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Thread: Ragbrai

  1. #1
    Join Date
    Dec 2008
    Location
    Huxley, Iowa
    Posts
    190

    Ragbrai

    Hello all,
    I am currently training for RAGBRAI (the Register's Annual Great Bike Ride Across Iowa). Basically, the last week in July, you start out on the western edge of Iowa (the Missouri river. You dip your bike tire in it), then end at the eastern edge of Iowa (and dip your bike tire in the Mississippi). I will be roughly 1 year and 8 months out of my first surgery, and almost 9 months out from the revision. You average about 60 miles per day.
    Has anyone undertaken anything similar since being fused? I am still trying to find a way to finance it, its not really cheap. Anyhow, I was just wanting your thoughts, experiences, etc.
    25 years old
    double 70+ degree curves before surgery
    Anterior on 11/11/08
    Posterior on 12/2/08 with titanium rods
    nearly perfect correction
    fused t-10 to pelvis
    with a hemi-vertebral osteotomy at L4

    Broke right rod at L4-L5 on 06/26/09
    Broke left rod on 10/24/09
    Revision surgery on 11/5/09 with vitallium rods
    Broke both rods again

    Had posterior than anterior revisions on 03/11 at the Twin Cities Spine Center
    Declared "FUSED" on 12/6/11

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    7,119
    Hi...

    You might want to send a message to Joe O'Brien (president of the National Scoliosis Foundation). His User ID is Joe O'Brien. He rode cross country after revision surgery.

    --Linda

  3. #3
    Join Date
    Dec 2008
    Location
    Huxley, Iowa
    Posts
    190
    Thanks for the tip Linda! Will do.
    25 years old
    double 70+ degree curves before surgery
    Anterior on 11/11/08
    Posterior on 12/2/08 with titanium rods
    nearly perfect correction
    fused t-10 to pelvis
    with a hemi-vertebral osteotomy at L4

    Broke right rod at L4-L5 on 06/26/09
    Broke left rod on 10/24/09
    Revision surgery on 11/5/09 with vitallium rods
    Broke both rods again

    Had posterior than anterior revisions on 03/11 at the Twin Cities Spine Center
    Declared "FUSED" on 12/6/11

  4. #4
    Join Date
    Jan 2009
    Location
    Virginia Beach, VA
    Posts
    455
    FLT,

    Your amazing! Good luck with your adventure. I hope you do excellent! Hope all is well. Haven't been on in a really long time. Too busy trying to keep up with boys and hockey!

    S.
    Susan

    Diagnosed at 10, Boston brace from 11-13 yrs old.
    50* Lumbar w/ 5 centimeter shift to the left and slight rib hump...
    Surgery Date: April 15 and April 22, 2009
    X-LIF approach for disc repair L5,L4,L3,L2
    Posterior Approach for fusions L5-T5
    Dr. Fox @ Naval Medical Center Portsmouth
    Nice and straight now!!!!!

  5. #5
    Join Date
    Dec 2008
    Location
    Huxley, Iowa
    Posts
    190
    asccbodypro-Thanks for the good wishes! Hockey sure does keep people busy this time of year. Please tell me its the boys playing hockey and not you though! My husband plays, I take pictures, but that's as close as you'll get me to suiting up for it. Good to see you back!
    25 years old
    double 70+ degree curves before surgery
    Anterior on 11/11/08
    Posterior on 12/2/08 with titanium rods
    nearly perfect correction
    fused t-10 to pelvis
    with a hemi-vertebral osteotomy at L4

    Broke right rod at L4-L5 on 06/26/09
    Broke left rod on 10/24/09
    Revision surgery on 11/5/09 with vitallium rods
    Broke both rods again

    Had posterior than anterior revisions on 03/11 at the Twin Cities Spine Center
    Declared "FUSED" on 12/6/11

  6. #6
    Join Date
    Jan 2009
    Location
    Virginia Beach, VA
    Posts
    455
    FLT,

    LOL, I see you have kept your sense of humor! I neverrrrr go on the ice. I use to skate with them but not anymore, someday perhaps!

    My 15 year and 10 year old play. My 15 year old is a goalie and my 10 year old is center and plays travel. They play almost year round here and we spend 5-6 days out of the week at the rink and then at least 2 sometimes 3 weekends traveling. It's exhausting but well worth it. We love watching them play, have made wonderful friends and it keeps them out of trouble....as long as you don't count the penalty box as trouble ;O) yes even my goalie gets penalties. I just love when I hear "What Mom? He was in my crease!" ya, after the whistle! Oh boys, never a dull moment.
    Susan

    Diagnosed at 10, Boston brace from 11-13 yrs old.
    50* Lumbar w/ 5 centimeter shift to the left and slight rib hump...
    Surgery Date: April 15 and April 22, 2009
    X-LIF approach for disc repair L5,L4,L3,L2
    Posterior Approach for fusions L5-T5
    Dr. Fox @ Naval Medical Center Portsmouth
    Nice and straight now!!!!!

  7. #7
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    I was so surprised to see the heading "Ragbrai" on here then realized it was from a fellow Iowan. I'm very impressed you would take this on. I rode once upon a time--for about 15 miles--ha! It always looks like such fun--the rolling party. I hope you don't have to sleep in a tent though--that could be rough on the back after all that riding. Are you going to homes along the way? That might be an option to soothe the muscles. Good luck! Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  8. #8
    Join Date
    Dec 2008
    Location
    Huxley, Iowa
    Posts
    190
    Janet- haha, I forgot you were from Iowa too! No less, about 10 miles from where I live! In fact, my husband works in Ames. We are in Huxley. I don't really know all that many people along the way (okay...zero), the route hasn't been announced yet, but it sounds like it will be a northern route. So, I will be camping, but I should be okay. I have a friend that has offered to be my sag service (ie...drive the length with me, and pick my butt up if I break down mentally, physically, or mechanically, though I am fairly mechanically inclined and my bike bag is stuffed with tools should the need arise, so I would imagine it would be a mental or physical break down), and also schlepp all my stuff to the campsite, along with an air mattress.
    I have heard that its a HUGE party (I've never actually seen even a bit of it, I am a California to Iowa transplant, and so my family never really got into it). I am not really a party-er and I don't drink, so I would be in it mostly for the biking and the fun time, also if I could raise a bit of Scoli awareness, that would be awesome too. I am hoping to get a cycling jersey with my xray (rods and all) plastered on the back.
    Also, since I clearly can't bend to bike on a regular road bike I will be taking my trusty Electra Townie..seen here: http://hphotos-snc1.fbcdn.net/hs197...._4757377_n.jpg
    3 speeds...which will be rough, but its got an internal derailer, so it doesn't make that awful "thud" when you shift, I do love that, in fact it was the reason I got this one. Also, easy on the knees because the pedals are slightly forward, and therefore, you can touch the ground with your whole foot when sitting on the bike.

    Susan-That is hilarious! When they grow up they still do that. My husband plays on a C league adult team. Its not uncommon to hear a 50 year old whine "BUT they got in MY WAY!" haha. Hubby is a defenseman. http://www.likeafoxphotography.com/i...46619851-2.jpg He plays year round as well.
    25 years old
    double 70+ degree curves before surgery
    Anterior on 11/11/08
    Posterior on 12/2/08 with titanium rods
    nearly perfect correction
    fused t-10 to pelvis
    with a hemi-vertebral osteotomy at L4

    Broke right rod at L4-L5 on 06/26/09
    Broke left rod on 10/24/09
    Revision surgery on 11/5/09 with vitallium rods
    Broke both rods again

    Had posterior than anterior revisions on 03/11 at the Twin Cities Spine Center
    Declared "FUSED" on 12/6/11

  9. #9
    Join Date
    May 2009
    Posts
    3,745
    Hi fierce
    how..how...how on earth does one sit on a bike with fusion to pelvis....one of the things keeping me from going ahead with surgery is needing fusion to pelvis!

    best of luck in all your adventures...you sound very courageous!!

    jess

  10. #10
    Join Date
    Dec 2008
    Location
    Huxley, Iowa
    Posts
    190
    jrnyc- you get a cruiser style bike! :-) I can't ride a road bike or a mountain bike anymore, but a cruiser is just fine.
    25 years old
    double 70+ degree curves before surgery
    Anterior on 11/11/08
    Posterior on 12/2/08 with titanium rods
    nearly perfect correction
    fused t-10 to pelvis
    with a hemi-vertebral osteotomy at L4

    Broke right rod at L4-L5 on 06/26/09
    Broke left rod on 10/24/09
    Revision surgery on 11/5/09 with vitallium rods
    Broke both rods again

    Had posterior than anterior revisions on 03/11 at the Twin Cities Spine Center
    Declared "FUSED" on 12/6/11

  11. #11
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    430
    Me too a former bike rider, way before back pain and especially way before I found out I was 80 + degrees...Ha! Now we have a motorcycle and my husband says until I get pain relief I can't ride with him. Darn it! I am so looking forward to riding with him - I'm sure hoping I can after surgery. I keep telling him we might have to get a more comfortable bike - of course, he's all for a new bike. Ha! I love this husband of mine!!!! In my former bicycle days my hubby and I would ride 100+ miles all in one day and we would have a blast. I began having a lot of cramping in my hip, though, and that kinda lead into the back pain shortly afterwards, though, so the bike rides quickly came to a halt and we sold the tandem. But, we sure did enjoy it!!! Now my husband has found a bike with a motor (motorcycle) and he's much more into that now.

  12. #12
    Join Date
    Aug 2007
    Posts
    244
    Fierceliketiger...do you mind me asking how you broke your rods??? I'm kinda new, and will be having surgery in March..and am wondering how that happens. Congrats on the great adventure you are undertaking! That is so awesome! I can't wait to get through my surgery then on to setting new boundaries and goals!!!

    Laura
    Laura
    62 degrees
    49 yrs. young
    Surgery 3/31/10 with Lenke

    Before and After pics
    http://www.flickr.com/photos/13749126@N06/

  13. #13
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    You go Girl! My bike riding days are over or so I thought. I will have to look into the Cruiser style bike sometime. I was only aware of the recumbent style bikes.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  14. #14
    Join Date
    Dec 2008
    Location
    Huxley, Iowa
    Posts
    190
    Radiogirl- I had an area of non-union. So my bones didn't fuse at one vertebrate. The problem with that is that because it was solid above and solid below the area all the little micromovements that a person makes put pressure on the rods at only that level (because it was moving and everywhere else was not). That caused the rods to break. They say its like bending a paper clip back and forth a ton of times, eventually it just goes. The second rod broke months after the first, they said that was because of the non-union, but also because of the stress it took on after the 1st rod broke .

    RitaR-I would love to ride a motorcycle someday, but I absolutely love my bike too. I was up to 30 miles per day when the broken rod starting causing problems (I started riding after the break, so it wasn't that). I had only been riding 2 weeks before I hit 30, so I feel reasonably certain that I will be able to do this. I re-checked it. They average 60-80 miles a day, and one day they do a "century loop" (100miles).

    Loves to skate- a cruiser is basically just your average bicycle. The kind where you actually sit, not lean forward. Think a child's first bike.
    Here is a pretty good diagram of my bike:
    http://www.cheekytransport.com.au/wo...1/flatfoot.jpg I sit a lot straighter than the man in the diagram, but the concept is the same.
    25 years old
    double 70+ degree curves before surgery
    Anterior on 11/11/08
    Posterior on 12/2/08 with titanium rods
    nearly perfect correction
    fused t-10 to pelvis
    with a hemi-vertebral osteotomy at L4

    Broke right rod at L4-L5 on 06/26/09
    Broke left rod on 10/24/09
    Revision surgery on 11/5/09 with vitallium rods
    Broke both rods again

    Had posterior than anterior revisions on 03/11 at the Twin Cities Spine Center
    Declared "FUSED" on 12/6/11

  15. #15
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    430
    I haven't road a motorcycle for years - but I think after surgery I will appreciate the fact of not having to peddle up hill. Ha! And, I would love to ride with my husband more than anything. He's afraid to have me ride with him now for fear something would happen that would not enable me to have surgery in July. So his excuse is he is waiting until after my surgery. Maybe he's hoping that I will be bionic then, I don't know. I kid him about that. He's so wonderful with all of us, I don't know what I would do without him. He's so encouraging to me.

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