My daughter was diagnosed with idiopathic pediatric scoliosis at just under the age of 5 when she went for her for her Kindergarten physical. We were immediately referred to a pediatric orthopedist. A MRI has ruled out any underlying cause of the scoliosis.
She was being monitored every 3 months to determine the progression of her curvatures. She has a double curve. At her most recent appointment, just last week, it was discovered her curvatures has progressed to the point of 26T and 20L. Her orthopedic Dr. has determined she now needs to go into a TLSO brace. Given her young age, we are looking at 8-10 years of brace wearing.
Our pediatric orthopedic Dr. has offered no other advice, options, or prognosis for future developments and has generally been very detached.
I am researching and seeking out all other available resources and options. We have applied to the Shriner's Hospital in MN and are awaiting a reply. There are no other pediatric orthopedic groups in our ares from which to get a 2nd opinion.
?? Does anyone have experience or know of others who have had vertebral stapling?
?? Has anyone been advised by their orthopedist that physical therapy can be beneficial, not ar affecting the curvature since that is known to not happen, but just for muscle tone, flexibility, etc? When I questioned our ortho on this he totally dismissed that idea as worthless. Our pediatrician had essentially the same reaction.
The past week has been a whirlwind of emotions and frantic searching for answers. I know it will calm down and get better. We have a long road ahead of us and I hope to learn more from all of you, as well as share anything I can contribute to others in this forum.
God Bless and thank you for your replies.
She was being monitored every 3 months to determine the progression of her curvatures. She has a double curve. At her most recent appointment, just last week, it was discovered her curvatures has progressed to the point of 26T and 20L. Her orthopedic Dr. has determined she now needs to go into a TLSO brace. Given her young age, we are looking at 8-10 years of brace wearing.
Our pediatric orthopedic Dr. has offered no other advice, options, or prognosis for future developments and has generally been very detached.
I am researching and seeking out all other available resources and options. We have applied to the Shriner's Hospital in MN and are awaiting a reply. There are no other pediatric orthopedic groups in our ares from which to get a 2nd opinion.
?? Does anyone have experience or know of others who have had vertebral stapling?
?? Has anyone been advised by their orthopedist that physical therapy can be beneficial, not ar affecting the curvature since that is known to not happen, but just for muscle tone, flexibility, etc? When I questioned our ortho on this he totally dismissed that idea as worthless. Our pediatrician had essentially the same reaction.
The past week has been a whirlwind of emotions and frantic searching for answers. I know it will calm down and get better. We have a long road ahead of us and I hope to learn more from all of you, as well as share anything I can contribute to others in this forum.
God Bless and thank you for your replies.
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