I just found this forum. My daughter was diagnosed with cystic kidneys and a heart issue in utero. We didn't know about the scoliosis until after she was born. My daughter had heart surgery when she was 8 days old to fix tetrology of fallot/pulmunary artresia/close the VSD. She's now like 8 weeks past the surgery and is doing well. We just had a scan of her kidneys for functionality last week, her right one has no functionality and I'm not sure of the percentage of the left.
Today was the appointment with the orthopedic dr. We had been told by other drs that there were only 2-3 vertebrae that were misformed. But they were reading an X-ray that was taken for the heart. We took X-rays today and the following are issues: Thorasic 7-13 and Lumbar 1-2. I'm being sent to another Dr to discuss issues as this dr had never seen such a complex spine. I know she has 13 ribs and she also has something going on with her left hand (thumb and wrist).
I'm kind of in shock, because I'm now having to think my poor angel is going to have another surgery and so soon. I'm hoping they'll get me in sometime here soon so I'll know exactly what she'll need and when.
If you got this far.. thanks for listening
Today was the appointment with the orthopedic dr. We had been told by other drs that there were only 2-3 vertebrae that were misformed. But they were reading an X-ray that was taken for the heart. We took X-rays today and the following are issues: Thorasic 7-13 and Lumbar 1-2. I'm being sent to another Dr to discuss issues as this dr had never seen such a complex spine. I know she has 13 ribs and she also has something going on with her left hand (thumb and wrist).
I'm kind of in shock, because I'm now having to think my poor angel is going to have another surgery and so soon. I'm hoping they'll get me in sometime here soon so I'll know exactly what she'll need and when.
If you got this far.. thanks for listening
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