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  • Mylogram on Thursday

    Well I am scheduled to have a mylogram this Thursday. Not t much fun but I hope they can do it to keep this long process moving along. With my spine fused the neurosurgeon wasn't sure if it can be done. However my left leg is having so much of an issue that I am praying for an answer. It is getting very difficult to walk and I am tripping. The guess is either I moved this nerve through some scar tissue or maybe the BMP grew. It appears to be the L5 nerve. The other problem is a partial tare in my hamstring on that side. Can that be a contributing factor? . The other branches of the sciatic nerve seem ok.
    I hope to find out because it is getting really difficult to walk and my opposite hip is acting up. I hope it is only from walking different. Enough problems already.
    On a side note-- my original spinal fusion is 8 years old today.
    T10-pelvis fusion 12/08
    C5,6,7 fusion 9/10
    T2--T10 fusion 2/11
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16
    Broken neck 9/28/2018
    Emergency surgery posterior fusion C4- T3
    Repeated 11/2018 because rods pulled apart added T2 fusion
    Removal of partial right thoracic hardware 1/2020
    Removal and replacement of C4-T10 hardware with C7 and T 1
    Osteotomy

  • #2
    Jackie, I don’t know why a CT would be difficult after being fused. I guess your neuro means in actually seeing or finding the problem area....

    I’m wondering if they will also do a 3D CT.?

    Ed
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

    Comment


    • #3
      Hi Ed I think he means that getting to the spinal cord could be hard. There will be a CT scan after. I hope it is clear enough to show what the problem is. It is getting very difficult to walk. I drag my left leg but the right hip is the one that hurts. I hope the pain is just from walking different.
      I also tore the hamstring of the left leg. It is supposed to heal on its own. I'm still waiting!
      T10-pelvis fusion 12/08
      C5,6,7 fusion 9/10
      T2--T10 fusion 2/11
      C 4-5 fusion 11/14
      Right scapulectomy 6/15
      Right pectoralis major muscle transfer to scapula
      To replace the action of Serratus Anterior muscle 3/16
      Broken neck 9/28/2018
      Emergency surgery posterior fusion C4- T3
      Repeated 11/2018 because rods pulled apart added T2 fusion
      Removal of partial right thoracic hardware 1/2020
      Removal and replacement of C4-T10 hardware with C7 and T 1
      Osteotomy

      Comment


      • #4
        I haven't spoken to the doctor yet but I picked up the radiologist report. It does show some questionable results. There is a mention of a posterior disc bulging at L1-2 area. That is quite interesting as all discs where removed. I have no clue on what that is.
        There is also L5-S1 bone spurs and calcific densities abutting existing nerve roots.
        I hope it holds some answers including how do you have a disc bulge without a disc?
        Last edited by jackieg412; 12-09-2016, 08:45 PM.
        T10-pelvis fusion 12/08
        C5,6,7 fusion 9/10
        T2--T10 fusion 2/11
        C 4-5 fusion 11/14
        Right scapulectomy 6/15
        Right pectoralis major muscle transfer to scapula
        To replace the action of Serratus Anterior muscle 3/16
        Broken neck 9/28/2018
        Emergency surgery posterior fusion C4- T3
        Repeated 11/2018 because rods pulled apart added T2 fusion
        Removal of partial right thoracic hardware 1/2020
        Removal and replacement of C4-T10 hardware with C7 and T 1
        Osteotomy

        Comment


        • #5
          Originally posted by jackieg412 View Post
          how do you have a disc bulge without a disc?
          Jackie, Its called recurrent disc herniation,(rDH)

          Ed
          49 yr old male, now 63, the new 64...
          Pre surgery curves T70,L70
          ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
          Dr Brett Menmuir St Marys Hospital Reno,Nevada

          Bending and twisting pics after full fusion
          http://www.scoliosis.org/forum/showt...on.&highlight=

          My x-rays
          http://www.scoliosis.org/forum/attac...2&d=1228779214

          http://www.scoliosis.org/forum/attac...3&d=1228779258

          Comment


          • #6
            Originally posted by titaniumed View Post
            Jackie, Its called recurrent disc herniation,(rDH)

            Ed
            Nope. If the disc was removed, it's something other than a disc herniation. Either the surgical report was wrong (perhaps only part of the disc was removed?), or the CT report is wrong. Maybe what they're seeing is actually a cage or spacer isn't where it's supposed to be?
            Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
            ---------------------------------------------------------------------------------------------------------------------------------------------------
            Surgery 2/10/93 A/P fusion T4-L3
            Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

            Comment


            • #7
              Linda, Here is an article on it.

              http://www.cureus.com/articles/3375-...tematic-review

              Ed
              49 yr old male, now 63, the new 64...
              Pre surgery curves T70,L70
              ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
              Dr Brett Menmuir St Marys Hospital Reno,Nevada

              Bending and twisting pics after full fusion
              http://www.scoliosis.org/forum/showt...on.&highlight=

              My x-rays
              http://www.scoliosis.org/forum/attac...2&d=1228779214

              http://www.scoliosis.org/forum/attac...3&d=1228779258

              Comment


              • #8
                Originally posted by LindaRacine View Post
                (perhaps only part of the disc was removed?), or the CT report is wrong. Maybe what they're seeing is actually a cage or spacer isn't where it's supposed to be?
                Some procedures (Not ALIF) remove the nucleus and leave the annulus material surrounding the cage.....I have read that sometimes its difficult to remove this material close to the spinal cord....

                Hard to imagine the remaining material being called a herniation but I guess that’s the terminology.....

                Lets hope the spacer didn’t move....Mine have markers on them, so I guess they do move.

                Ed
                49 yr old male, now 63, the new 64...
                Pre surgery curves T70,L70
                ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                Dr Brett Menmuir St Marys Hospital Reno,Nevada

                Bending and twisting pics after full fusion
                http://www.scoliosis.org/forum/showt...on.&highlight=

                My x-rays
                http://www.scoliosis.org/forum/attac...2&d=1228779214

                http://www.scoliosis.org/forum/attac...3&d=1228779258

                Comment


                • #9
                  Originally posted by titaniumed View Post
                  Some procedures (Not ALIF) remove the nucleus and leave the annulus material surrounding the cage.....I have read that sometimes its difficult to remove this material close to the spinal cord....

                  Hard to imagine the remaining material being called a herniation but I guess that’s the terminology.....

                  Lets hope the spacer didn’t move....Mine have markers on them, so I guess they do move.

                  Ed
                  If they didn't remove the annulus, that would not be considered a discectomy. It would be a partial discectomy. Reherniations occur only when a partial discectomy has been done.
                  Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                  ---------------------------------------------------------------------------------------------------------------------------------------------------
                  Surgery 2/10/93 A/P fusion T4-L3
                  Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                  Comment


                  • #10
                    Originally posted by LindaRacine View Post
                    If they didn't remove the annulus, that would not be considered a discectomy. It would be a partial discectomy. Reherniations occur only when a partial discectomy has been done.
                    I see....I hope this answered Jackie’s question....

                    Its also hard to know “exactly” what was done on each level....and since scoliosis patients have SO many levels done, you actually need someone getting all the information down....I wonder how many surgeons dictate orally, record, then have another doctor write the report? I had around 10 or so doctors who authored my hospital reports. I didn’t even know these other doctors.

                    When I was having my gall stone attacks, my vascular surgeon had 2 small phone book’s of data on my ALIF. He thumbed through for a minute, looked over his glasses and asked me “Did we leave your gall bladder in?” I got a kick out of that, but he knew....(smiley face)

                    Jackie, I hope you get some relief soon. I know what it feels like...the burning and numbness is debilitating.

                    Ed
                    49 yr old male, now 63, the new 64...
                    Pre surgery curves T70,L70
                    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                    Dr Brett Menmuir St Marys Hospital Reno,Nevada

                    Bending and twisting pics after full fusion
                    http://www.scoliosis.org/forum/showt...on.&highlight=

                    My x-rays
                    http://www.scoliosis.org/forum/attac...2&d=1228779214

                    http://www.scoliosis.org/forum/attac...3&d=1228779258

                    Comment


                    • #11
                      Thanks Ed for your information and support . I have not spoken to either my spine surgeon or the neurosurgeon. I did call in on Friday to neurosurgeon as he was the one that ordered this test. Nobody called back but he is new to me and I am not familiar with his schedule.
                      I hope they call on Monday. When I picked up the radiologist report the hospital also gave me his office notes. If my spine surgeon is the kind with an ego( and I think he is) he will be very unhappy with the way the neurosurgeon referred to him. And I am in the middle just doing what I am told to figure this out. I do think the mylogram report holds enough information to be of some help. I don't know if I will see the neurosurgeon again but I have a follow up visit with the spine surgeon on Thursday. He did not think my problem was coming from the spine but it appears as if there is questionable problems in the spine.. But I also have a torn hamstring on the same side.
                      If I am sent to the university of Chicago again at least those doctors work together and don't pull the ego trip. So far the three doctors involved all want to point fingers.
                      Also I have been having a slight headache from the mylogram. Today I have horrible ringing in the ears. I looked it up and it can happen after the mylogram. I hope tomorrow is better.
                      T10-pelvis fusion 12/08
                      C5,6,7 fusion 9/10
                      T2--T10 fusion 2/11
                      C 4-5 fusion 11/14
                      Right scapulectomy 6/15
                      Right pectoralis major muscle transfer to scapula
                      To replace the action of Serratus Anterior muscle 3/16
                      Broken neck 9/28/2018
                      Emergency surgery posterior fusion C4- T3
                      Repeated 11/2018 because rods pulled apart added T2 fusion
                      Removal of partial right thoracic hardware 1/2020
                      Removal and replacement of C4-T10 hardware with C7 and T 1
                      Osteotomy

                      Comment


                      • #12
                        I had a visit with spine doctor and he doesn't believe there is a herniated disc as they have been removed. He did the neurological tests and no improvement. We are going to do another EMG at the beginning of January and then see what to do. We keep narrowing it down to the L5 nerve just past the spine and before the hip. There aren't any growths on the nerve. Still no answer.
                        T10-pelvis fusion 12/08
                        C5,6,7 fusion 9/10
                        T2--T10 fusion 2/11
                        C 4-5 fusion 11/14
                        Right scapulectomy 6/15
                        Right pectoralis major muscle transfer to scapula
                        To replace the action of Serratus Anterior muscle 3/16
                        Broken neck 9/28/2018
                        Emergency surgery posterior fusion C4- T3
                        Repeated 11/2018 because rods pulled apart added T2 fusion
                        Removal of partial right thoracic hardware 1/2020
                        Removal and replacement of C4-T10 hardware with C7 and T 1
                        Osteotomy

                        Comment


                        • #13
                          This is getting so frustrating. The leg and foot aren't any better but the image of what is not working well won't show up. The new EMG is the first week in January . I imagine that the doctor wants to compare the one from September. The first one I didn't feel . I wonder what this one will be like. I think not feeling it ,isn't good.
                          T10-pelvis fusion 12/08
                          C5,6,7 fusion 9/10
                          T2--T10 fusion 2/11
                          C 4-5 fusion 11/14
                          Right scapulectomy 6/15
                          Right pectoralis major muscle transfer to scapula
                          To replace the action of Serratus Anterior muscle 3/16
                          Broken neck 9/28/2018
                          Emergency surgery posterior fusion C4- T3
                          Repeated 11/2018 because rods pulled apart added T2 fusion
                          Removal of partial right thoracic hardware 1/2020
                          Removal and replacement of C4-T10 hardware with C7 and T 1
                          Osteotomy

                          Comment


                          • #14
                            I can't imagine how frustrating this is for you. I hope you get some answers soon.
                            Karen

                            Surgery-Jan. 5, 2011-Dr. Lenke
                            Fusion T-4-sacrum-2 cages/5 osteotomies
                            70 degree thoracolumbar corrected to 25
                            Rib Hump-GONE!
                            Age-60 at the time of surgery
                            Now 66
                            Avid Golfer & Tap Dancer
                            Retired Kdgn. Teacher

                            See photobucket link for:
                            Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
                            Before and After Picture of back 1/7/11
                            tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
                            http://s1119.photobucket.com/albums/k630/pottoff2/

                            Comment


                            • #15
                              Originally posted by golfnut View Post
                              I can't imagine how frustrating this is for you. I hope you get some answers soon.
                              I agree....I don’t know what to say other than I hope something happens soon.

                              True sciatica is the pits.....its like being kicked in the hip, by a horse.

                              Ed
                              49 yr old male, now 63, the new 64...
                              Pre surgery curves T70,L70
                              ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                              Dr Brett Menmuir St Marys Hospital Reno,Nevada

                              Bending and twisting pics after full fusion
                              http://www.scoliosis.org/forum/showt...on.&highlight=

                              My x-rays
                              http://www.scoliosis.org/forum/attac...2&d=1228779214

                              http://www.scoliosis.org/forum/attac...3&d=1228779258

                              Comment

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