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Thread: Scoliosis not newbie

  1. #16
    Join Date
    May 2006
    Location
    Near Houston, TX
    Posts
    493
    Quote Originally Posted by RitaR View Post
    Hey Sherie,
    I saw your private message, but i just went into Outlook and sent you a message from there. So, you'll have to get in your email to read my message. Sorry. I didn't think about replying in here. See, told ya I was a newbie on here.....
    Oh and nice to meet you....
    It's already been nice talking with you...
    Nice to meet you too.
    Glad to help in anyway I can.
    Sherie
    Mom to 2
    Sheena, 20 (56T/62L, Surgery with Dr. Lenke 11/15/07, Fused T4-L4, great correction)
    Bijan, 17

    link to photos and xrays
    http://s232.photobucket.com/albums/e...urgery%202007/

  2. #17
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    397
    Hey Jennifer,
    Nice to meet you - Yes, I love this site. I no longer feel ALONE with all this pain. It helps to know there are others who feel the same.
    We will talk again I am sure.
    PS: I now have appt with Dr. Lenke - Aug 19th. OMG! Hope I can wait till then....

  3. #18
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    397

    Talking

    Well, I have to say, I took someone's advice on here, mostly because I am a newbie of sorts to this forum and already seeking advice I guess. I tried calling Dr. Lenke's office this morning around 9:00 and by 10:30 she called me back and made an appointment for me. I see him on Aug 19th, which sounds long ways off, but when you think about it, could have been lots further out, like November or December. More worrisome, however, is that he is currently scheduling surgery for February. OMG! But, she said they always move people up if they're bad enough and experiencing a lot of problems, so we'll just wait and go from there. She was very nice and sympathetic to my symptoms, travel distance, etc. So, if you can go by first impressions, I'm off and running already.
    So, my hats off to whomever suggested I call the dr myself - I hadn't thought of doing that yet, but it certainly worked.
    I'll be on here periodically, mostly looking for a sympathetic ear probably while I wait for my appt.
    THANKS!

  4. #19
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    397
    Just wondering here - can someone give me an idea how long they were in the hospital with this surgery? And, where did your family member stay while you were in the hospital? I'm assuming it's going to be a while before I can travel home after having surgery. Although knowing they do have drugs, but I am just not a drug person, if you know what I mean.... as soon as I can I'm off those goofy acting drugs. I hate the way they make you feel. I'd almost rather be in pain - well, almost... (tee hee!)
    Last edited by RitaR; 06-03-2009 at 10:02 PM.

  5. #20
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,955
    Quote Originally Posted by RitaR View Post
    Well, I have to say, I took someone's advice on here, mostly because I am a newbie of sorts to this forum and already seeking advice I guess. I tried calling Dr. Lenke's office this morning around 9:00 and by 10:30 she called me back and made an appointment for me. I see him on Aug 19th, which sounds long ways off, but when you think about it, could have been lots further out, like November or December. More worrisome, however, is that he is currently scheduling surgery for February. OMG! But, she said they always move people up if they're bad enough and experiencing a lot of problems, so we'll just wait and go from there. She was very nice and sympathetic to my symptoms, travel distance, etc. So, if you can go by first impressions, I'm off and running already.
    So, my hats off to whomever suggested I call the dr myself - I hadn't thought of doing that yet, but it certainly worked.
    I'll be on here periodically, mostly looking for a sympathetic ear probably while I wait for my appt.
    THANKS!
    Rita,

    I'm so glad!! Persistence can sometimes pay! I was in the hospital for 6 days. When I was there, my husband stayed in the hospital guest house right across the street, which (in NYC) was a bargain at $100 per night. He wanted to stay close and not have to go home to NJ every night which distance-wise isn't far, but can take a long time to get back and forth.

    I hated drugs too, but for me there was no question. I just needed some relief. It's not like the drugs I was on took all the pain away either; they just made it tolerable. Of course, over the weeks after surgery, the pain gradually decreased. Even though it's hard to believe that in the beginning, it's true.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  6. #21
    Join Date
    May 2009
    Location
    Topeka, KS
    Posts
    397

    Thumbs down

    I cannot even fathom if after surgery this pain is even some better.
    I cannot walk for more gthan 10 minues without being in sheer agony. And, I know walking is a must to keep limbered up - but if it causes this much pain. What to do? It effects everything you do - everything you think. I long for those days when I had no pain and just forgot about even having his dreadful curve thing. Waiting until Aug 19th for my appt is going to be a very long time I'm afraid. I am sooooo glad I have this site to vent. Ugh! Anyone have any ideas of what they've done to make walking a litlte more tolerable? I can't even p repare dinner without being in sheer agony that by the tikme Im ready to eat - nothing sounds good if you're dying in pain.
    Sorry, is this whining?

  7. #22
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,163
    I hesitate to stick my neck out here, but reading of your pain, I am going to suggest you try a magnetic wrap, in the meantime. I used to use one before my surgery and it worked. And I never expected it would. A friend talked me into trying it. I know many (including myself, once) would be sceptical, but it worked for me, perhaps it will for you too.

    Considering the degree of your pain, you might be willing to try anything. The best ones are the non-rigid ones. They are like a wide piece of elastic with magnets sewn into it. They are held by velcro. They were also much cheaper than the rigid ones.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  8. #23
    Join Date
    May 2009
    Posts
    84
    Have you tried Physical Tehrapy, CLEAR Institute, Spinecor or any alternatives to surgery yet?

  9. #24
    Join Date
    Jun 2009
    Location
    Los angeles
    Posts
    122
    Hi Rita!
    I'm new here too and it is wonderful.
    I'm 30 years old and I wore a milwaukee too when I was 12 for about a year. It certainly was not fun. I'm going to make you fell better saying that I have a 95* curvature. And those chest pains that you have I have them too. You are NOT alone. And I'm soo happy that I am not alone too. I 'm contemplating surgery as well. In fact, I have schedule the surgery for sep 3rd. I'm just nervous and hesitant about it. I do not have leg pains or back pains (only lower back sometimes and chest pains) but I don't want to have any pains in the future, so that's why I will probably go ahead with the surgery. I'm scared because it is a complicated open anterior and posterior ( that is 2 surgeries), so I guess I will have to be in the hospital for lomg time.
    I have my last appointment with my surgeron next week so we'll see.
    Pilar

  10. #25
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,120
    Quote Originally Posted by pilar View Post
    Hi Rita!
    I'm new here too and it is wonderful.
    I'm 30 years old and I wore a milwaukee too when I was 12 for about a year. It certainly was not fun. I'm going to make you fell better saying that I have a 95* curvature. And those chest pains that you have I have them too. You are NOT alone. And I'm soo happy that I am not alone too. I 'm contemplating surgery as well. In fact, I have schedule the surgery for sep 3rd. I'm just nervous and hesitant about it. I do not have leg pains or back pains (only lower back sometimes and chest pains) but I don't want to have any pains in the future, so that's why I will probably go ahead with the surgery. I'm scared because it is a complicated open anterior and posterior ( that is 2 surgeries), so I guess I will have to be in the hospital for lomg time.
    I have my last appointment with my surgeron next week so we'll see.
    Pilar
    I've only been reading this forum for about 18 months but I can't recall reading any testimonials from folks who had little pain before surgery coming out with much more pain long term. I think the surgeon would know about the stats on that.

    Good luck.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

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