Hi all,
Finally, an update on Braydon's surgery March 13. Braydon had surgery to exchange/replace both VEPTR devices (he has a lumbar hybrid and a chestwall device). The surgery went great! Besides replacing the devices, they did a lot of correction. His chest is fuller and his shoulders and hips are well-balanced again. They had to chip away some of the bone on the lumbar attachment (because bone tissue had grown over the attachment site). With the bone chipping and the big correction, he was in more pain than a typical expansion. It took two days to get his pain under control (Dilaudid PCA pump, Valium, Toradol) but by Wednesday morning, he turned the corner and hasn't looked back. He was released on Thursday. He's still sore and trying to relax his muscles, but he's been sleeping well (sleeping in the reclining sofa). Sleeping well is a good thing! He'll probably go to school for half-days starting Wednesday. We'll just take it one day at a time.
Thanks to all for your well-wishes and thoughts and prayers. It means so much to know so many people love and care about us. We appreciate it more than you know.
Our best,
Carmell and Braydon and family
Finally, an update on Braydon's surgery March 13. Braydon had surgery to exchange/replace both VEPTR devices (he has a lumbar hybrid and a chestwall device). The surgery went great! Besides replacing the devices, they did a lot of correction. His chest is fuller and his shoulders and hips are well-balanced again. They had to chip away some of the bone on the lumbar attachment (because bone tissue had grown over the attachment site). With the bone chipping and the big correction, he was in more pain than a typical expansion. It took two days to get his pain under control (Dilaudid PCA pump, Valium, Toradol) but by Wednesday morning, he turned the corner and hasn't looked back. He was released on Thursday. He's still sore and trying to relax his muscles, but he's been sleeping well (sleeping in the reclining sofa). Sleeping well is a good thing! He'll probably go to school for half-days starting Wednesday. We'll just take it one day at a time.
Thanks to all for your well-wishes and thoughts and prayers. It means so much to know so many people love and care about us. We appreciate it more than you know.
Our best,
Carmell and Braydon and family
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