Hello im new, im 32 (33 in june) and have had a bad time with my scoliosis since I was young.
My 1st doctor ignored it, then I had my 3 children & it went worse. They decided to operate in 2000, I had 2 titanium rods, disks removed, fusion, ribs removed and some nerves took out, it was done in 2 parts.
1st op went ok, 2nd one I was in pain, then in 2001 they discovered the rods had broke away! We already knew coz we could see the lumps! They took me in for op no3 in 2002 and just cut the lumps off!
Now its come away more and my x-rays took in october '03 show its broke away completely! Thay held an emergancy x-ray meeting (as my consultant was busy-I have seen every one they've got!) they wanted to do surgery & now they've just put me back on observation & my appointments august!
My GP has wrote to them (im on Diazepam, Dihydrocodine & alternating pethadine & morphine) im in agony. I cannot move my right shoulder, I cannot sleep.
Im lucky im living with my parents as they are helping me with my children (they're teenagers now). Ive been down the legal road & I had a case to sue for negligance but they where nasty at hospital after I complained-so I gave up on it.
Now the surgeon has operated on a girl I know & she nearly died as he made a major mistake & she nearly died! She's only 16 (im going to get her to sign up to this board-she's asked me do I know anywhere & now ive found this board I do).
Just some help, advice or friendship from someone who understands would be great.
My 1st doctor ignored it, then I had my 3 children & it went worse. They decided to operate in 2000, I had 2 titanium rods, disks removed, fusion, ribs removed and some nerves took out, it was done in 2 parts.
1st op went ok, 2nd one I was in pain, then in 2001 they discovered the rods had broke away! We already knew coz we could see the lumps! They took me in for op no3 in 2002 and just cut the lumps off!
Now its come away more and my x-rays took in october '03 show its broke away completely! Thay held an emergancy x-ray meeting (as my consultant was busy-I have seen every one they've got!) they wanted to do surgery & now they've just put me back on observation & my appointments august!
My GP has wrote to them (im on Diazepam, Dihydrocodine & alternating pethadine & morphine) im in agony. I cannot move my right shoulder, I cannot sleep.
Im lucky im living with my parents as they are helping me with my children (they're teenagers now). Ive been down the legal road & I had a case to sue for negligance but they where nasty at hospital after I complained-so I gave up on it.
Now the surgeon has operated on a girl I know & she nearly died as he made a major mistake & she nearly died! She's only 16 (im going to get her to sign up to this board-she's asked me do I know anywhere & now ive found this board I do).
Just some help, advice or friendship from someone who understands would be great.
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