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Old 07-16-2010, 12:29 PM
skevimc skevimc is offline
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Join Date: Jan 2010
Location: San Bruno, CA
Posts: 161
Quote:
Originally Posted by Nutty View Post
Hola

I run support groups on Facebook, it all started as one to discuss clothing and the like, support one another etc

We are called "Howtolookgoodtwisted" anyway I did not come here to talk about myself, I picked up on your posts here about CLEAR, they have just recently started bombarding my group with their claims about their treatment, offering links and videos etc

What shall I do I do not want to upset other folks on the group as some are taken in by their cures but I am deeply concerned about such companies offering cures for Scoliosis for such staggering amounts, I am worried for new parents with children and teenagers who just know no better

Any advice would be appreciated

Thanks in advance

Simone Icough
I took a quick look at your facebook site. I think what you posted is perfect. Keep the board as a support tool. If people want to start a thread then they can do that. But I'd encourage you to ensure the discussion remains on support or personal experience and not a specific product, even in the threads. Your group is designed as a resource for people with scoliosis and how to dress the curve. If they want to talk about treatments or specific products or anything other than clothes or appearance, then point them in the direction of other groups. And don't hesitate to block people if they don't follow the rules.

Good luck!
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