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  • Pain while running

    Hi all,

    I have a question. Have any of your children complained of pain while running? Mackenzie says her back hurts when she has to run the mile in PE (she's 14, in 9th grade, double major curves at 37 degrees each). I'm not sure there's really pain or if she's just trying to get out of running the mile.

    I don't want to ignore it if she's really having pain. So any advice or experiences would be appreciated.

    Lisa
    Lisa
    Mom to Mackenzie
    diagnosed March 2007 at 28 degree thoracic, 40 degree lumbar
    August 2007 - 37 degree thoracic, 37 degree lumbar
    March 2008 - 39 degree thoracic, 37 degree lumbar

  • #2
    Prior to surgery, I remember Joe getting muscle cramps in his hip and thigh when he was in track. I know my back feels sore after a long walk or run. Maybe a good stretch before and after will help a little.

    Renee

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    • #3
      Thanks Renee. How are you and Joe - and how's it going with your younger son (don't know his name)? Mackenzie seems to be holding steady. She doesn't wear her brace very much though. I kind of figure "it is what it is" and "will be what will be". She goes back in February.


      Lisa
      Lisa
      Mom to Mackenzie
      diagnosed March 2007 at 28 degree thoracic, 40 degree lumbar
      August 2007 - 37 degree thoracic, 37 degree lumbar
      March 2008 - 39 degree thoracic, 37 degree lumbar

      Comment


      • #4
        Lisa:
        My daughter gets a tingling up her spine when she runs or jumps - not pain though. The doctors have not been able to explain why she gets this.
        Ruth
        Ruth, 50 years old (s-shaped 30 degree scoliosis) with degenerative disc disease, married to Mike. Mother to two children - Son 18 and daughter 14. Both have idiopathic scoliosis. Son (T38, L29) has not needed surgery to date. Daughter (March 08 - T62, L63).

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        • #5
          Before her surgery, my daughter complained about back pain when running in PE class also. She also complained of pain when standing or walking a long time, like when we went for an "all day" shopping trip, or to an amusement park. She often needed to sit down and take a break for a little while.

          to macksmom, we had problems with noncompliance, she wore a boston brace for about a year and a half (really only wore it 10 hrs or so/day), then went to a providence brace (it was night time only, however, I don't think she ever even wore it all night long, she said it was too uncomfortable). The pyschological issues of wearing a brace 23 hrs/day are really hard on a young girl, and nothing to be ignored. At the time, I kind of had the same feeling as you, it is what it is and will be what will be, we ended up having surgery in August. I think that the boston brace was holding her curves, but when she grew out of it and we tried the providence, her curves just began to rapidly increase. That was also a time of rapid growth for her. Looking back, the doctors say she was at great risk of having her curves increase, and she was probably one of those who the brace wouldn't have worked for anyways, we'll never know now. Try to keep your daughter flexible, we found the exercise ball to be of benefit. One thing I wish we would have tried is the spinecor brace, as soon as we saw the providence wasn't working, she may have had better compliance with that. Good luck!

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          • #6
            Thanks Ruth and emma12. Compliance has been a huge issue for us. I have caught her taking her brace off and stashing it in the bushes, etc. Her doctor told me not to make a war over her wearing it - but I really wish she'd understand why I want her to wear it. Of course, she says she understands, but, bottom line, she's a kid and lives in a world of "I want what I want - and I want it now". I have no clue how much time she gets in the brace. I'd have to check on her every hour as she sleeps to monitor it. I just know that she goes to bed with it on - and it's off when I wake her in the morning. I doubt she's even getting 10 hours a day in.

            Her doctor wrote a note excusing her from running the mile. I just hate for her use her scoliosis to get out of it - if she doesn't really have back pain. I think she needs the exercise. But, then again, maybe it's ok for her to have ONE perk associated with having scoliosis. It's tough enough on them.

            I'll look into the exercise ball. What do they do with it?

            Lisa
            Lisa
            Mom to Mackenzie
            diagnosed March 2007 at 28 degree thoracic, 40 degree lumbar
            August 2007 - 37 degree thoracic, 37 degree lumbar
            March 2008 - 39 degree thoracic, 37 degree lumbar

            Comment


            • #7
              I totally relate to your stories about the brace, she would go to sleep every night with it on, but if I checked in on her later (mostly with the providence), the brace was off. She would not wear the boston brace out of the house, but did wear it when she went to bed. Some people have found that there is more compliance with the spine cor brace as it is soft and more easily hidden under clothing, I do have regrets that we didn't look into that further at the time. The doctors also told me not to get into a war with her over it, there is only so much "nagging" that you can do.

              As for the ball, we used a form of pilates with the ball, basically it's stretching and rolling over the ball (backwards, forwards, sideways, some rotation...). It was easy to do, didn't take long, and, even though her curves eventually reached 61T and 53L, they stayed flexible - don't know if the ball helped or if she was just lucky! She was fused from T2-T11, he left the bottom curve alone believing that it was compensatory. Her top curve was corrected to about 15 degrees, he said he could've gotten better correction but left it at that to allow for slight curve in the lumbar. At her first post op, there was some question as whether the lower curve was straightening as much as it should have, I am thrilled to say now that at 11 weeks post op, it does appear that the curve is continuing to straighten!!! She goes back for another post op in 2 weeks, we'll see what the xray says.

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              • #8
                That's great news that her lower curve is straightening (not sure if she is Emma or you are Emma). You must be relieved!

                Mackenzie was first diagnosed as having a 40 degree lumbar curve with a 28 degree compensatory thoracic curve. Then 6 months later - and a different spine specialist (pediatric), we were told she had a double major curve and both were 37 degrees. Evidently, from what I can find online, double major curves are not as common, and harder to correct. I'm not sure why they're not as common - can't find the answer to that.

                So either her upper curve progressed 9 degrees over 6 months - or using the +/- 5 degrees, they are about the same (the upper would have been the +9 and the lower -3). Who knows. It doesn't seem to be an exact science. The next appointment will be the "tie-breaker" to see what's really going on.

                I think Mackenzie would do the stretching exercises with the ball. Don't think she'd do anything too strenuous though. That would be too much like exercise. Thanks for the info.

                Lisa
                Lisa
                Mom to Mackenzie
                diagnosed March 2007 at 28 degree thoracic, 40 degree lumbar
                August 2007 - 37 degree thoracic, 37 degree lumbar
                March 2008 - 39 degree thoracic, 37 degree lumbar

                Comment

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