Results 1 to 12 of 12

Thread: surgery 28th...so hard

  1. #1
    Join Date
    Apr 2006
    Posts
    227

    surgery 28th...so hard

    This is so hard. Nightimes are the WORST...and I wake up in such pain in the morning. I hate sitting...I go on short walks and end up with a side ache. I just don't remember this being so hard. My front incision hurts like @@@. I just want a quick cure. I forgot how terrible the recovery is. Thank GOODNESS I have such a supportive husband and kids right now. Although I can tell that this is wearing on them too (especially my 4 year old). I have a nurse that comes in and PT for 8 times...which I guess is unusual but I was a slow healing patient in the hospital apparently. Oh the pain...and I thought I had a high tolerance for pain - I guess not.

    Sorry, Just venting nothing else.

    Always Smilin'
    Colleen

    1982 fused T2-L1
    pre op 45 - post op 33 (left thoracic)
    pre op 53 - post op 18 (right thoracic)

    recheck 2006
    right thoracic 57
    lower lumbar 34

    surgical revision April 28,2009
    revision T3-L1; new fusion L1-L4
    unsure of degrees at this point

  2. #2
    Join Date
    Nov 2008
    Location
    Greenfield, WI
    Posts
    414
    Its ok to vent....that is why we are here. Take care of yourself......your 4 yr old understands more than you think.....they are smart little people. My son who is also 4, still asked me on a regular basis if "i am still fragile" its really cute. Take care, and rest, rest, rest!


    Lynn
    Lynn -30.... something
    DxD @ 8 yrs old: 10* curve-no brace-no nothin'!
    At age 26: Thorasic 48*/Lumbar 50*
    At age 34: Thorasic 58*/Lumbar 60*
    Posterior T5-L4 Fusion Jan 14th, 2009 w/Dr Tribus
    UW Madison, WI Hospital
    **AFTER: less than 10* Thorasic/15* Lumbar**

  3. #3
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Some times you just need to vent! You can bet you're not alone and others have been through similar times and understand.

    Could your meds need an adjustment upwards to manage the pain?
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  4. #4
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,793
    Hi...

    I know how hard it is. It doesn't help, but you know it will get better. There should be some big improvements soon. Hang in there.

    Regards,
    Linda

  5. #5
    Join Date
    Apr 2006
    Posts
    227
    Thanks so much...I need reassurance that I'm not just being a baby. I consider myself one with high tolerance. But I spent 5 or 6 days in ICU and just a couple in regular room before being sent home. I'm wore out...my hubby is worn out...my mom is worn out. My brother is coming up this weekend to help out and my sister as well. I just feel like such a complete and utter burden and I HATE that feeling. THANKS FOR LETTING ME VENT AND FOR THE REASSURANCE!

    Always Smilin'
    Colleen

    1982 fused T2-L1
    pre op 45 - post op 33 (left thoracic)
    pre op 53 - post op 18 (right thoracic)

    recheck 2006
    right thoracic 57
    lower lumbar 34

    surgical revision April 28,2009
    revision T3-L1; new fusion L1-L4
    unsure of degrees at this point

  6. #6
    Join Date
    Feb 2004
    Posts
    43
    Hi Always Smiling,

    I think u are being really hard on yourself. It has not even been a month since your operation. My mother broke her arm and was unable to do anything for herself for nearly a month and a half. My father had to do everything from helping her to wash, dress,do her hair, do the shopping, cleaning and cooking and this was only a broken arm!!!

    You have had major back surgery and I am sure your family understand that it will take a long time to recover. It isnt like the first operation. I was told by my surgeon if I have revision surgery it will take much longer to recover then from first surgery ( I am in the same situation as yourself curve progressing after fusion 14 years ago).

    Hope u feel better soon.

  7. #7
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Quote Originally Posted by always smilin' View Post
    Thanks so much...I need reassurance that I'm not just being a baby. I consider myself one with high tolerance. But I spent 5 or 6 days in ICU and just a couple in regular room before being sent home. I'm wore out...my hubby is worn out...my mom is worn out. My brother is coming up this weekend to help out and my sister as well. I just feel like such a complete and utter burden and I HATE that feeling. THANKS FOR LETTING ME VENT AND FOR THE REASSURANCE!
    NO NO No!! Don't even think you are a burden. Just think of everything you went through. No wonder your butt is whooped. I also had a problem 'relinquishing control' in my home, but you just have to do it. Your job now is to just rest and recover.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  8. #8
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    I almost posted the same exact thing Debbe just said last night.

    Major surgeries kick your ass. period.

    Just concentrate on YOU. healing thoughts..... try to get some sleep.
    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  9. #9
    Join Date
    Jan 2006
    Location
    near Philadelphia
    Posts
    1,260
    I had a really hard time too....sometimes I felt like I was the only person not bounding back quickly. It took me well over a year to feel okay. Hang in there!!
    Chris
    A/P fusion on June 19, 2007 at age 52; T10-L5
    Pre-op thoracolumbar curve: 70 degrees
    Post-op curve: 12 degrees
    Dr. Boachie-adjei, HSS, New York

  10. #10
    Join Date
    Apr 2006
    Posts
    227
    Thanks so much everyone for your kind words. This is my first time back on-line because it hurts soooooo bad to sit. I'm trying but holy cow - this one whipped me good! THANKS so very much - I need to hear that I'm not alone.

    Always Smilin'
    Colleen

    1982 fused T2-L1
    pre op 45 - post op 33 (left thoracic)
    pre op 53 - post op 18 (right thoracic)

    recheck 2006
    right thoracic 57
    lower lumbar 34

    surgical revision April 28,2009
    revision T3-L1; new fusion L1-L4
    unsure of degrees at this point

  11. #11
    Join Date
    Feb 2009
    Location
    Saint Joseph Michigan
    Posts
    2

    What are your curves now?

    I was wondering what you curves are now after surgery
    I hope you continue to get better with each passing day.

  12. #12
    Join Date
    Apr 2006
    Posts
    227
    I was so out of it in the hospital I never asked...the doc said it went well so I trusted what he said. I'll ask more at our post op appt - not til END of JUNE!

    Always Smilin'
    Colleen

    1982 fused T2-L1
    pre op 45 - post op 33 (left thoracic)
    pre op 53 - post op 18 (right thoracic)

    recheck 2006
    right thoracic 57
    lower lumbar 34

    surgical revision April 28,2009
    revision T3-L1; new fusion L1-L4
    unsure of degrees at this point

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •