New here, congenital scoliosis

[grandmom_of_4]

My daughter gave birth to triplets in October. The smallest one had already been diagnosed with curvature of the spine in the womb. She weighed one pound 11 ounces at birth and now at 3 months, she is five and a half pounds. When she was born she did not have a lot of issues but as she is getting bigger the problems just seem to grow. She has been transfered to AI Dupont hospital in Wilmington, De and the doctors seem stumped as to what is wrong with her.
I repeately ask about her seeing a othopedic specialist, but the doctors tell me that it is to early to deal with her scoliosis. They say she will be evaluated at a later point. When is later?? I have read that the only way to deal with congenital scoliosis is through surgery. How old does she have to be to look into this. They did an MRI of the spine and they just tell me that her scoliosis is severe, but thats all.
I just know that she is getting worse instead of better, and I do not know what I should be asking the doctors or what to expect. Anyone with suggestions, please contact me.
Many, Many thanks. Gradmom of triplets plus one older brother.