Son, age 14, was diagnosed 2 wks ago by primary doc who said 49.4%. Went to Dr Neal at Nemours yesterday who said it's 56% & L2-t3 would be fused. We have an appt w another - Dr Cronen in tampa. One of my colleagues flew his daughter out 10+ yrs ago to Sacramento w Pichetti (?) & had a phenomenal experience w minimally invasive even tho she was 68%. Dr Neil discounted miss for jacob, so 3 major questions - isn't that much of a fusion going to seriously impact his expected 6-8"more of growth, as well as how is that major an area going to impact the rest of his life? Has anyone on here had experience w miss in last few years? Thank you.
I'm going to add another q- we'd ruled out CLEAR bc it didn't seem permanent & there are some questions as to accuracy of measures. If any treatment were to bring down curvature would less fusion take place and would it be permanent, or just delayed? This is such a huge decision for the quality of his life, as well as now as he's been in pain for 3 months.
Just edited, ipjone wrote something totally random near beginning.
I'm going to add another q- we'd ruled out CLEAR bc it didn't seem permanent & there are some questions as to accuracy of measures. If any treatment were to bring down curvature would less fusion take place and would it be permanent, or just delayed? This is such a huge decision for the quality of his life, as well as now as he's been in pain for 3 months.
Just edited, ipjone wrote something totally random near beginning.
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