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Thread: Success! Down to 24 degrees!

  1. #1
    Join Date
    Jun 2009
    Posts
    18

    Success! Down to 24 degrees!

    We went for our 18 month check up last Tuesday! Good News! My daughter's curve is back down to 24 degrees!

    As background, my daughter was diagnosed with a Left Thorasic curve of 22 degrees at age 12. Our Orthepedic Specialist recommended the Boston Brace and 18 months later, her curve had increased to 42 degrees. He said that surgery was our only option. We chose to look for an alternative treatment. We discovered the Spinecor bracing system, and gave it a try.
    Now it has been 18 months and we have seen wonderful improvement in the curvature! Back down to 24!

    We are so excited! We wanted to share our good news with everyone!

  2. #2
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,903
    That's really wonderful!

    I am glad you posted that because I can't think of another testimonial about Spinecor producing that much reduction in AIS. So that's great from that standpoint also.

    Accumulating data one testimonial at a time! We should all be able to publish in about 250 years!
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
    Join Date
    Jan 2009
    Location
    New Hampshire
    Posts
    18

    Smile cool

    bracing didnt work 4 me, but thats great! she avoided my fate! my surgery went well but its last resort. congrats
    Hey guys!
    My name is Hannah, I'm 14 years old, and I had a spinal fusion on 8/27/09
    I feel great now!
    Pre-op = 28T and 45L
    Post-op = 18T and 22L

  4. #4
    Join Date
    Aug 2006
    Posts
    369
    excellent news Mom 15. How much more bracing time does your daughter have?

    My daughter is having a out of brace x ry mid October. I am excited to see the results of that picture!
    from CT, USA
    6 year old daughter diagnosed 7/06 33* T9

    Spinecor 8/06 - 8/2012
    8/06 11* 3/07 5*-8/07 8*-2/08 3*
    10/08 1* 4/09 Still holding @ 1*
    10/09 11* OOB 4/10 Negative 6*
    10/2011 Neg.11* IB 11yrs old 0 rotation
    4/2012 12* OOB 0 rotation
    8/2012 18* OOB for 2 weeks. TSLO night time
    2/2013 8* OOB 3 days TSLO nightime
    3/2014 8* Out of Brace permanently

  5. #5
    Join Date
    Dec 2008
    Posts
    494
    Congratulations Mom 15.
    That is the story I had hoped to be posting here after my daughter tried the Spinecor. Alas, that was not to be the case.
    Please, more details though.
    Doing the math (and looking at your username) I am guessing she is 15 years old now, right?
    Was the 24 an in brace or out of brace reading?
    Obviously, both would be good, but, if it was out of brace, it would be fantastic.
    Was she treated in Montreal or someplace else?
    How does she compare the comfort of the SpineCor to the Boston Brace she wore for 18 months.

  6. #6
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,801
    Quote Originally Posted by Mom_15 View Post
    We went for our 18 month check up last Tuesday! Good News! My daughter's curve is back down to 24 degrees!

    As background, my daughter was diagnosed with a Left Thorasic curve of 22 degrees at age 12. Our Orthepedic Specialist recommended the Boston Brace and 18 months later, her curve had increased to 42 degrees. He said that surgery was our only option. We chose to look for an alternative treatment. We discovered the Spinecor bracing system, and gave it a try.
    Now it has been 18 months and we have seen wonderful improvement in the curvature! Back down to 24!

    We are so excited! We wanted to share our good news with everyone!
    Hi...

    Thanks for the post.

    I'd love to hear what the plan for the future is. Will she stay in the brace indefinitely, or does she plan to discontinue at some point?

    Regards,
    Linda

  7. #7
    Join Date
    Jun 2009
    Posts
    18
    Thanks to everyone for your responses.
    This x-ray was completed 72 hours out of brace!
    We not only wear the SpineCor brace for 20 hours a day 7 days a week, but we also visit a chiropractor every week and do excercises (mainly from Nintendo Wii Fit) and have recently started using a Yoga ball to help improve overall balance and posture. (she sits/bounces on it while watching TV, playing video games, and doing homework)

    The SpineCor brace is much more comfortable than the Boston brace. It is less bulky, cooler, and easier to dance/move in. It is also easy to wash.

    We are still wearing it, because she is not done growing yet and we go back in December for x-rays 1 week out of brace, and hopefully the results will continue to be this good!


    Almost forgot to add -- she could be out of the brace in December, but most likely will switch to wearing it only at night for 3 months and then be out of it completely by March 2010. She was treated in Texas, not Montreal. 3 months ago we were 32 in brace, and there was no change in height between these x-rays!
    Last edited by Mom_15; 09-29-2009 at 02:47 PM. Reason: incomplete information

  8. #8
    Join Date
    Aug 2006
    Posts
    369
    Mom 37

    That is just awesome. You are almost there!!! December is not that far away. I would assume there will be a weaning period.

    We have an out of brace in mid October. My daughter is already whinning about having to be out of brace for 3 days. She says her back hurts when not in brace. Did you find that with your daughter too? Although being older she may have loved being out of brace.
    from CT, USA
    6 year old daughter diagnosed 7/06 33* T9

    Spinecor 8/06 - 8/2012
    8/06 11* 3/07 5*-8/07 8*-2/08 3*
    10/08 1* 4/09 Still holding @ 1*
    10/09 11* OOB 4/10 Negative 6*
    10/2011 Neg.11* IB 11yrs old 0 rotation
    4/2012 12* OOB 0 rotation
    8/2012 18* OOB for 2 weeks. TSLO night time
    2/2013 8* OOB 3 days TSLO nightime
    3/2014 8* Out of Brace permanently

  9. #9
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,903
    This is the only testimonial I can recall reading anywhere that involves that kind of out of brace reduction in AIS.

    The group in Texas that you are working with... is that a board-certified pediatric orthopedic surgery or is it the chiros if I might ask? I didn't realize there were accredited surgeons using Spinecor in Texas.

    How much of the reduction would you say is due to the brace and how much due to the exercise?

    I'm glad you got such great results.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  10. #10
    Join Date
    Aug 2006
    Posts
    369
    Mom 15

    The thing about the exersize ball is interesting. I purchased one for my daughter last year to practice back bends for cheerleading. The cheering did not pan out (fine with me) so we have not used the ball. I am going to start having her do the same (tv time, ect...) I have a brother who is a parapalegic. During his rehab that was big for him to increase his balance.



    Thanks Chris
    from CT, USA
    6 year old daughter diagnosed 7/06 33* T9

    Spinecor 8/06 - 8/2012
    8/06 11* 3/07 5*-8/07 8*-2/08 3*
    10/08 1* 4/09 Still holding @ 1*
    10/09 11* OOB 4/10 Negative 6*
    10/2011 Neg.11* IB 11yrs old 0 rotation
    4/2012 12* OOB 0 rotation
    8/2012 18* OOB for 2 weeks. TSLO night time
    2/2013 8* OOB 3 days TSLO nightime
    3/2014 8* Out of Brace permanently

  11. #11
    Join Date
    Jun 2009
    Posts
    18
    Christine2,
    Yes, my daughter did have back pain when she first went without the brace as her muscles adjusted to holding their own instead of being held. I wish you best of luck in your upcoming appointment. Please let us know how it turns out.

    Pooka1,
    The Orthepedic Surgeon that had us in the Boston Brace said that surgery was our only option. He did not reccommed the SpineCor System. We see both a Certified Spinecor specialist and a Chiropractor. I can't say how much of our progress is due to the brace and how much to chiropractic treatments and how much to the excercises and stretches. We did see the curve progression stop in the brace with 1 - 2 degree improvement while she grew another inch, we did see 4 - 6 degree improvement when we added the chiropractic adjustments and the largest improvement came with the addition of the excercises (and she did grow any taller during this measurement period).

    Thank you!

  12. #12
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,903
    So you are no longer dealing with a pediatric orthopedic surgeon then if I understand your response?

    It would be interesting to go back to the surgeon you saw who doesn't recommend Spinecor for another consult and show him the radiographs. Or have him shoot the next set. He might start prescribing it although the situation is confounded by the PT.

    Although measuring a Cobb angle can seem straight forward, I think it would be interesting to have a surgeon or radiologist measure her Cobb angle to compare it to the chiros' measurement.

    There are so few (none?) AIS - Spinecor successes that we hear about. That's why I think it would be great to tell the surgeon.

    Your daughter is almost out of the woods so that's really great.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  13. #13
    Join Date
    Sep 2009
    Location
    Wisconsin
    Posts
    184
    Wonderful ....it would be interesting to see what the pediatric orthopedic surgeon said after seeing spinecor results.

    I would love for all the specialist to stop competing and work together. after all what works..works and should benefit the child not the practitioner.
    age 15
    Daughter diagnosed at age 13
    T20 l23 10-09
    T27 L27 1/2010

    T10 L 20 in brace 4/2010
    T22 L25 12/2010 out of brace
    T24 L25 7/2011 out of brace

    Type 1 diabetes- pumping
    Wearing a Boston brace and Schroth therapy
    Faith, Hope, and Love- the greatest of these is Love


  14. #14
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,903
    Quote Originally Posted by Bigbluefrog View Post
    Wonderful ....it would be interesting to see what the pediatric orthopedic surgeon said after seeing spinecor results.

    I would love for all the specialist to stop competing and work together. after all what works..works and should benefit the child not the practitioner.
    I agree with going back to a pediatric orthopedic surgeon. I can't recall any kid on this forum who isn't at least also being seen by one in addition to any Spinecor chiros or regular chiros or PT people. Chiros simply don't have the necessary training to follow these cases and to even treat scoliosis. Even the Spinecor inventors are orthopedic surgeons.

    In re competing... I don't see that the top pediatric guys have any competition whatsoever. None. They are the only game in town. Try scheduling surgery for a school vacation period. You better do it way ahead of time. These guys have more cases than they need it seems.
    Last edited by Pooka1; 12-01-2009 at 06:27 PM. Reason: changed "anyone" to "any kid"
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  15. #15
    Join Date
    Jun 2009
    Posts
    19

    Smile

    Many of you know mom 15 well thats my mom!!!!!!!! I was so happy to see my curvature decrease i go back in a week or 2

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