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Thread: Scoliosis and Spinal Muscular Atrophy, Type 3

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  1. #1
    Join Date
    Nov 2009
    Posts
    1

    Scoliosis and Spinal Muscular Atrophy, Type 3

    My 14 year old son has SMA, Type 3, a neuromuscular disorder, and scoliosis. I would like to hear from anyone who also has the same. Did you require surgery? Did the surgery affect your SMA?

    Thanks for your input.

    L.J.

  2. #2
    Join Date
    Oct 2003
    Location
    Utah
    Posts
    1,010
    I know of several children with SMA who have had VEPTR rods placed for severe scoliosis. Let me know if you are interested in emailing them. Most I know are younger than your son.
    Carmell
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/

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