My daughter is scheduled for surgery. We waited even though her diagnosis was showing that she needed the surgery a couple of years ago with an S curve slightly under 50 Degrees on both upper and lower areas of her back. Our doctor in Philadelphia didn't recommend bracing. She's now going to turn 15 before the surgery date with a 58 degree curve upper and greater then 50 lower. We tried Spinecore to no avail. Since she has down syndrome, her new doctor alerted us to the fact that her bones contain more collagen in them. I'm not sure if that effects the fusion. She's having the surgery at Nemours in Wilmington DE. Any information, advice would be appreciated as to the hospital, (surgeons there if anyone is familiar with this orthopedic center), kids with downs and scoliosis or the procedure and care that needs to be followed. This has been a journey for us and now that we are at the point where we made the decision to get her scoliosis taken care of, we have a lot of concerns that a surgery places upon us. It has been unbelievably helpful to us to utilize this universal "information highway" in order to view all of the bulletins out there concerning scoliosis. It's been a blessing.
Thank you.
Thank you.
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