Hi. Iv never posted anything before, but Im desperate and need advice. I had Scoliosis surgery in 1990.My spine was in a backwards S shape, a 36 degree curve on top and a 58 degree curve on the bottom. My parents were terrified because it happened so qickly and advanced severly within a matter of 6 months.My spine was fused from T5 to L5, I have 2 harrington rods on the right and left side. The surgery was done at the Shriners Children Hospital in Tampa Florida. My Pediatric Orthopedic Surgeon was Dr. Kenneth Guidera, And he was amazing they all were, with me my parents, my siblings. The surgery was successful, I walked 24 hours later, left the ICU after 48, and went home 4 days later. Dr Guidrea was the best Doctor ever. I always felt that he truly was concerned, he was very patient and explained everything, and took time for us to understand and be comfortable with everything. I was released from the Shriners care on my 18th birthday. Yet, Dr. Guidera saw me several times after. I got in some car accidents, and while I was pregnant and after my Daughter was born.
I was always fine, I have had aches and pains like anyone, nothing I couldn't tolerate, or just ignore. After I had my son in 2007, something has changed. I have never been in this much pain. And somedays its hard to walk. Some days my left hipbone does not want to function, my tailbone feels broken, it just aches deep inside my tailbone. Sitting hurts, lying down hurts, walking hurts. I cant ignore it, its interfering with daily household chores. I feel the pin in my spine between my shoulders, and the pain radiates from the pin into each shoulder, sometimes into my neck. I feel the ends of the pins or the rods stabbing into my muscles more than ever.
Oh I could go on, but its all worse pain. And Dr. Guidera is in Missouri. I have never really seen anyone else for my back. At first some Orthopedic doctors I called said they did not want to see me because they did not do the surgery. Now the one that I got to accept me as a patient I have not met. Am I crazy for wanting to meet the doc first? I want to decide if Im comfortable with the doctor enough to allow him to treat my back, is that wrong?
Its a frightening feeling, and I am scared. I would like a doctor that cares enough to take time with the patients, not rely on nurses and assistants.
Thanks for letting me rant.
Lisa
I was always fine, I have had aches and pains like anyone, nothing I couldn't tolerate, or just ignore. After I had my son in 2007, something has changed. I have never been in this much pain. And somedays its hard to walk. Some days my left hipbone does not want to function, my tailbone feels broken, it just aches deep inside my tailbone. Sitting hurts, lying down hurts, walking hurts. I cant ignore it, its interfering with daily household chores. I feel the pin in my spine between my shoulders, and the pain radiates from the pin into each shoulder, sometimes into my neck. I feel the ends of the pins or the rods stabbing into my muscles more than ever.
Oh I could go on, but its all worse pain. And Dr. Guidera is in Missouri. I have never really seen anyone else for my back. At first some Orthopedic doctors I called said they did not want to see me because they did not do the surgery. Now the one that I got to accept me as a patient I have not met. Am I crazy for wanting to meet the doc first? I want to decide if Im comfortable with the doctor enough to allow him to treat my back, is that wrong?
Its a frightening feeling, and I am scared. I would like a doctor that cares enough to take time with the patients, not rely on nurses and assistants.
Thanks for letting me rant.
Lisa
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