Hi there ~ I would like to introduce myself to all of you living with Scoliosis or a parent of someone with Scoliosis. My name is Kerrie and my husband is Bill. We live in Grand Haven, Michigan and our daughter Libby was diagnosed with Scoliosis in October '09. She had been complaining of shoulder pain for about 4 months prior to her diagnosis which I thought was just growing pains and too much homework writing. Her curve was allready a 43/26 at that time. We were in shock that she had this condition we knew nothing about as they do not test for it in her school. She has always been healthy, so her pediatrician never looked for it either until she told him of her shoulder pain and he did the simple Adams forward bend test. Her shoulder/rib hump took my breath away and had she not been in the room, I would have cried. It was a scene I will never forget. Unfortunately Libbys curve grew aggressively and on February 8, 2010 she had surgery to correct a 62/48 curve. This happened 5 days after she turned 13. She is doing overall really well and has been such a champion considering she never had a broken bone or a hospitalization.
To honor Libby and her valiant spirit during her journey, I endeavor to raise awareness anyway that I can. I feel a great way to do this is thru a brochure that goes home with puberty information that is sent home with kids for parental permission at the end of 5th. grade. I also want to support research for Scoliosis and I am in the process of creating an awareness bracelet that will be available soon. It will strictly be non-profit.
And of course supporting others with the knowledge I have gained over the last 4 months will be one of the most helpful ways to give back. Libby has a carepage that I would be happy to share, pictures of her before/after correction, and her post-op recovery experience. So please do not hesistate. Forgive all the "I's" in this post as ultimately we are all in this together.
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