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Thread: Hi newly diagnosed and waiting for help..big sigh

  1. #1
    Join Date
    Sep 2009
    Location
    Wisconsin
    Posts
    184

    Hi newly diagnosed and waiting for help..big sigh

    Hi my daughter is 13 years old and we noticed one leg was longer, then noticed one hip is higher. My Dh took her to the doctor...no scoliosis check?

    I took her to the Chiro and asked for a scoliosis panel, he agreed. the xrays showed a s shape curve with the major shift in lower pelvic...lumbar region showed a 28 degree to the left and thoracic showed a 25 degree convexing to right. I made an apt to the pediatric orthopedic...and now we wait..till her apt....I call everyday to see if there is any cancellations. I checked into Spincor brace, read about the boston brace, and others....been reading this forum...btw thank you for all your honest posts...I find your experiences very helpful.

    I read many articles about exercise and proprioception of muscles using balance as a key link into therapy. so while we wait....we do core body exercises, using a balancing ball, stretch the tight areas....which you can feel the tightness in the areas of the cure..and a massage...every night...i do this hoping that it is not progressing.

    Why do I wait....I had an apt with a spincor brace chiro...but cancelled it... all the info was on their website and it sounds fantastic..but the results are 70% effective and when discussing the brace with their doctor there is no guarantee any brace will work..

    Do you find that the brace needs exercise to totally be effective? the two go together? IT would be interesting to see a survey on here with what types of braces everyone uses and who has been successful with the brace.
    Spinecor brace really makes sense in that it allows full movement with support, curious how many here really like it? Used it...it is fairly new, but the dynamic part of it really makes sense.. Exercise makes sense too. Waiting does not make sense....

    mom who is doing her best to hold it all together
    Last edited by Bigbluefrog; 10-10-2009 at 12:32 PM.

  2. #2
    Join Date
    Aug 2006
    Posts
    369
    Hi Frog

    Welcome, It is a tough journey but you will find alot of support here. As you can see from my signature we use the Spinecor. We have had fabulous results so far. We have and out of brace x ray next week. I am so nervous!!

    Our daughters cases are different because of their age. We are JIS. From what I understand the brace works on young smaller curves. Your daughters curve is still preety small.
    My daughter does no exersizes. We go to Canada for treatment and are very happy we chose to go there. There has been talk about shoe lifts here, you should try to look into those conversations considering she has a shorter leg. It seems to me that if the hips are not balanced than the back will be off too.
    from CT, USA
    6 year old daughter diagnosed 7/06 33* T9

    Spinecor 8/06 - 8/2012
    8/06 11* 3/07 5*-8/07 8*-2/08 3*
    10/08 1* 4/09 Still holding @ 1*
    10/09 11* OOB 4/10 Negative 6*
    10/2011 Neg.11* IB 11yrs old 0 rotation
    4/2012 12* OOB 0 rotation
    8/2012 18* OOB for 2 weeks. TSLO night time
    2/2013 8* OOB 3 days TSLO nightime
    3/2014 8* Out of Brace permanently

  3. #3
    Join Date
    Aug 2006
    Posts
    369
    My daughter is still growing, she will most likely need to wear the brace through puberty. We will find out in a couple days. As for the pump I am not sure. The brace has straps, you may be able to place the pump around the straps or on the pelvis base.

    Sounds like you had a tough year!!
    from CT, USA
    6 year old daughter diagnosed 7/06 33* T9

    Spinecor 8/06 - 8/2012
    8/06 11* 3/07 5*-8/07 8*-2/08 3*
    10/08 1* 4/09 Still holding @ 1*
    10/09 11* OOB 4/10 Negative 6*
    10/2011 Neg.11* IB 11yrs old 0 rotation
    4/2012 12* OOB 0 rotation
    8/2012 18* OOB for 2 weeks. TSLO night time
    2/2013 8* OOB 3 days TSLO nightime
    3/2014 8* Out of Brace permanently

  4. #4
    Join Date
    Jun 2009
    Posts
    18
    My Daughter is 15, she started wearing the Spinecor brace about 18 months ago. Her curve has dropped from 48 degree to 24 degrees out of brace. She does exercises (stretches and basic yoga) and sees a chiropractor regularly.

    Before we started Spinecor, she was in a Boston Brace for about 18 months. She went through a growth spurt and her curve increased.

    Overall, we recommend the Spinecor system over the Boston Brace because it is cooler, eaiser to move in and eaiser to hide under clothes. And it worked for us.

    Good Luck, BigBlueFrog!
    (And good luck Christine!)

  5. #5
    Join Date
    Sep 2009
    Location
    Wisconsin
    Posts
    184
    mom 15 where did kyou go to get the spinecor brace?

    Was it thru the scoliosis specialist?
    age 15
    Daughter diagnosed at age 13
    T20 l23 10-09
    T27 L27 1/2010

    T10 L 20 in brace 4/2010
    T22 L25 12/2010 out of brace
    T24 L25 7/2011 out of brace

    Type 1 diabetes- pumping
    Wearing a Boston brace and Schroth therapy
    Faith, Hope, and Love- the greatest of these is Love


  6. #6
    Join Date
    Jun 2009
    Posts
    18

    Yes

    Yes.
    We got our Spinecor Brace from the Scoliosis Specialist.

  7. #7
    Join Date
    Mar 2009
    Posts
    1,090
    Quote Originally Posted by Mom_15 View Post
    Yes.
    We got our Spinecor Brace from the Scoliosis Specialist.
    Wow, I looked into that Scoliosis Specialists. A couple of chiropractors own a national chain of chiropractic clinics that supply the Spinecore brace. Interesting...I wonder if I can get a franchise too?

    Seriously though, I believe the Spinecor worked even less well on those patients who didn't go directly to the inventors of the brace in Montreal, who are both Orthopedic Surgeons. My advice to you would be to stick with the medical doctors, especially in the pediatric group with growth going on.

  8. #8
    Join Date
    Nov 2009
    Posts
    12

    hey

    Haha I almost forgot I had scoliosis
    I think like is beautiful...
    anyway. lol.
    My degrees are 23-22 IM A 16 year old girl.
    You know what? MAKE HER SWIM.
    2-3 times a week.
    IM SERIOUS.
    I swam only 5 times (total) and my hips are WAY more even now.
    I just wish I was taller.. =/ (Im 5'3)

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