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  • spinecore brace

    can anyone using the spinecore brace give me information like has it help or what degree it has decreased if any thank you karen

  • #2
    Hi Karen,

    I just discovered that my daughter is having scoliosis and the cob angle is 35degree at the thoracic and 24degree at the lumba. I was introduced to SpineCore by the Doctor. She has worn it for a week and she seems comfortable now. The last checked by the supplier, on the brace, her lumba was 0 degree (not xray). I'm not sure whether this brace will help to stabilise or reverse the curve. But this is the best alternative that we can find so far compared to Boston. She is 12 years old and have not got her mense. her curve started at thoracic 5 to 7, but not sure at the lumba side. I hope this info help. Regards

    Comment


    • #3
      spinecore

      Hello!
      I was surprised to read your posts about the Spinecore Brace. I thought it was pulled from the market, ONLY because something to do with the funding. I had heard it was an effective tool for slowing/stopping the curve. What state do you live in? Pat

      Comment


      • #4
        Pat,

        Who told you that the SpineCor brace was pulled from the market ? As far as I know, they're very doing well - I hope they're not going bankrupt ? If you pull up their website and look at case studies and scientific studies you will see that the results speak for themselves. The thing that worries me - in my own particular situation - is that the brace is relatively new and doesn't have an established following as do the Boston and Milwaukee braces. However, many people who have worn Milwaukee and Boston have gone on to require spine surgery. The SpineCor concept is very appealing - it looks like a very comfortable brace and some people have had miraculous results with it. My daughter is only four and a half, I don't know if she would be a candidate for such a brace. It's something I'll definitely look into as she gets older. Adolescent children with curves below 30 degrees have had very good results - so it's something to consider. Here's the website:

        http://www.spinecorporation.com/English/index.htm



        Celia
        Last edited by Celia; 05-20-2005, 07:37 PM.

        Canadian eh
        Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

        Comment


        • #5
          [QUOTE=Celia Vogel]Pat,

          Who told you that the SpineCor brace was pulled from the market ? http://www.spinecorporation.com/English/index.htm



          As i understand the american firm who used to make it has sold it to a small british firm (see their website), the owner of which is very enthousiastically promoting it now on both sides of the ocean.

          Published results seem extremely good, but it is very hard to work out why the idea is not really catching on yet, and i would love to hear from other people with either good or bad experiences (because of my daughter of 11 who has a 29 degree T 12 scoliosis, currently in hard brace, which is correcting it to 21 degree, not sure whetther that is "good enough")

          gerbo

          Comment


          • #6
            First off all I would like to apologies for my bad English.

            I am mother of girl born 11.04.1996., diagnosed lumbar scoliosis 21 d. according to COBB.

            Rigid TLSO brace recommended, I was wondering if SpineCor brace would be better for her.

            I would like to get in contact with treated patient, their experience, opinion.

            Thank You in advance for any answer!



            Ljubica Jagodić


            Croatia
            Originally posted by June Rusdon
            Hi Karen,

            I just discovered that my daughter is having scoliosis and the cob angle is 35degree at the thoracic and 24degree at the lumba. I was introduced to SpineCore by the Doctor. She has worn it for a week and she seems comfortable now. The last checked by the supplier, on the brace, her lumba was 0 degree (not xray). I'm not sure whether this brace will help to stabilise or reverse the curve. But this is the best alternative that we can find so far compared to Boston. She is 12 years old and have not got her mense. her curve started at thoracic 5 to 7, but not sure at the lumba side. I hope this info help. Regards

            Comment


            • #7
              "As i understand the american firm who used to make it has sold it to a small british firm (see their website), the owner of which is very enthousiastically promoting it now on both sides of the ocean."


              As far as enthusiatically promoting it on both sides of the ocean, I don't believe that this is the case. Our hospital was conducting a study on the effectiveness of the SpineCor brace a few years ago when the British Co. abruptly pulled all funding for the study. This seems to have been the case at many centres across North America. All children who were being treated with the SpineCor brace were suddenly left without a supplier.



              Celia

              Canadian eh
              Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

              Comment


              • #8
                [QUOTE=Celia Vogel]"As i understand the american firm who used to make it has sold it to a small british firm (see their website), the owner of which is very enthousiastically promoting it now on both sides of the ocean."


                . Our hospital was conducting a study on the effectiveness of the SpineCor brace a few years ago when the British Co. abruptly pulled all funding for the study.

                Hi Celia ;although I really am not in the business of "defending" the current company, I do wonder whether the funding would have stopped when the previous company pulled out. I am also aware that the current manufacturer is only a very small business, so i would be surprised if he would be able to fund research all over the globe.

                If research was conducted in "your hospital" have you any insight in what kind of results were being achieved?

                best wishes

                gerbo (UK)

                Comment


                • #9
                  Gerbo,

                  I hope I'm not creating an international incident or bad press against the current company. This forum is a discussion place for parents and people who suffer from scoliosis. The information I gave you is based on hearsay evidence - i.e., what the orthotist told me. If Biothorex is a small company then it makes sense that funding would have stopped. Unfortunately, I have no insights into preliminary studies at our hospital. I do know that anyone who progressed more than 6 degrees were prescribed a rigid brace.




                  Celia

                  Canadian eh
                  Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

                  Comment


                  • #10
                    [QUOTE=Celia Vogel]Gerbo,

                    I hope I'm not creating an international incident or bad press against the current company.

                    Not through me, that's for sure, and free exchange of information can only help us all.

                    did read your story about your daughter and how much she improved, very impressed, are you still in contact with dr Mehta, and how is your daughter doing?

                    Which was the hospital doing the trial?

                    best wishes

                    gerbo

                    Comment


                    • #11
                      Gerbo,

                      I'm all for the free exchange of information. I was thinking that maybe you can contact any of the following centres in the U.K. and see what kind of results they have obtained so far with the SpineCor brace, if you find out anything please let us all know. I've also provided a list of U.S. centres that are currently prescribing the SpineCor if anyone in the U.S. is interested in contacting them to obtain results. If you find anything, please post the results


                      UNITED KINGDOM


                      DISTRIBUTOR
                      Healthcare UK Ltd
                      Springwood House
                      Foxwood Way, Foxwood Industrial Park
                      Chesterfield S41 9RN
                      United Kingdom
                      Contact: Mr. Andrew J. Mills
                      Phone: + 44 (0) 1246 454682
                      Fax: + 44 (0) 1246 269042
                      e-mail: a.mills@healthcare.uk.net
                      web: www.heatlhcare.uk.net


                      SHEFFIELD
                      HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
                      The Sheffield Children's Hospital
                      Western Bank
                      Sheffield, S10 2TH
                      United Kingdom
                      Consultants:
                      Mr. D L Douglas FRCS
                      Mr. A C Howard FRCS
                      Mr. A A Cole FRCS
                      Tel: +44 (0) 114 271 7000


                      CAMBRIDGE
                      HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
                      Addenbrooke's Hospital NHS Trust
                      Hills Road
                      Cambridge CB2 2QQ
                      Contact: Mr D Conlan FRCS (Orthopaedic Surgeon)
                      Tel: +44 (0) 1223 216854
                      Secretary: Rita

                      Nuffield Hospital Cambridge
                      4 Trumpington Road
                      Cambridge CB2 2AF
                      Contact: Andrew J Mills
                      Tel: +44 (0) 1246 454682
                      e-mail: a.mills@healthcare.uk.net
                      Secretary: Helen Wainwright
                      e-mail: h.wainwright@healthcare.uk.net


                      MIDDLESBROUGH
                      HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
                      James Cook University Hospital
                      Marton Road
                      Middlesbrough
                      TS4 3BW
                      Contact: Mr S Papastefanou FRCS (Orthopaedic Surgeon)
                      Tel: +44 (0) 1642 850850


                      SOUTHAMPTON
                      HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
                      Southampton General Hospital
                      Tremona Road
                      Southampton
                      SO16 6YD
                      Contact: Ian Berryman
                      Tel: +44 (0) 2380 777222

                      STOCKTON ON TEES
                      HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
                      North Tees & Hartlepool NHS Trust
                      University Hospital of North Tees
                      Hardwick
                      TS19 8PE
                      Contact: Richard Webb
                      Tel: +44 (0) 1642 617617

                      STOKE ON TRENT
                      HOSPITAL, ORTHOPAEDIC SURGEON AND ORTHOTIST
                      Hartshill Orthopaedic & Surgical Unit
                      North Staffordshire NHS Trust
                      Newcastle Road
                      Stoke on Trent
                      ST4 6QG
                      Contact: Mr El-Nasri Ahmed FRCS
                      Contact: Mrs Caroline Jackson (Orthotist)
                      Orthotic Dept Tel: +44 (0) 1782 553774



                      UNITED STATES


                      CALIFORNIA
                      STUDIO CITY
                      NON SURGICAL TREATMENT RESEARCH & BRACE CENTER
                      Pain Relief Center
                      Scoliosis Care Foundation
                      12215 Ventura Blvd
                      Suite 208
                      Studio City, CA 91604
                      Contact: Dr. Gary A Deutchman
                      Phone: (212) 360-7760
                      Email: scoliosiscenter@optonline.net


                      FLORIDA
                      PEMBROKE PINES
                      NON SURGICAL TREATMENT RESEARCH & BRACE CENTER
                      Pembroke Pines Chiropractic Center
                      186 S Flamingo Road
                      Pembroke Pines, FL 33027
                      Contact: Dr. Gary A Deutchman
                      Phone: (212) 360-7760
                      Email: scoliosiscenter@optonline.net


                      ILLINOIS
                      CHICAGO
                      HOSPITAL AND ORTHOPAEDIC SURGEON
                      Rush Presbyterian St-Luke Medical Center
                      1725 West Harrison Street,
                      Suite 440
                      Chicago, IL 60612
                      Contact: Dr. Christopher DeWald
                      e-mail: orthoscoli@aol.com
                      Contact: Ms. Nadine Trznadel, M.S.N., R.N.
                      Phone: (312) 942-6517
                      Fax: (312) 942-5185
                      e-mail: ntrznadel@rush.edu


                      MARYLAND
                      BALTIMORE
                      ORTHOTICS & PROSTHETICS CLINIC
                      Denison Orthotics, Inc.
                      220 West 28th Street
                      Baltimore, MD 21211
                      Contact: Mr. Harold E. Thompson
                      Contact: Mrs. Michele Koehler
                      Phone: (410) 235-9645
                      Fax: (410) 243-7043
                      e-mail: denison@erols.com


                      HOSPITAL AND ORTHOPAEDIC SURGEON
                      Johns Hopkins Medical Institute
                      Pediatric Orthopaedics
                      601 North Caroline Street, # 5253
                      Baltimore, MD 21287-0882
                      Contact: Dr. Paul D. Sponseller
                      Phone: (410) 955-3609
                      Fax: (410) 502-6816
                      e-mail: psponse@jhmi.edu


                      MICHIGAN
                      GRAND RAPIDS
                      HOSPITAL AND ORTHOPAEDIC SURGEON
                      Mary Free Bed Orthotics
                      235 Wealthy St. SE
                      Grand Rapids
                      MI 49503
                      Contact: Mr. Doug Richardson CO
                      e-mail: drichardson@mfbrc.com
                      Contact: Ms. Ellie Boomer CO
                      e-mail: eboomer@mfbrc.com
                      Phone: (616) 242-0315
                      Toll Free: (800) 474-0324
                      Fax: (616) 454-2624

                      Mary Free Bed Hospital & Rehabilitation Center
                      Outpatient Clinic
                      235 Wealthy St. SE
                      Grand Rapids
                      MI 49503
                      Contact: Norine Simmons, Clinic Nurse
                      e-mail: nsimmons@mfbrc.com
                      Phone: (800) 528-8989
                      Phone: (616) 242-0353
                      Fax: (616) 456-4850

                      Orthopaedic & Spine Specialist of West Michigan
                      750 East Beltline, NE
                      Grand Rapids
                      MI 49525
                      Contact: Dr Scott Russo MD
                      Phone: (616) 942-1313
                      Fax: (616) 942 6879


                      NEW YORK
                      NEW YORK
                      NON-SURGICAL TREATMENT RESEARCH & BRACE CENTER
                      SpineCor Treatment Provider:
                      Dr. Gary A. Deutchman
                      Located at the following center:
                      Park Avenue Neurology & Rehabilitation, PC
                      Chiropractic Care of New York, PLLC
                      Scoliosis Care Foundation
                      1085 Park Avenue
                      New York, NY 10128
                      Phone:212-360-7760
                      email: scoliosiscenter@optonline.net
                      SpineCor Treatment Provider:
                      Marc J. Lamantia, D.C., DACBN
                      Located at the following center:
                      Discover Treatments LLC
                      271 Nassau Blvd
                      Garden City South
                      NY 11530
                      New York
                      Phone: 212-360-7760
                      email: scoliosiscenter@optonline.net



                      HOSPITAL AND ORTHOPAEDIC SURGEON
                      Hospital for Special Surgery
                      523 East 72nd Street, 2nd floor
                      New York, NY 10021
                      Contact : Dr. Oheneba Boachie-Adjei
                      Phone : (212) 606-1948
                      Fax : (212) 794-2562
                      e-mail : boachie@hss.edu


                      PHYSICAL THERAPY CLINIC
                      Hospital for Special Surgery
                      Rehab Services
                      535 E 70th Street
                      New York, NY 10021-4892
                      Contact : Mrs. Charlene Hannon, P.T.
                      Phone : (212) 606-1213
                      Fax : (212) 535-0612


                      LONG ISLAND
                      ORTHOTICS & PROSTHETICS CLINIC
                      M. H. Mandelbaum Orthotic & Prosthetic Services, Inc.
                      Corporate Office
                      116 Oakland Avenue
                      Port Jefferson, NY 11777
                      Contact: Mr Steve Mullins (Orthotist)
                      Phone : (631) 473-8668
                      Fax : (631) 473-8691
                      Web : www.mhmoandp.com


                      HOSPITAL AND ORTHOPAEDIC SURGEON
                      Stony Brook University Hospital
                      Health Science Center
                      T18, Room 080
                      Stony Brook, NY, 11794-8181
                      Contact : Dr. Wesley V. Carrion
                      Phone : (631) 444-7693
                      Fax : (631) 444-8894
                      Health Science Center
                      T18, Room 020
                      Stony Brook, NY, 11794-8181
                      Contact : Dr. Susan S. Haralabatos
                      Phone : (631) 444-8061
                      Fax : (631) 444-7671

                      POUGHKEEPSIE
                      ORTHOTIC & PROSTHETICS CLINIC
                      Mid-Hudson Orthopedic Systems
                      70 Livingstone Street
                      Poughkeepsie, NY
                      12601
                      Contact: Mr Bob Zwissler
                      Phone: (845) 471 7777
                      Fax: (845) 471 0088
                      e-mail: bzwiss@att.net


                      PENNSYLVANIA
                      ERIE
                      ORTHOTICS & PROSTHETICS CLINIC
                      Presque Isle Orthopedic Lab
                      1225 Filmore Avenue
                      Erie, PA 16505
                      Contact : Mr. Jonathan Heifetz C.O.
                      Phone : (814) 838-2349
                      Toll Free : 1-800-438-2690
                      Fax : (814) 835-8042
                      email: pioll@aol.com


                      HOSPITAL AND ORTHOPAEDIC SURGEON
                      Shriners Hospital for Children
                      1645 West 8th Street
                      Erie, PA 16505
                      Contact : Dr. James O. Sanders
                      Phone : (800) 873-5437
                      Phone : (814) 875-8700
                      Fax : (814) 875-8778
                      e-mail : josanders@worldnet.ath.net
                      Last edited by Celia; 05-26-2005, 06:11 AM.

                      Canadian eh
                      Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

                      Comment


                      • #12
                        Dear Celia

                        Well, you are not half thorough, I like that. I'll think of a little questionaire to send to all consultants, asking for their objective/ subjective views/ experiences and see what we'll get back. I'll post this (the questionaire) once i am back from holiday next week

                        Best wishes

                        gerbo

                        Comment


                        • #13
                          Gerbo,

                          Thanks for the nice words I'll see what I can come up with on my end - I won't be able to contact every centre though. Are you sending the questionnaire via e-mail ? I was thinking of just calling them on the phone.



                          Celia

                          Canadian eh
                          Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

                          Comment


                          • #14
                            Gerbo/Lurkers,

                            I spoke to a few orthotists and I e-mailed a few others but I found that I got better responses by just talking to them directly. So... I found out that some centres are getting comparable results to published studies but others are failing miserably, this could be due to a learning curve problem. Very close follow-up is important, the straps have to be replaced/adjusted every three months. I got the impression that this was a major key to success. The type of curve treated is important, apparently long single curves do better than short or double curves. The brace is intended for small curves 30 degrees and under, although curves between 30 and 40 degrees have been treated with the brace. Studies that have been done to date have been on adolescent curves rather than juvenile curves - although it looks like studies in the juvenile group will be done at some point in the not too distant future. That's it in a nutshell.




                            Celia

                            Canadian eh
                            Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

                            Comment


                            • #15
                              Thanks for follow-up and posting. Interesting . . something to think about, and further discuss with ortho. THANKS!
                              Pat

                              Comment

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