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Terrible neck , shoulder and upper thoracic pain!

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  • #61
    I forgot to say that I have to wear a hard cover neck brace for three months.(at least)They shaved all my hair off half way up my head.(looks pretty stylin!!!). It doesn't show with the brace on. I have to sleep with it on. Not very good for my beauty sleep.(smiles). I can take it off for a shower. Well, I just had to add this . Warmly, Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

    Comment


    • #62
      Linda I am glad you are through this. Hopefully you will start feeling better soon. Fixing your rods may be easy after this.
      T10-pelvis fusion 12/08
      C5,6,7 fusion 9/10
      T2--T10 fusion 2/11
      C 4-5 fusion 11/14
      Right scapulectomy 6/15
      Right pectoralis major muscle transfer to scapula
      To replace the action of Serratus Anterior muscle 3/16
      Broken neck 9/28/2018
      Emergency surgery posterior fusion C4- T3
      Repeated 11/2018 because rods pulled apart added T2 fusion
      Removal of partial right thoracic hardware 1/2020
      Removal and replacement of C4-T10 hardware with C7 and T 1
      Osteotomy

      Comment


      • #63
        I am glad that you are through the surgery

        Hope each day gets better.

        Your recuperation sounds like mine

        Yes I am fused from C2

        Melissa
        Melissa

        Fused from C2 - sacrum 7/2011

        April 21, 2020- another broken rod surgery

        Comment


        • #64
          Originally posted by mabeckoff View Post
          I am glad that you are through the surgery

          Hope each day gets better.

          Your recuperation sounds like mine

          Yes I am fused from C2
          Melissa
          Thanks Melissa ~~ I thought of you in the hospital. You've also had a lot of surgeries. I am doing alright ~~ if it's fused in six months they will go in and fix the fractured rods in my lower back.
          Hope this finds you doing well Linda
          Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
          Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
          This started adult onset scoliosis
          July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
          Oct.20th 2010, extended rods to T4 / did osteotomy at L3
          Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
          May 30th 2013 revision
          May 8th cervicle surgery 2016
          May 31st Dr. Gupta revision 2017

          Comment


          • #65
            Originally posted by jackieg412 View Post
            Linda I am glad you are through this. Hopefully you will start feeling better soon. Fixing your rods may be easy after this.
            Thanks Jackie. I am doing alright. My lower back is giving me more problems than anything. I have to walk with a cane at this point. It keeps me stable as I lean to the left and forward pretty bad. Hey, I hope you are coming along alright iin your recovery. You had quite a surgery!!! Well, wishing you the best!! Linda
            Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
            Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
            This started adult onset scoliosis
            July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
            Oct.20th 2010, extended rods to T4 / did osteotomy at L3
            Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
            May 30th 2013 revision
            May 8th cervicle surgery 2016
            May 31st Dr. Gupta revision 2017

            Comment


            • #66
              [QUOTE=golfnut;166350]Linda,
              I have been thinking about you! I know you are still in pain, but it sounds like you have the worst behind you. I hope each day you feel a little better than the previous one.[/QUOTE.]
              Thanks Karen!! I am doing better everyday. I already can tell my neck is much better in that I can look up instead of "not being able to move my neck" to look up. Hope you are enjoying the summer and are getting in a lot of golfing!!! Best wishes to you!!!Linda
              Last edited by babyboomer16; 06-03-2016, 10:32 PM.
              Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
              Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
              This started adult onset scoliosis
              July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
              Oct.20th 2010, extended rods to T4 / did osteotomy at L3
              Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
              May 30th 2013 revision
              May 8th cervicle surgery 2016
              May 31st Dr. Gupta revision 2017

              Comment


              • #67
                Originally posted by titaniumed View Post
                Linda, I have stared at your post now a few times with jaw agape.....I cant imagine what this feels like....

                I believe that Melissa is fuseder up to C2....

                I hope you feel better soon.....
                Ed
                Thanks Ed!! I am doing better each day. It gets hard to not tear this neck brace off!!! But it's for my own good!!! I am feeling a lot stronger . So that's a good thing!! Hope you're doing well! Linda
                Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
                Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
                This started adult onset scoliosis
                July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
                Oct.20th 2010, extended rods to T4 / did osteotomy at L3
                Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
                May 30th 2013 revision
                May 8th cervicle surgery 2016
                May 31st Dr. Gupta revision 2017

                Comment


                • #68
                  Originally posted by babyboomer16 View Post
                  Wow!!! That was a tough surgery! I felt like someone hit me in the back of my neck with a baseball bat!!!
                  I feel a little better now but it is still painful. They cut an incision in front , right side of my neck, removed two dics(c5 c6) and put a cage in filled withBMP and bone shavings. Then they put a halo on me and flipped me over fusing me from T1 up to C2 doing a laminectomy from c2 thru c5. Is that clear as mud!!! I use tried to copy this from online records.Whatever the case it was an eight hour surgery. And I was in ICU FOR A DAY AND A HALF. I'v had a lot of surgeries,and have never got sick from the anesthesia, but not this time. I got the dry heaves as I had no food in my stomach. It was awful. But after all is said and done I am a couple inches taller. I have lost six inches in the past ten years, so I was glad to get some back!!!! After six months if I'm fused enough, Dr. Gupta will go in and fix all the fractured rods in my back.
                  Well, that's my update so far. Each day is a little better. But some days I feel crappy!!!! If you know what I
                  mean. Hope this finds those of you on here feeling well in body and mind. Sincerely, boomer(Linda)
                  So are you fused C2 - pelvis? That sounds about like Melissa. My neck hurts so bad now, it's probably nothing compared to what you are feeling! I'm glad that part is over with for you. I'm so sorry that you've had to have so many surgeries. I don't know how you guys do it, honestly. My neck is a mess and am having head of neurosurgery try to get me referred to Mayo in Rochester, MN. With C2 fused you can only nod "yes" to people, right? Be careful with that one!...just trying to keep it light.

                  I'm glad you're feeling a little better. I hope the pain completely goes away. It's just so hard to believe that you've been to the best surgeons and still had all these problems. I really do wish the best for you. You've been through enough!

                  (((HUGS)))
                  Rohrer01
                  Be happy!
                  We don't know what tomorrow brings,
                  but we are alive today!

                  Comment


                  • #69
                    Linda, hang in there!

                    I wore a soft neck brace for 3 months after a thoracic redo. Not fun, but "keep your eyes on the prize".

                    Find out which anesthetics that were used in your surgery and look at previous records when your did not have dry heaves for what was used. Tell the anesthesiologist that you want meds for nausea early, often, and a lot.

                    Keep healing....thinking of you!

                    Susan
                    Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                    2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                    2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                    2018: Removal L4,5 screw
                    2021: Removal T1 screw & rod

                    Comment


                    • #70
                      Originally posted by rohrer01 View Post
                      So are you fused C2 - pelvis? That sounds about like Melissa. My neck hurts so bad now, it's probably nothing compared to what you are feeling! I'm glad that part is over with for you. I'm so sorry that you've had to have so many surgeries. I don't know how you guys do it, honestly. My neck is a mess and am having head of neurosurgery try to get me referred to Mayo in Rochester, MN. With C2 fused you can only nod "yes" to people, right? Be careful with that one!...just trying to keep it light.

                      I'm glad you're feeling a little better. I hope the pain completely goes away. It's just so hard to believe that you've been to the best surgeons and still had all these problems. I really do wish the best for you. You've been through enough!

                      (((HUGS)))
                      Rohrer01
                      Roher, excuse me if I should know this,, have you had any spinal surgeries? Would this be your first? The Mayo Clinic is a teaching hospital, and from what I'v read and researched, they are the best when it comes to having a complex surgery. I think it has to do with all the students ~~it keeps the surgeons much more alert to all the questions and answers that go on.I guess what I mean, is they also just keep on learning.If that makes any sense. I had a huge surgery years ago at the Mayo Clinic on a bad break on my left wrist that got infection and after eight failed surgeries , I ended up at the Mayo clinic. The place is great. That was 1995. Lots of surgeons were involved in the surgery. Lots of very young Dugi Housers (if you remember that show) running around. What I mean is very young YOUNG Drs.They have to be very high IQ's running around that place. I'm sorry to hear you're in such pain. In my case, my lumbar just doesn't want to fuse. And what happens is my rods eventually break and then revision is required. Darn!
                      I wish you the best!!!!! This forum is so helpful and we are compassionate with each other because we all have similar situations and know what it's like. Keep us updated. Linda
                      Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
                      Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
                      This started adult onset scoliosis
                      July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
                      Oct.20th 2010, extended rods to T4 / did osteotomy at L3
                      Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
                      May 30th 2013 revision
                      May 8th cervicle surgery 2016
                      May 31st Dr. Gupta revision 2017

                      Comment


                      • #71
                        Originally posted by susancook View Post
                        Linda, hang in there!

                        I wore a soft neck brace for 3 months after a thoracic redo. Not fun, but "keep your eyes on the prize".

                        Find out which anesthetics that were used in your surgery and look at previous records when your did not have dry heaves for what was used. Tell the anesthesiologist that you want meds for nausea early, often, and a lot.

                        Keep healing....thinking of you!

                        Susan
                        Thanks Susan for that great advice for my next surgery. I also had trouble with them keeping my pain under control. I think if they would have done the same thing and looked at previous surgeries there, and what worked for me, we would have had a lot better outcome . You are a sweetheart and are very experienced with all this stuff ( unfortunately)!! Hope things are going alright for you. Thinking of you! Linda
                        Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
                        Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
                        This started adult onset scoliosis
                        July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
                        Oct.20th 2010, extended rods to T4 / did osteotomy at L3
                        Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
                        May 30th 2013 revision
                        May 8th cervicle surgery 2016
                        May 31st Dr. Gupta revision 2017

                        Comment

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