Page 1 of 2 12 LastLast
Results 1 to 15 of 30

Thread: Scoliosis in the news - Boston

  1. #1
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445

    Scoliosis in the news - Boston

    Channel 5 in Boston did a story on scoliosis this evening. For anyone interested, here is the link. http://www.thebostonchannel.com/heal...97/detail.html. They will finish the story tomorrow evening.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  2. #2
    Join Date
    Jul 2008
    Posts
    407
    Wow. I donno whats on that page but my IE keeps crashing trying to load it. (my computer has problems)

    I'll try it on my wife's computer instead.

    *edit* Watched it. Very interesting. Can you please post the link for tomorrows segment when it comes up?
    Last edited by Qikdraw; 04-29-2009 at 06:09 PM.
    Surgeries July 26th & August 3rd 1983 (12 years old)
    Still have 57 degree curve
    2 Harrington rods
    Luque method used
    Dr David Bradford
    Twin Cities Scoliosis Center
    Preop xray (with brace on)
    Postop xray

  3. #3
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,281
    So she went from a "stable" 24* at maturity to an unstable 54* on the table.

    Our surgeon says that only 5% of people with sub-surgical curve (<50*) at maturity ever have progression later in life.

    If true, this 5% seems to be over-represented in this sandbox.

    My one daughter is 36* - 40* now. Make me wonder if she has any chance whatsoever of avoiding surgery later in life due to progression or pain from other scoliosis complications despite what our surgeon says.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  4. #4
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    I'd like to see the 2nd piece tomorrow too Sharon. She reminded me of myself, getting worse and not expecting it. She's right--when they describe the surgery to you the first time you think the Dr.'s are just NUTS.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  5. #5
    Join Date
    Jan 2009
    Location
    Great Lake State, Michigan
    Posts
    70

    thanks

    loves to skate,
    Thanks for posting that ...look forward to the second half tomorrow.

    I wonder if the hormonal changes of pregnancy caused her to start slowly increasing????

    I worry about that happening in my daughter's case.

  6. #6
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Quote Originally Posted by hope404 View Post
    loves to skate,
    I wonder if the hormonal changes of pregnancy caused her to start slowly increasing????
    Hope,

    In my non-professional opinion, I believe that's what happened in my case. I do remember after giving birth to each of my 3 kids having the WORST backache of my life; the pain was so bad it was worse than the childbirth pain. Again (in my non-medical opinion), that's when my back progressed the worst. If I had to do it again, would I? Probably, but it would have been nice to know what to expect.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  7. #7
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Quote Originally Posted by Qikdraw View Post
    Watched it. Very interesting. Can you please post the link for tomorrows segment when it comes up?
    I absolutely will post the next segment.

    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  8. #8
    Join Date
    Oct 2005
    Location
    Chicago north suburb
    Posts
    772
    Thanks for posting this, Sally. Any scoliosis story that Iíve seen covered by the media focused on adolescents. Itís educational and informative to show what can be done for the adult patient.

  9. #9
    Join Date
    Apr 2009
    Location
    New Palestine, IN
    Posts
    44
    Thank you so much for posting this. Since I am just at the starting point of discussing with my doctor what my surgery will be like this gives me more questions I can ask. I can't wait to see the rest of the story.
    Lori

  10. #10
    Join Date
    Jun 2008
    Posts
    237
    Thanks for posting this Sally. As someone said, it's nice to see a scoliosis story on adults as they usually feature children. As an aside, I had my ct/myelogram done yesterday at St. Luke's in Bethlehem. The doctor who performed it was just the cat's meow. He was amazing, kind, gentle and I believe he was so kind and caring because his 15 year old daughter had major scoliosis surgery done 2 years ago so he knew all about it from his daughter. Usually people see the hardware and don't know how to react. I didn't feel it when he located the spot that was able to receive the syringe and then the dye. He had me upside down with my head on the floor. It was an unusual experience and I have had 2 others before this one.
    avis

  11. #11
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445

    Part II update

    Here is the link for the second half of the scoliosis story. http://www.thebostonchannel.com/heal...50/detail.html
    Avis, I'm glad you had a good experience with your ct/myelogram.
    Take care everyone. Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  12. #12
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,136
    Thx Sally

    It helps to have the awareness delivered even if its a short segment.

    Her statement, "Waking up in debilitating pain is no way to lead your life" is something we think about often................

    Thank you Rhonda Mann!
    Ed
    Last edited by titaniumed; 05-01-2009 at 11:59 AM.
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  13. #13
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Sally,

    what a wonderful story; it brought tears to my eyes. We should bookmark this and point all new adult members to watch this story. My favorite line is when she says 'it's not about being straight..it's about being normal.'

    Thanks again for posting this,
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  14. #14
    Join Date
    Oct 2005
    Location
    Chicago north suburb
    Posts
    772
    I find it interesting that this surgeon felt the need for an anterior surgery on this patient, especially since her curve was not that significant and did not involve the sacral area.

  15. #15
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Quote Originally Posted by CHRIS WBS View Post
    I find it interesting that this surgeon felt the need for an anterior surgery on this patient, especially since her curve was not that significant and did not involve the sacral area.
    I wondered that too, but then just assumed she must have had significant disk deterioration?
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •