Hi All,
Some of you probably remember our story and much of it is in my signature below. Recently, we briefly tried a shoe lift for Alex but on one side it made him limp and on the other side, it hurt his back. Our surgeon said to stop using it if Alex doesn't like it. But my husband and I really think his posture is not only not improving but that it's getting worse. He is leaning forward and toward his left side while bending his left knee. It is not a very socially acceptable way to present oneself, especially as an adolescent - it makes him look like an old man!
I am researching posture programs such as the Alexander technique and the surgeon did give us a referral for it despite there being no research/published scientific papers about it. He doesn't have anything else that he thinks will help, but he did, as I wrote about previously, mention a later fusion to the pelvis; this, I am not ready to accept as a surgical outcome without many more opinions.
So I'm hoping that some of you will respond to this request and tell me who your doctors are so I can possibly see about getting an appt. with them. I live on the West Coast - Seattle, WA.
I prefer to stay out west if possible but would travel anywhere necessary to get my son the best opinions and care.
We were told that one surgery would be all Alexander needed but that might not be the case. If a surgery of one or more vertebral levels could help prevent a fusion to the sacrum, esp. while he is still so young, I would rather get it done sooner than later. Alexander is so sick of us talking about his posture and reminding him to stand up straight. This is not working and is bringing him to tears.
Please try to write back with any info you have about the best orthopedic surgeons in the country. I thought we'd picked the best, but now I'm not so sure.
Thanks,
Some of you probably remember our story and much of it is in my signature below. Recently, we briefly tried a shoe lift for Alex but on one side it made him limp and on the other side, it hurt his back. Our surgeon said to stop using it if Alex doesn't like it. But my husband and I really think his posture is not only not improving but that it's getting worse. He is leaning forward and toward his left side while bending his left knee. It is not a very socially acceptable way to present oneself, especially as an adolescent - it makes him look like an old man!
I am researching posture programs such as the Alexander technique and the surgeon did give us a referral for it despite there being no research/published scientific papers about it. He doesn't have anything else that he thinks will help, but he did, as I wrote about previously, mention a later fusion to the pelvis; this, I am not ready to accept as a surgical outcome without many more opinions.
So I'm hoping that some of you will respond to this request and tell me who your doctors are so I can possibly see about getting an appt. with them. I live on the West Coast - Seattle, WA.
I prefer to stay out west if possible but would travel anywhere necessary to get my son the best opinions and care.
We were told that one surgery would be all Alexander needed but that might not be the case. If a surgery of one or more vertebral levels could help prevent a fusion to the sacrum, esp. while he is still so young, I would rather get it done sooner than later. Alexander is so sick of us talking about his posture and reminding him to stand up straight. This is not working and is bringing him to tears.
Please try to write back with any info you have about the best orthopedic surgeons in the country. I thought we'd picked the best, but now I'm not so sure.
Thanks,
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