View Full Version : New

02-11-2004, 12:39 PM
hi i'm new here even though iv'e had my brace for 1 year now. i have idiopathic scoliosis lower lumber. i don't really have any questions about any thing just here to help, and chat! i'm 14 i live in lancashire england. in 6 months i will either be getting rid of my brace (BURNING IT ON A FIRE!) or having an operation. my brace is called BOB and it's a love hate relationship! Get back to me if you like for any reason!

02-11-2004, 12:56 PM
What is your degree of curvature? Is the brace working? What is a BOB brace?

02-11-2004, 02:34 PM
It is 53 degrees, it is not improving but is not getting worse. BOB is just what i call it i recommened you naming your brace. Really
it's a Boston back brace. Thanks for replying:) do you know of any chatrooms rather than a notice board for us gifted ones! HAHA

02-11-2004, 03:08 PM
Paging, Joe O'Brien. Hatty is asking for more interaction like David SD suggested not too long ago. I agree. We need it.

Jill K
02-13-2004, 09:36 PM
Hi, Im new here too and I just became a member. Just like you I have had my brace going on a year in March. Last week I found out that I need surgery. I can't wait to burn my brace too! Actualy I found that it's not that bad. Breathing is hard but I have pretty much adapted to the new way I sleep. My mom named my brace mini-me. My surgery is in June and I am actually really excited. In March I have to get a catscan, give blood (to my self) and MORE x-rays. I have to wear my brace 22/7 (to school). Finding clothes that fit me is sort of hard. I live in sweat shirts and stretch pants.

02-13-2004, 10:18 PM
i have had my brace for about 3 weeks now and i am also thinking aobut naming mine i am thinking about OG what do you think.... by the way i hate the thing i can hardly sleep in it haha but i guess if they think its going to stop it from getting any worse its alright well g2g Peace!

Jill K
02-13-2004, 10:31 PM
OG sounds like a cool name. I used to have a really hard time sleeping. Now I sometimes even forget I was wearing it. What helped me sleep was a small pillow that I would put between my legs and it evened out my body. But yes I do agree the first few weeks are really hard, but if you are like me everything will seem normal, give it a week or two.