I've posted about my leg symptoms before. Now, I am getting closer to committing to surgery. Because of my leg symptoms Lonner sent me to a neurologist. He now tells me he understood my leg symptoms all along, but was just being prudent.
The neurologist recommended a new EMG (Lonner thought useless) and a CT myelogram (Lonner doesn't usually recommend, but thought could be helpful) in that order.
EMG: I took the EMG today and the good news is it was normal--no damage to worry about, but I got the impression that the neurologist now thought the symptoms in my head or not explainable. Last year my symptoms were less and the EMG showed chronic radiculopathy and slight peroneal nerve damage. I know one person on the forum told me that they had a normal EMG, yet had nerve symptoms. Can anyone else report this?
CT Myelogram Now, the neurologist thinks the myelogram won't show anything in addition to the MRI--nothing to explain the nerve symptoms. One person kindly shared their myelogram experience with me, and they found it valuable. Anyone else take a myelogram and was it useful? I'm told it might also clarify whether another an epidural might be helpful though at this point with issues with walking distances and standing I doubt that will resolve anything.
Disability and Scoliosis The neurologist is now making me feel like my symptoms are in my head. Anyone else have this experience? And how often does scoliosis cause some disability? Is it always clearly clearly explained?
I am moving really close to surgery, but would like some objective evidence that the scoliosis is related to my leg issues. I realize this may just be a leap of faith.
I'm getting the feeling that few doctors other than scoliosis surgeons understand scoliosis and its manifestations.
Thanks in advance.
Lisa
Left thorocolumbar curve - 60, compensating curve of 30
Just turned 58 in August
The neurologist recommended a new EMG (Lonner thought useless) and a CT myelogram (Lonner doesn't usually recommend, but thought could be helpful) in that order.
EMG: I took the EMG today and the good news is it was normal--no damage to worry about, but I got the impression that the neurologist now thought the symptoms in my head or not explainable. Last year my symptoms were less and the EMG showed chronic radiculopathy and slight peroneal nerve damage. I know one person on the forum told me that they had a normal EMG, yet had nerve symptoms. Can anyone else report this?
CT Myelogram Now, the neurologist thinks the myelogram won't show anything in addition to the MRI--nothing to explain the nerve symptoms. One person kindly shared their myelogram experience with me, and they found it valuable. Anyone else take a myelogram and was it useful? I'm told it might also clarify whether another an epidural might be helpful though at this point with issues with walking distances and standing I doubt that will resolve anything.
Disability and Scoliosis The neurologist is now making me feel like my symptoms are in my head. Anyone else have this experience? And how often does scoliosis cause some disability? Is it always clearly clearly explained?
I am moving really close to surgery, but would like some objective evidence that the scoliosis is related to my leg issues. I realize this may just be a leap of faith.
I'm getting the feeling that few doctors other than scoliosis surgeons understand scoliosis and its manifestations.
Thanks in advance.
Lisa
Left thorocolumbar curve - 60, compensating curve of 30
Just turned 58 in August
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