|
|
#1
11-04-2009, 06:54 PM
|
|||
|
|||
|
Scoliosis and Spinal Muscular Atrophy, Type 3
My 14 year old son has SMA, Type 3, a neuromuscular disorder, and scoliosis. I would like to hear from anyone who also has the same. Did you require surgery? Did the surgery affect your SMA?
Thanks for your input. L.J. 
|
|
#2
11-16-2009, 09:52 PM
|
|||
|
|||
|
I know of several children with SMA who have had VEPTR rods placed for severe scoliosis. Let me know if you are interested in emailing them. Most I know are younger than your son.
__________________
Carmell mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/
|
 |
| Thread Tools | |
| Display Modes | |
|
|
Linear Mode
