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Thread: Need help with aging with scoliosis

  1. #1
    Join Date
    Sep 2004
    Location
    New York State
    Posts
    4

    Need help with aging with scoliosis

    Am 67, was probably born with the condition, remember it in grade school, with a few kids mimicing me how I looked. Have had no help with what I know face. My fault, never talk to my doctor about it & he never brings it up. Would be willing to chat with others, thru e-mail about our problems, dressing, going out & being looked at, & especially the things we can't do because of it. Am so happy I found this site, never realized that others thought like I did.

  2. #2
    Join Date
    Jun 2004
    Location
    florida
    Posts
    17
    maxi, i can absolutly understand how you feel. this is a great forum to come to and even vent at times. are you seeing a doctor or are you still refusing to speak?
    michelle

  3. #3
    Join Date
    Sep 2004
    Location
    New York State
    Posts
    4

    michelleseibers

    Sorry for not replying sooner, have not been on-line over the weekend. Thanks for the info, am seriously going to make the effort to get in touch with a doctor who can help.

  4. #4
    Join Date
    Aug 2004
    Location
    san diego
    Posts
    55
    You can email me at letty4065@hotmail.com. I would be happy to talk to you.

    Letty

  5. #5
    Join Date
    Oct 2004
    Location
    Edmond.Ok
    Posts
    10
    Maxxi I am new to talking about my severe scoliosis. Funny about waiting this long ( I am 53.) I would be glad to talk with you about exactly the different topics you mentioned. Send me a reply.

  6. #6
    Join Date
    May 2004
    Location
    Michigan
    Posts
    75
    Hi Maxxi,

    I too was born with scoliosis, only at age four did it turn real ugly almost lost my life because of it. I had the first spinal surgery in the state of michigan at U of M at four years old, I have no support of any kind in my back. So after fifty some years of wear and tear it is worn out but good. People do notice and of course inclusion thru-out life has been hard, descrimination because of my appearance has been very popular. But you know, we are people first, and our disability is second. We all have real true friends that has accepted us for what we are, and now we have this fantastic forum. I have felt so good since finding this, I have felt alone for so long. It is great to have so many new friends that we can talk too, God Bless....
    Live long and prosper!

  7. #7
    Join Date
    Oct 2005
    Posts
    6
    I am finding it difficult to age gracefully with my scoliosis. At 50 I notice my failings when I am with others my age. I have even been mistaken for my best friend's mother. She is 50 also. I walk bent over a bit, I have a big hump, have trouble breathing and my head is tilted to one side. But I am still beautiful.

  8. #8
    Join Date
    Sep 2003
    Location
    NJ
    Posts
    1,291

    Wink aging gracefully with scoliosis?

    Robin:
    I strongly suggest visiting an ADULT scoliosis specialist. There is definitive help. You can find the name a a good one by searching the posts. Indicate where you live.
    I had the same problem as you: breathing impairment, tilted to one side and an enormous hump. I was re-fixed at age 60(3 years ago) with excellent results. I had an old form of surgery in 1956.
    The problem is there is no aging gracefully with scoliosis. Large curves can increase 1-3 degrees a year lifelong causing unnecessary terrible disability and pain.
    I could not do that to my family or myself.
    Karen
    Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
    Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

  9. #9
    Join Date
    Feb 2006
    Posts
    1

    Any suggestions for aging with "S"

    Hi! I'm new to this forum and am 52, female and have sufferred with "S" my entire life. I wore a body brace for several years during adolescence. I've recently lost about 30 pounds and really notice the worsening of my curve. Does anyone have any suggestions or hints of what can be done at my age to help prevent further degeneration? I exersize avidly, hence the weightloss and believe that should help to prolong the worsening. I live about 3 hours from Dallas and have a daghter who lives in San Antonio, if anyone knows of a specialist in either of those areas. Thank you for your help. Suzanne in TX

  10. #10
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    Hi Suzanne...

    How do you know that your curve is worsening? When one is thinner, it's easier to see scoliosis curves. It's still a good idea to have your scoliosis checked. You can find a list of specialists here:

    http://www.srs.org/directory/directory.asp

    Regards,
    Linda

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