versus and in the USA by orthotist Luke Stikeleather. Approximately how much does it cost for the treatment? What is the different between Chevaue light and Cheveaue?
We would be grateful for any advice and experience you might be able to provide and help us to settle our anxieties. We are looking forward to hear from you.
Thank you.
Pat
Boston, MA
We found out this Forums and got a lot of information in May.We also traveled to Montreal and switched to SpineCor around the end of May. The brace did correct his curvature to 31 degrees. He feels more comfortable and has more flexibility with SpineCor which has allowed him to participate more in different sports. Also, when he is not wearing the brace, he feels his muscles are stronger and able to support him better. However, the follow up result was not optimistic last week. The curvature had increased to 39 degrees (in brace). We are concerned that with the current brace we are not achieving as much correction as we should/ could be getting, and as we are due a new brace anyway, we are reconsidering our options.
His curvature is 44 (T6) without the brace now, he does not feel any discomfort. He still has 3 more years to growth by his bone age. We were informed that surgery was an option that had been recommended early by his orthopedic surgeon Dr. H. The option of surgery poses a huge concern to us for many reasons. The largest concern is the percentage of paralysis. Therefore, we went to get second opinion from Children hospital. Dr. E is very helpful. He discussed with us all the options at this stage. And he suggests us to try the Chevaue brace if we go with the non-surgical option. He mentioned the SpineCor would be benefit more for the young age children with small curvature. Our son is older and the curvature is bigger. It would be benfit him to try the Chevaue brace before surgeon scheduling. We are willing to try anything since our son is very sensitive about the surgery. Our ultimate goal is to avoid surgery if possible. It would be helpful if we have Dr. E as our son’s doctor the past three year, we would be more knowledgeable about all options of scoliosis. Also don’t wait to take action – we did, based on his orthopedic surgeon Dr. H advice to wait, and we are sorry now we did and we went out of time.
We are well aware of the importance to not miss any step regarding his treatments at this stage. Is there anyone try the Chevaue brace who would like to share your experience? We would like to know if there are the differences in between fitting brace in Barcelona versus and in the USA by orthotist Luke Stikeleather. Approximately how much does it cost for the treatment? What is the different between Chevaue light and Cheveaue?
We would be grateful for any advice and experience you might be able to provide and help us to settle our anxieties. We are looking forward to hear from you.
Thank you.
Pat
Boston, MA
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