I'm new here. My daughter Sydney is 16 months old. Although she wasn't diagnosed with idiopathic scoliosis until she was around 6 months old we suspected something was wrong from birth. Her pediatrition noticed her head was tilted right away and believed it was tortocolis. After a few months he became more concerned because her torso bend was very noticable. She also had reflux very badly since birth. After several tests(xrays, mri, ct scan, upper GI) and seeing a ped. orthopedist at Greenville Hospital in SC. she was diagnosed with infantile scoliosis with a curve between 50-60 degrees. She has since been moved to the Shriner's hospital in Greenville(same campus as Greenville hospital). She got her first TLSO in Jan. at 11 months. She wears it 22-23 hrs a day. We returned in april. No change was noticed although it has only been 3 months. With the brace on her bend is corrected to around 30 degrees. We return in August for her next check up. My wife and I have done a little research on the internet and wonder which would be more beneficial bracing or casting. We mentioned casting to the doctor and he said that bracing was the best idea. Any input from those with similar experiences would be greatly appreciated. I have read many of the posts and have found them helpful and comforting. Her doctors say her condition at her age is very rare especially in the states. He said it seems to be most prevalent in the UK for some unknown reason. I look forward to hearing from everyone.
Jeff
Jeff
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