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flowerpower
02-13-2006, 11:06 AM
Someone mentioned that we may be able to apply for Soc. Sec. disability for my son who just had scoliosis surgery. Has anyone ever heard of or done this??

Renee

Snoopy
02-13-2006, 11:43 AM
Renee,

Refresh my memory, does your son have other health issues besides the Scoliosis that would lead you towards Disability? The reason I ask is that most people with Scoliosis are not disabled. There are a few adults that are totally unable to work because of complications from their Scoliosis. My daughter had surgery to correct both her Scoliosis and her Kyphosis and is possibly facing a cervical fusion because of Kyphosis. Do I consider her disabled? Partially disabled? ABSOLUTELY NOT!

Mary Lou

flowerpower
02-13-2006, 12:00 PM
Hi Mary Lou, no there are no other health issues (so far) aside from the scoliosis. The only reason I brought this up is we are trying to apply for financial aid to help pay some of the medical costs associated with Joe's surgery and the person at the financial aid office asked me if I had tried applying for the SS disability. I was puzzled because I don't consider my son disabled - just restricted from certain things - so I was curious if anyone else has come across this issue. Hope I didn't offend anyone as that certainly wasn't my intent, this whole thing is a constant learning process so I'm just trying to educate myself.

Renee

Carmell
02-13-2006, 01:16 PM
Hi Renee,

Not offended at all. However, like any application for disability, the application is usually automatically denied the first time. Then, you appeal and try to convince them the condition qualifies for disability under their language. Scoliosis alone usually is not a qualifying condition because the patient is fully mobile and is able to go to school (for children) and do the things they need to do on a daily basis (personal hygeine, feeing themselves, etc.). For some people, scoliosis is debilitating to the point they can not provide for themselves. That's when a SS disability plan may come into play.

For financial assistance to help pay for the actual surgery, ask the hospital and all docs who will be involved if they have a financial assistance application you can fill out. Some hospitals are non-profit places. These hospitals allow you to apply for assistance to help pay for the costs incurred. The lower you household income, the more assistance you will be eligible for. If you have some insurance, the hospital (and/or docs) may even accept the insurance amount as payment in full. It is a very individual decision. You won't know if they can/will help you until you ask. Good luck and let us know when the surgery is scheduled for.

Philomena
02-13-2006, 01:31 PM
I am 52 yrs old and have been trying to post, I guess this was the only way I have figured it out. "GO FIGURE!" I hope this works. I need a response from someone in regards to what type of expectations after surgery to fuse my L1 thru L5 spine. I know I will have a brace and be in the hospital for a week afterwards. I need to know what to expect when I come home and what certain ecquiptment I will need to get up a stair if that is possible. Also will I need a certain type of bed? What will be the post theraputic proceedure? Anyone out there that can help me with any of these questions would be greatly appreciated.

Sincerely,
Philomena :confused:

milwaukeeshake
02-13-2006, 01:57 PM
Hi Philomena,
After my surgery (I don't know exactly what I had fused, all I know it's all the way up and down my back!), I had a walker and my physical therapist showed me how to use it to help me climb stairs. As for a bed, I just wasn't allowed to use my waterbed. We set up an extra bed in our dining room since I couldn't climb stairs for a week or 2 either. That suited my needs, maybe ask your doctor what he suggests for you :)
shannon

Snoopy
02-13-2006, 04:35 PM
Renee,

I'm sorry I sounded mean, nasty, hateful....after re-reading my own post, I sounded terrible!!! I'm sorry. Handicapped placards/license plates and disability issues are just a few of my pet peeves. :o

Like Carmell said, it is usually difficult to get approved for disability. My mom is the one person I know of who actually was approved the first time she applied. If there were other health issues with your son (thankfully there isn't) then maybe disability would be an option. I agree with her also that some doctors/hospitals will accept whatever your insurance will pay. If you don't have insurance, you could check into getting coverage for Joe through programs provided just for kids (here in PA it's called CHiP). Also, depending on your income you could check into medical assistance.

Again I'm sorry for sounding so defensive in my post. I apologize if I offended you or added stress to your already stressful life. Let me know if there's anything else I can do to help.

Mary Lou

Karen Ocker
02-13-2006, 05:48 PM
The handicap placard came in very handy during recovery from my revision-bcause I got very tired standing/walking the first few months. I stopped using it when I went back to work 6 months after surgery but I DID need it especially when I was driven to PT or the pain doctor.

I returned the placard when it came up for renewal.

Disability for a child is awarded to a child for permanent, long term problems.
My grand nephew is profoundly disabled from being born too early. He gets disability.


Have you tried Shriners for excellent free care?


Karen

LindaRacine
02-13-2006, 07:03 PM
I am 52 yrs old and have been trying to post, I guess this was the only way I have figured it out. "GO FIGURE!" I hope this works. I need a response from someone in regards to what type of expectations after surgery to fuse my L1 thru L5 spine. I know I will have a brace and be in the hospital for a week afterwards. I need to know what to expect when I come home and what certain ecquiptment I will need to get up a stair if that is possible. Also will I need a certain type of bed? What will be the post theraputic proceedure? Anyone out there that can help me with any of these questions would be greatly appreciated.

Sincerely,
Philomena :confused:

Please respond to this post here:

http://www.scoliosis.org/forum/showthread.php?t=3205

flowerpower
02-13-2006, 09:29 PM
Carmell,

Thank you for the info. At our last appt. prior to my son's surgery on 12/19/05, the dr. did say their office does occasionally offer financial assistance and/or write off some of the costs of the surgery but we have to take these other steps first. So I applied to Ca Childrens Services, who said I first need to apply with Medi-Cal, who asked if I had applied to Soc. Sec. for disability - fun, fun, fun :rolleyes: Meanwhile, the medical bills are piling up while I try to navigate the wonderful world of health insurance. We do have a PPO plan but I am astonished at the things they say they won't cover, Joe's blood donation, anesthesia services, things like that; and yet Blue Cross just made yet another substantial increase to our medical coverage! Any advice and suggestions on haggling with the insurance people is welcome, I am pretty new to all this.


MaryLou,

No apology necessary though you did scare me! (lol) I did feel funny about asking, and like I said, I certainly didn't mean to offend anyone by my question I'm just trying to gather info so I know in which direction to go. I wouldn't want to take S.S. disability assistance away from someone who really needs it. Anyway, now that my heart rate is down (LOL) you are a very nice lady, you have helped me before - and I totally understand your position on this issue. Oh, and I'm sorry that your daughter may need a cervical fusion in the future, I pray she won't have to endure another surgery. That is an issue in the back of my mind as Joe is not done with growth yet.

Karen,

Yes, we did consider going to Shriners but instead stayed with our current dr. b/c we really liked him & had full confidence in him, and while this is really creating a financial hardship for us I just felt there are kids out there who need their services more than us.

Take Care,

Renee

Snoopy
02-14-2006, 07:59 AM
Karen,

Thank you for being honest and turning your placard in when you no longer needed it. With a newphew who is disabled, I'm sure you understand my frustration with placard issues. My mom is disabled and it annoys me to no end to have her park in the middle of a parking lot and have to walk because some rude person is parked in handicapped and doesn't have a placard or license plate. Know what I mean?

Renee,

Part of my gut reaction to your original post was that you were thinking your son would be disabled after surgery. I didn't want you thinking that. I'm sorry you are having so many inusurance issues. Why is it that in this great country of ours, we pay outrageous amounts of money for health insurance, but sometimes we have to fight just to get necessary things covered? Thank you for you prayers for Jamie. If she needs more surgery, we'll deal with it then, but for now, we are just trying to enjoy life without surgical restrictions. However, with a case on her foot and about 6 inches of snow on the ground, it tends to be challenging.

Again, I apologize if I offended/scared anyone.

Mary Lou

mariaf
02-14-2006, 09:04 AM
Renee,

Your sentiments about letting those who need Shriners services the most receive them are very thoughtful and considerate of you. Please know , however, that, should the financial burden become too much for your family, you would not be taking services away another child. No Shriners Hospital ever turns any child away - Fortunately, they have enough doctors and resources to treat all the kids who need them. I can understand that you are very comfortable with your current doctor - It's so important to trust one's doctor completely. But, like I said, if you find yourself needing to go another route, as Karen mentioned, Shriners Hospitals offer excellent care at no cost.

Best of luck to you and your son,

flowerpower
02-15-2006, 12:21 PM
Maria,

Thank you for you kind words. I am not ruling them out, believe me - I have a 13 yr. old (thankfully no sign of scoli yet) and a 7 yr. old so, should this issue come up again with us I will most definitely apply and seek a consult with them.

Have a good day :)

Renee

Carmell
02-15-2006, 01:31 PM
Hi again, Renee,

I know how hard it is to do all the necessary paperwork to PROVE that you need financial assistance to pay for a MAJOR surgical procedure. And yes, the fact that there are so many out-of-pocket expenses (above and beyond any deductables, co-pays, etc.) add up fast! I hope you get this all sorted out soon so you don't have these expenses hanging over your head. Hopefully the CA Child Services (or whatever it is) helps out.

I have a permanent disabled license plate on my car. The ONLY time I use it is when Braydon is with me, and he's post-op. Walking is an effort after major back surgery (every 6 months) and with only 47% lung function, endurance isn't his forte either. I try to be VERY consciencious about using the disability plates. I know that those who abuse the system make it hard for those who need it. We are tax payers, and this is my "insurance" that I've paid into for so many years. Sometimes I need that benefit. I don't feel at all guilty for doing so. I don't think anyone should.

This goes along with thinking the Shriners organization/hospitals help the indigent people rather than those with insurance. Shriners has some docs who are leading the pack (so to speak) when it comes to certain treatments for scoliosis and other bone conditions in children. Shriners hospital is available for anyone to have access to the best care possible for their child. Like all specialists, one may not be the right for a specific situation. That's the job of the parent to make sure their child is getting the right care, at the right time, by the right specialist. We have a Shriners hospital very near our Children's Hospital. I have visited patients there many times. For Braydon's care, the right specialists have been at the Children's Hospital. Now, the Shriners docs are approved to provide the same type of surgery Braydon has for so many of their patients who need this care. So good to have an expansive knowledge of the various treatment options, and specialists who know which to recommend to the parents.

I know we all are seeking the best care possible for our children. We wouldn't post on boards like this if we didn't care very deeply about what's best for our children. It's okay to have different opinions and to have different treatment methods. Scoliosis in young children and its accompanying conditions are unique and require unique care and treatment. I know everyone will continue to keep pushing forward and helping their child(ren) receive the best care. Keep up the great work everyone!

mariaf
02-15-2006, 04:22 PM
Carmell,

As usual, I couldn't have said it any better :)

Especially regarding the fact that we, the parents, are our children's most important advocates and MUST be proactive all the time, not be afraid to question doctors or their methods or insurance companies or anybody else when we feel it's necessary and NEVER stop searching for the best possible answers and treatments for our child's specific situtation.

I've seen so much courage and determination from parents on this forum - It really is an inspiration.

take care,

flowerpower
02-17-2006, 10:48 AM
Hi,

I can see I'm not always good at communicating what I really mean. :( I didn't mean to imply that only indigent people do and should seek treatment from Shriners. In my research and in hearing from many others on this board I know that many of the top doctors for any type of orthopaedic treatment are to be found at Shriners. I considered consulting with Shriners in Los Angeles and also the Haider Spine Center in Riverside (another facility that sometimes assists those in need of surgery for free) but we felt so good and confident with our doctor and Children's Hospital itself, and being able to have the surgery done fairly close to home was an added bonus. But I, myself have recommended Shriners Hospital to people without any regard as to what their financial status may be.

I sincerely hope I didn't offend anyone, I would never question anyone's choice of doctor or facility. Like Carmell, I understand that we all are making the best choices possible for our children.

Peace to All,

Renee

mariaf
02-17-2006, 10:53 AM
Renee,

I dont' think you offended anyone. Speaking for myself, I was certainly not offended - I just wanted to make sure you knew about all of your options. As I said, you are doing the very important job of being your child's advocate and seeking treatment from a doctor you trust and have confidence in. That is so important.

Good luck to you :)

Snoopy
02-17-2006, 12:18 PM
Renee,

I don't think you offended anyone. I think we all agree that we are all here to help one another, but since we are all so different, we sometimes have very different opinions. I know after my outburst on handicapped placards/license plates, I sent an e-mail to a dear friend to apologize and make sure I didn't offend her because that was never my intent.

I took Jamie to a total of 5 different doctors and one of those was Dr. Betz at the Philly Shriner's. He recommended and agreed to do her surgery. I had her name put on the surgery list, but went to one more doctor at our local Children's Hospital and that's who did her surgery. Why did we go to Shriner's when we are lucky enough to have excellent insurance? Only because of Dr. Betz. Although he ordered an MRI and wanted it done in Philly, I had it done at home and my insurance paid for it. Why should I get a test done at Shriner's when my insurance would pay for it and that would be one more MRI available to someone who really needs the free care. That's how I felt about the MRI. And if we are ever in this situation again, I'd do it the same way--go to the excellent doctors at Shriner's and let my insurance pay for the tests so we get the best of both worlds.

Mary Lou

Carmell
02-17-2006, 12:45 PM
Renee,

Please don't worry! No offense taken from us. Focus your attention on getting the things in order you need to get your young man taken care of. We are all here to support you and give you whatever cyber-support you need. You are doing a great job! Keep up the good work. Asking questions and having discussions are the best way to learn. That's what we are all here for. I learn so much everyday. We'll keep asking and learning so we can continue doing what we feel is best for our children. Right? Right! Hang in there. It will get better, I promise.

My best!

ecnw
02-17-2006, 04:57 PM
I've never been offered disablity, but seeing as pregnant women can receive it, I wouldn't have minded the extra cash having to take care of my daughter after surgery ;) .
I did get an interesting letter in the mail once after my daughter had surgery. It was a questionair asking if we needed extra support at home or school, etc. Most of the questions seemed geared toward families with childern who had server disabilities, so I tossed it.
Regarding the Ca Children Services, I have my kids on it. We were directed to it because we're on Healthy Families, the Blue Cross plan. From my understanding we qualify because our scoliosis is genetic. Depending on income, it is based on a sliding scale. You might want to check with Blue Cross about appling for it as suplimental insurance.
I tease my boyfriend that if he ever wants to marry me he's got to have a great PPO plan and money to suppliment the difference. If I ever have another child and pass this on again, I like having my choice of docotrs.
Em.

flowerpower
02-18-2006, 09:35 AM
ecnw,

Thanks for the info, I will check with Blue Cross about the Healthy Families plan. Did you have to apply (and be turned down) by Medi-Cal first before applying for CA Childrens Services?

Renee

mattie
02-20-2006, 01:31 PM
I am 52 yrs old and have been trying to post, I guess this was the only way I have figured it out. "GO FIGURE!" I hope this works. I need a response from someone in regards to what type of expectations after surgery to fuse my L1 thru L5 spine. I know I will have a brace and be in the hospital for a week afterwards. I need to know what to expect when I come home and what certain ecquiptment I will need to get up a stair if that is possible. Also will I need a certain type of bed? What will be the post theraputic proceedure? Anyone out there that can help me with any of these questions would be greatly appreciated.

Sincerely,
Philomena :confused:
Hi Philomena. I was in the hosp for 8 days. I had 2 surgeries 2 days apart.
I had to wear a brace 23 hours out of 24 for 6 months. Sleeping in it was hard but after I got used to it it wasn't to bad. I did not need any special equipment when I came home. Some people do and some don't. I did have a reacher which I used quite a lot. In case I dropped something. It came in handy. My husband cleaned my incision and changed my dressings daily.
He stayed home with me 2 days then he went back to work. I was by myself but I just took it easy. My Dr and PT both told me to do a lot of walking and I did. It was tough at first but got easier after a while. I have had 2 more surgeries since then, but I am alot straighter and almost pain free. If you need someone to chat with just let me know. You never said when you were having your surgery. I wish you the best of luck...........Mattie

mom2cole
02-24-2006, 10:33 PM
Hi Renee

I lurk on this board and havent been around in awhile - had spoken to you months ago. I now see all this stuff about CCS and Disability,etc... and questions you had regarding CA Childrens Serv (CCS) so thought I would chime in being I am from CA also and just recently got CCS for Cole. I did not have to apply for the Healthy Families plan first, I know a bit aobut it and I dont think financially I qualify plus Cole has a PPO ins thru his dad (my ex). But like you said even tho PPO there are still a ton of medical bills to be paid. It is outrageous! and alot of stuff that the PPO Ins wont pay like a CT Scan at our Ortho's Hosp (CHLA) but then when they found I had CCS, they just billed them for the balance after our Ins paid some. I pay nothing!

I wish I would have applied for it right after my divorce a few yrs ago but dumb me forgot all about it until this past summer so applied. When Cole was a baby and I was still married we applied but financially we did not qualify but now with less income I do. I had to pay a yrly fee based on income and next summer I will have to reapply. CCS pays for anything connected to Cole's Scoliosis diagnosis after the Ins pays there portion and I am not liable to pay any of it! I love it!!! I dont understand why they asked you to file for other ins or Healthy Families first. I will ck out all my paperwork and research on it and let you know more on how I went aobu it in the beginniing if you would like. Just let me know. I have a whole file folder on them and everything connected to it. For Cole's most recent surgery CCS even paid for our hotel cost across from the hospital and got me Hosp meal vouchers. This helped so much as I am really on a limited budget being a single mom. I hope this info helps. The only problem is if you apply and get apprvd for CCS now (AFTER JOE HAD HIS SURGERY) they WILL NOT GO RETRO BACK to cover any of that surgery cost only any upcoming surgeries. So I am still paying payments to the Hosp for Cole's surgeries in Oct 2004 and May 2005 but the last one in Jan 2006 is what they helped cover. that is why i was so upset with myself for not applying sooner-still owe 1400.00 for those two surgeries! sucks!!!

Ok I babbled way to much!! LOL!!
STacey
So Cal

mattie
02-26-2006, 11:46 AM
Renee,

Please don't worry! No offense taken from us. Focus your attention on getting the things in order you need to get your young man taken care of. We are all here to support you and give you whatever cyber-support you need. You are doing a great job! Keep up the good work. Asking questions and having discussions are the best way to learn. That's what we are all here for. I learn so much everyday. We'll keep asking and learning so we can continue doing what we feel is best for our children. Right? Right! Hang in there. It will get better, I promise.

My best!

Carmell - I have visited your site some amazing pictures and stories. Give my best to your family. Hope everyone stays healthy now. I believe your family has benn through enough to last a life time. Good Luck to you and your family. My best ..........Mattie

flowerpower
02-28-2006, 01:11 PM
Stacey,

Nice to hear from you, I was thinking of you a couple of weeks ago, wondering how you and Cole are doing.

Yeah, I don't know why I have to go through all these other steps before applying to CCS. Maybe San Diego County does things differently :confused: Anything else you can tell me about the application process would definitely be helpful.

Are you sure that CCS will not go retro even if you apply within a certain time period? Someone, either at dr. office or CCS office told me I could apply 3 mos. back from date off application - now I'm really confused. Guess I will find out though, huh? I haven't even had time to look into this, last Monday my 7 yr. old came down with the flu, and by Friday he still could not even keep water down and our ped. had him admitted to our local hosp. for dehydration. So I was at the hospital with him amost the whole time from Fri. afternoon til Sunday, which by the way, do you think I could get this covered also??? My head is spinning right now.....

Anyway, I would be grateful for any info or advice you have to offer, I could really use the help!

Take Care (and stay healthy!)

Renee

mom2cole
03-02-2006, 08:04 PM
Hi Renee

I have been so busy lately no time to look up the info for you but just wanted to post a quick note saying I will be cking my stuff out further for you as soon as can-hopefully this wkend.

How is Joe doing?? Cole is good, just turned 12 yrs old and we are having a Bday party this Sunday at my house so preparing for that. :)

Stacey

mom2cole
03-02-2006, 08:07 PM
oh I forgot I was gonna answer your question on CCS going retro for past surgeries. No they definitely will not, I have no idea why you were told different info at different places. I was told by other friends who had CCS that they would not go back even b4 started the process as I was hoping they would as Cole had surgery in May 2005 then I applied and got CCS that summer (june or july) so was quite bummed I did not do it sooner! But it has been a big help since then with Cole's recent Jan 2006 surgery and Pulmonary Dr's he now goes to. OK talk to ya later!
Stacey

flowerpower
03-03-2006, 10:38 AM
Hi Stacey,

Thanks, I appreciate you help. No rush as I have not heard back from MediCal yet.

As for Joe, he is doing great so far! He is putting in full days at school and is also participating on the freshman Academic Team and Chess Club. I am so happy he found something to participate in, being he is still so limited activity-wise. He has another follow-up appt. with Dr. Newton in about 2 weeks, hopefully some restrictions will be lifted.

How is Cole doing since his January surgery? Hope he has a great birthday weekend! Joe will be turning 15 in a couple of weeks and I'm not sure what to do for him - any party ideas for a 15 y.o. boy anyone??

Anyway, hope you have a great weekend! Talk to you soon..... :)

Renee

Snoopy
03-03-2006, 12:14 PM
Renee,

Sorry I don't have any suggestions for a 15 y.o. boy's birthday party. For Jamie's 14th birthday last year we took friends and went to Rock N Bowl (bowling late at night with LOUD music and very little lights) but I doubt Joe will be allowed to do that. It might be easier once he sees the doctor in a few weeks and you learn what he is allowed to do and then go from there.

Tracy's 13th b-day is April 1st and she's not sure she wants a party. She really would like to go somewhere instead, but when I asked where of course she doesn't know! I suggest a trip to the Philly zoo since she loves animals, no; suggested a day trip to New York, no. Any suggestions?

Mary Lou

flowerpower
03-03-2006, 01:19 PM
Hi Mary Lou,

The bowling party would be perfect, and it's one of Joe's favorite activities. He was in our local bowling league prior to surgery. But no, that will be on the restricted list for some time. I was kind of considering a surprise party and maybe hiring a local magician (who's supposed to be pretty good) maybe come and entertain for a short time but I don't know - is that too childish for a group of jaded freshmen, lol?? May not be a bad idea to wait and see if any restrictions will be lifted, plus the weather might be a bit nicer then too.

A 13 y.o. hmmmm.........my daughter recently went to a 13th b-day party at our local theater. They had a small party room where they had pizza and cake, then the group saw a movie. Or, how about a miniature golf-type place where they may also have bumper boats or other types of rides and arcade? A trip to a beauty salon and then a glamour-type photo with a friend or two?? Going to a cool restaurant like a Hard-Rock Cafe? Boy, it was so much easier when they were younger, huh? My daughter turned 13 in Oct. but we didn't end up doing anything because she was sick the week of her birthday, then I got so busy preparing for Joe's surgery so I still owe her one. Well, if I come up with any more bright ideas :rolleyes: I will let you know - take care & talk to ya later!

Renee

blackwidow
03-03-2006, 01:53 PM
Hi, Flowerpower
I accidently posted a suggestion for your son's birthday under the wrong listing please check under "walkathon for scoliosis" I think is where I put it.

blackwidow
03-03-2006, 04:01 PM
Yeah I know what you are saying and yes it is a "mom thing"! I have the same problem every year for my son's birthday what should we do? Since my son is severely handicapped it really makes it hard to come up w/ something he can enjoy. I took him to Monsters Inc. on ice for his birthday last month and he seemed to like it! I can understand why you want to do something special for him he has been through alot! But he may not be ready yet maybe next year when he is more active and there are no restrictions anymore you can plan an activity somewhere. This year use the extra money to splurge on his gift, perhaps!

Snoopy
03-03-2006, 07:21 PM
Thanks for the suggestions Renee. She loves miniature golf, so that might work; a trip to the beauty salon-NO WAY!! lol (she isn't a "girlie girlie"); Hard Rock Cafe and Rain Forest Cafe are two of our favorite restaurants (she turned me down on the Hard Rock in Philly or Baltimore). So, you had some great ideas, but she's shot me down on some of them.

Jamie's 13th birthday was easy....we took a bunch of friends to the mountains where they slept in a tent, played in the pond, and rode our 4-wheeler. It rained the whole time, but since it was August, they still had a great time! And as her gift we traveled to King of Prussia mall (about an hour away) and did some back to school shopping.

Your situation is tougher because of Joe's restrictions. What kind of parties have there been for his friends lately? I'd suggest a sleep-over, but knowing the boys, there would be a wrestling match or two and that would not be good for Joe! How about a party at a local arcade? Well, I'm out of ideas for now. Talk to you soon.

Mary Lou

flowerpower
03-06-2006, 12:18 PM
Hi Mary Lou,

Thanks for the suggestions, you gave me an idea on going to our local mountains and having a sleepover, Joe loves to fish (though I don't think any of his friends ever have so that would be interesting). The boys around here are into laser tag or combatting with airsoft pistols in the local hills; will have to check with Joe's dr. before letting him run around doing that.

Oh, I just thought of another suggestion for you - roller or ice skating?

Hope all is well with you, I think/hope/pray we have gotten over the flu bug here. This is the first time in weeks no one has been home sick. Well, stay healthy everyone and have a great day! :)

Renee

flowerpower
03-19-2006, 12:45 PM
Well, this is what ended up happening: we were denied 100% MediCal coverage but are eligible to receive emergency benefits for the month of Joe's surgery. This will help immensely! Joe is also covered by CCS for this year (for anything related to his scoliosis). Just wanted to mention this in case there is a CA person in a similar situation. Once you start looking into it, there are quite a few programs that may offer assistance.

Renee

mom2cole
03-19-2006, 04:19 PM
Yeah, so glad you got some benefits and got CCS! I keep thinking i was suppose to get Renee some info and just been so busy haven't had much time. Sorry about that but sounds like all worked out well.

I see you mentioned that CCS will cover expenses only realted to his scoliosis and that is true but wanted you to be aware that some stuff the Dr office may not think is related to scoli really is. For instance, in our situation it was the Pulmonary Dr Cole now goes to. At first they said would not cover with CCS (actually now that think of it, it was CCS not Dr office that said not related) but when I explained in detail how it most definitely is related they changed it and authorized payment to Pulmonary visits. The only reason Cole has asthma and respiratory issues is because of the severe scoliosis and also stomache problems periodically. Tho I have not been back to a pediatric gastro Dr since got the CCS coverage but if have to will go to CHOC (childrens Hosp Orange County) where they have CCS paneled Drs and will cover it. He was going to a Ped Gastro that no longer accepts CCS payments so even tho I like her I will switch as cant afford anymore expenses. Plus CHOC has wonderful Drs and I am sure i will find another good one.

OK Renee, I rambled enough-Again so glad to hear your good news and hope the info I shared today helps somewhat. If you come upon any questions in future regarding this let me know and I will try to help.
Stacey
Cole's mom
(southern CA)

flowerpower
03-21-2006, 01:31 PM
Hi Stacey,

Thanks for passing along info-it is very helpful when you have an idea of what to expect. I can see already that even with the MediCal there still may be some trouble getting things paid off. I spoke with the company that did the spinal monitoring during Joe's surgery and they said they are having trouble getting our insurance to pay more for that. The company charges by the hour and our insurance only wants to pay for a (small) portion of each hour. Then they said that MediCal always denies them reimbursement so I can see things may not go as smoothly as hoped. If I'm lucky (cross my fingers, knock on wood) I should get reimbursement for some of the charges I have paid so far, which will directly go to help cover the expense of my younger childs recent weekend hospital stay. This may all work out even somehow! At least that's the best I can hope for...how's everything with you and Cole? Hope he enjoyed his recent birthday celebration. Well, got to go - take care and talk to ya later!

Renee

mom2cole
03-25-2006, 07:05 PM
Hi Renee
Good luck with the reimbursements and getting stuff paid. I still get bills and continue to have to call even tho have called before on some stuff that CCS will cover but they usually are good about taking info and billing CCS. I have some I need to call on next wk actually.
Sorry to hear of your other child being hospitalized also, I hope all is well with that now and wont have mounting medical bills for that too. I can totally relate to the medical bills situation-sucks! I cant wait to get these payments done for Oct 04 and May 05 surgeries and then hopefully not have anymore for awhile since the last surgery CCS will cover balance. (knock on wood like you said-LOL).
Cole is doing real good, seemed to recently start getting the respiratory infection but I upped his meds and he never got it full blown-thank goodness! I on the other hand did and still coughing for a wk now. yuk!

We go back to Ortho in July so will see then where we are at and if need another expansion tho I think the next will have to be a replacement as the xrays the Dr showed us at post op appt showed not much left to be expanded on rod. Replacment not looking forward as will be bigger surgery but better then fusing at this age. Oh BTW-I still haven't seen your Dr in San Diego as wanted to wait until this summer so did not miss school. I need to call next wk and make the new appt. Ihave most of the xrays and info on CD tho s/b getting more medical records copies soon as just paid for them and sent it back to get my copies. That will all work out good as other appt would not have had any info for Dr so this will be good.

Ok talk to ya later!
Stacey

flowerpower
03-26-2006, 09:26 AM
Hi Stacey,

I'm glad Cole is doing well and avoided this awful resp. infection. Like you, I am going on week 2 trying to get over this. Started out as a bad sinus infection now has moved to throat/chest. I have been nursing everyone else since about Oct. someone has been sick just about every week. The family has had every strep, flu, cold, etc. that has come around except me, I stayed healthy until now. Just so worn out I guess...

I hope replacement surgery for Cole can be put off for a while longer though like you said, its better than fusing. We are due to see Dr. Newton again around mid-June. Let me know if you end up scheduling an appt. with him - I think you will really like him. He will give you as much time as you need and will thoroughly answer all your questions. Take care and keep in touch -

Renee