Hello. My names is Melanie and I am new to the group and have a question regarding surgery on my daughter Skylar, who is an unhealthy 14 year old girl. My daughter is at 62 degrees Kyphosis and 24 degrees scoliosis. We were told that we will be discussing surgery at 70 degrees which isn't far off. Skylar was at 42 degrees in April 06' and 62 degrees by Nov 06. I will try to give you a quick summary of her health. We discovered Skylar had a brain tumor which was removed 2 years ago. During surgery Skylar suffered a massive stroke affecting her left side. She is able to walk with assistance but mosting in a wheelchair. Skylar had an extensive recovery period and has many medical issues now. Diabetes, hypertension, Tachycardia, Panhypotituitarism (no function of her pituitary gland), a rare blood clotting disorder, ostephorosis, narcolepsy, sleep apnea, etc...(but these I believe are the things I'm mostly concerned about during surgery. Her ortho said it can be done even though she is a very complicated case. All of her other Dr's would have to give permission and work closely on this with her ortho.
My questions are: Has anyone had anything remotely close to this with a good outcome? How long is recovery? What questions should I ask the ortho or other Dr's? Should we wait longer then 70 degrees because she might not make it through the surgery? I've been told we may have no choice because it will affect her breathing.
Also, I don't know what bearing this has, but Skylar who already spent 5 months in the hospital after her brain surgery, recovered enough to go back to school 9 months post-op. Skylar was in her wheelchair in the back of the bus, the driver became airborne and when landed Skylar broke her back in Aug 05' It was a compression fracture of the T-12 vertabrae. She was in a back brace until April 06'. Her back has steadily gotten worse since this incident. We were told that the Boston brace?? probably wouldn't do any good at this point and just add to Skylar's pain.
Sorry this is so long but I need to start preparing myself for what lies ahead. Thank you,
Melanie
My questions are: Has anyone had anything remotely close to this with a good outcome? How long is recovery? What questions should I ask the ortho or other Dr's? Should we wait longer then 70 degrees because she might not make it through the surgery? I've been told we may have no choice because it will affect her breathing.
Also, I don't know what bearing this has, but Skylar who already spent 5 months in the hospital after her brain surgery, recovered enough to go back to school 9 months post-op. Skylar was in her wheelchair in the back of the bus, the driver became airborne and when landed Skylar broke her back in Aug 05' It was a compression fracture of the T-12 vertabrae. She was in a back brace until April 06'. Her back has steadily gotten worse since this incident. We were told that the Boston brace?? probably wouldn't do any good at this point and just add to Skylar's pain.
Sorry this is so long but I need to start preparing myself for what lies ahead. Thank you,
Melanie
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