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Thread: Spinecor Brace for Adults

  1. #16
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    Dec 2008
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    Whats going on with your height changes? Are you still checking that out?

  2. #17
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    Apr 2009
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    Hi CD - yes i am still monitoring that. Results: in the morning upon rising - 5' and sometimes a tad over .. out of brace in evening 4'10 .. in brace throughout the day 4'11 and sometimes a tad over. These things, i believe from what i read about such things - indicative of what may be called postural improvement. (Pre-fitting stable both am/pm = 4'9).

    Maybe i should add this info to my posting #15, this thread - and include some references regarding postural rehabilitation. Thanks CD.
    Last edited by mamamax; 05-10-2009 at 09:20 PM.

  3. #18
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    Apr 2009
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    3
    How interesting about your large variance in height through the day.

    Can you please share, how many hours per day do you wear the brace now? Is it a full-time schedule?

    I'm also wondering, for adult SpineCor users, are in-brace xrays taken? It would be so interesting to know how much correction you are getting.

    BTW, what is 'ischemic pressure'?
    Last edited by SpiderPug; 05-11-2009 at 12:12 AM. Reason: spelling

  4. #19
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    Apr 2009
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    Hi SpiderPug

    It is interesting this height variation - have no idea what it means and will ask the good doctor about it on the 27th when i have my first official follow up. Thinking: maybe something to do with postural rehabilitation (this brace after all is what is termed a PRB - posture rehabilitation brace). Would seem my body/spine is trying to figure out where it wants to go with this.

    I'm in brace approximately 13 hours/day (progressive break-in schedule). Adult protocol differs from adolescent (as do treatment goals). Yes, adult SpineCor patients, from my personal experience - receive both before and after fitting xrays, day one, and i found the pre-brace reading to be concistant with the last xray taken by my orthopedic specialist. Cobb angle improvement is not unusual in several brace types - what makes SpineCor a bit different is: Cobb angle improvement is progressive, because it is designed to be that way through using progressive postural rehabilitation (this information can be found within the manufacturer's web pages). I was told by my provider not to expect any immediate improvement (presuming based on my age and condition). We were both a bit surprised (results below). The pain relief i experience is beyond all expectation.

    Ischemic pressure, as it relates to my posting #15 and Martha Hawes (this thread) is again, something i will be asking my doctor about on the 27th. At this point, from what little i know, i suspect it has to do with a physical therapy known as
    myofacial release: http://www.ncbi.nlm.nih.gov/pubmed/11002435

    Looking back at posting #15 and Martha's experience (and reference) - i am wondering what is CMM .. this is where she reports greatest improvement. Do you know anything about this?

    Are you a Spider Pug owner? Those are precious pups: http://www.urbanpug.com/
    and i certainly wouldn't mind having one around the house! http://www.urbanpug.com/pictures/mai...g2_itemId=1202

    Thanks for your questions & hope to hear more from you!

    Pre Brace (xray):
    Upper 42 degrees Right thoracic/Lower 57 degrees Left Thoracolumbar - Rotation 26 degrees
    Immediate xray InBrace:
    Upper 29 degrees/Lower 51 degrees - Rotation 21 degrees
    (inhale/held both xrays as is done w/specialist)

    Height pre-brace: 4'9" (4'9 1/2" in brace at fitting)
    Last edited by mamamax; 12-27-2010 at 03:39 PM. Reason: typo

  5. #20
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    Apr 2009
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    Sosort 2009 & SPINECOR

    Spinecor graced the airways with seven presentations. One of the greatest questions/challenges regarding any treatment for scoliosis is - does said treatment alter or change the natural history of the condition (in a significant number of participants)? Being new .. answering such questions relative to Spinecor does take time (money and willing research participants). And so we wait.

    In regard to adolescents (Spinecor treatment beginning in 1993) - Rivard and Collard answer these questions at SOSORT 2009, and the verdict per their collected data is affirmative - Spinecor changes natural history in adolescents.

    Results: As demonstrated before the SpineCor brace does alter the natural history of the adolescent idiopathic scoliosis. This study showed that 71.2 % of patients (353 out of 495) corrected or stabilized their initial Cobb angle, and only 52 patients (10.5 %) had 6 or more progression of their initial Cobb angle without an indication for surgery. 74 immature patients
    out of 495 (14.9 %) required surgical fusion while receiving treatment.. Only 16 patients (3.2%) withdrawn from the treatment.


    Conclusions: The SpineCor brace is effective for the treatment of adolescent idiopathic scoliosis. The positive outcomes are maintained even after the weaning of the brace. Moreover, one third of the patients still corrected their Cobb angle in the five years period after the end of the treatment.

    Affiliation Research Center, Sainte-Justine Hospital, & University of Montreal, 3175 ch. C™te Ste-Catherine, MontrŽal, QuŽbec, H3T 1C5 Canada


    We adults continue to wait as treatment for us only began in 2005. Preliminary results proving promising .. confirmed (large scale) evidence, awaiting the future.

    And of course in the midst of it all - debate continues. Looking forward to 2010.

    SOSORT 2009:
    http://sosort-lyon.net/
    Select Final Program (left of page)
    Scroll down:
    12.27 - New results for 495 patients with adolescent idiopathic scoliosis treated with the SpineCor brace
    Circo A.B., Coillard C., Rivard C.H. (CAN)


    Weiss 2008:

    http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum

    http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum




    Last edited by mamamax; 05-25-2009 at 03:04 PM.

  6. #21
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    Apr 2009
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    Sharing a Win (Spinecor)

    Yesterday was my six month check up.

    The out of brace x-ray (taken at the end of a long day) measured at 38 degrees (right thoracic) and 46 (degrees left thoracolumbar).

    Beginning measurements (out of brace) six months ago = 42/57.

    Six months ago, my cobb angle measurements (along with pain levels), put me in a "needs surgery" category.

    Now, I am officially out of that category and my pain levels are so dramatically decreased that I would dare say I'm in the general population in terms of back pain.

  7. #22
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    Dec 2007
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    San Diego, CA
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    Hi Mamamax
    Thank you for sharing your Spinecor success story. I am so happy for you, that your curves have improved and that your pain has also decreased!

  8. #23
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    Dec 2008
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    Great news Mamamax! Especially the part about

    "my pain levels are so dramatically decreased"

  9. #24
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    Mar 2009
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    That is wonderful that your pain has been reduced mamamax! Very happy for you!!

  10. #25
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    Jun 2009
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    Thank You!

    Thank you for the Spinecor Success Story!
    I am glad that it not only works for adolescents, and kids, but also for adults!

    I am very happy for your continued progress and pain reduction!


  11. #26
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    Apr 2009
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    Thank you

    Swimmergirlsmom, CD, Ballet Mom and Mom 15 ~

    Thank you so much for your well wishes and comments.

    I'm so greatful for this brace and for a doctor who is well experienced in its application - I would encourage any adult to give this treatment a try if at all possible.

    I have had occasion to go a weekend or two without the brace entirely, and during that time the pain levels have remained dramatically decreased (often nonexistent) and my posture has remained vastly improved. Without a doubt, for me and many others - the Spinecore brace is nothing short of miraculous. It would appear that natural history may also be altered with adults :-)

  12. #27
    Join Date
    Aug 2007
    Posts
    388
    I'm glad to hear that your quality of life has improved!
    daughter, 12, diagnosed 8/07 with 19T/13L
    -Braced in spinecor 10/07 - 8/12 with excellent in brace correction and stable/slightly decreased out of brace curves.
    -Introduced Providence brace as adjunct at night in 11/2011 in anticipation of growth spurt. Curves still stable.
    -Currently in Boston Brace. Growth spurt is here and curves (and rotation) have increased to 23T/17L

  13. #28
    Join Date
    Apr 2009
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    Hi Jill - Thank you. I've thanked you twice now and for some reason the posts keep disappearing! Quality of life is number one in my book and the before/after Spinecor experience is literally as different as night and day. I'm no longer in pain near 24/7.

    I'm just at the seven month mark this November. Last evening as I went to sleep I was struck with the oddest sensation - I felt as if I was in brace (which is a really good feeling for my back). Anyway, woke up this morning feeling the same way - even as I sit here typing. Would appear there is indeed some muscular re-training going on, and that the muscles are learning to remember (lol). It's one thing to read about these things from published studies etc - quite another to experience it. A joy really.

    Was reading your signature - congratulations to you and Katie!!

    Hope this post takes and doesn't disappear due to some computer glitch ;-)

  14. #29
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    Sep 2009
    Location
    Wisconsin
    Posts
    184
    So as an adult using spinecor brace, the results were immediate pain relief,
    posture changes, relaxed neck, in brace you reduced your curves and rotation?

    Curious, out of brace ~do the curves stay reduced?

    So you only wear the brace at night? or daytime?


    Do you have exercises to do too? If so what type?

    Thanks upfront for sharing your experiences.
    I have a sil with mild scoliosis and is having discomfort
    Last edited by Bigbluefrog; 11-10-2009 at 03:04 PM.
    age 15
    Daughter diagnosed at age 13
    T20 l23 10-09
    T27 L27 1/2010

    T10 L 20 in brace 4/2010
    T22 L25 12/2010 out of brace
    T24 L25 7/2011 out of brace

    Type 1 diabetes- pumping
    Wearing a Boston brace and Schroth therapy
    Faith, Hope, and Love- the greatest of these is Love


  15. #30
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    Apr 2009
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    1,258
    Hi Bluefrog!

    I'll try to answer your questions as best I know how from my adult experience/perspective.

    Yes my immediate result was pain relief and postural change (with little sister noticing the neck thing) - and yes curvature and rotation are reduced in brace. The most recent out of brace x-ray (at the end of a very long day), suggests that this reduction is holding on a temporary and limited basis at this time. Protocol for me is 2 years of treatment, I'm only seven months into treatment - and so answering that question further is some years away.

    So far, for me as an adult, bracing with Spincor is performing beyond all my expectations.

    As an adult, my protocol is different than that of an adolescent - I only wear the brace during the day - approximately 10-13 hours a day. This is what has been recommended for my specific condition - and as you will see up thread, this involved a progressive break in schedule. There has been an occasional time or two recently, when I have gone 24 hours without the brace (I know bad me), when I do pain levels remain dramatically reduced and comparatively non existent - the postural improvement also holds during this brief time period.

    Exercise - yes, I do have prescribed exercises to do - they are Schroth exercises and prescribed by a certified provider (trained by and certified through the clinic in Germany to apply the technique unsupervised). I am not an exercise fanatic and need to be honest here - I don't do them as often as I should, and plan to change that soon. I can vouch for this (from my experience only) - when the proper Schroth exercise is applied (again, for me) it is rather obvious that something good is being done - because, the body (mine) feels good doing it. For what that may (or may not) be worth.

    For those who may stumble across this thread seeking a similar treatment - I would like to reiterate something I have said before. In choosing this treatment, I do believe it is very important to include a spine specialist (as I did) who can clear one for treatment (making sure there are no extenuating circumstances that would cause problems), to select an experienced provider who is certified to apply the technique unsupervised, (these may be found at the manufacturer's website) and of course, follow the prescribed protocol and refer all concerns along the way to one's provider and/or spine specialist as necessary. Just a little old fashioned horse sense when choosing any treatment.

    And as a sidebar - who gets to decide? We do (well, we did here anyway). Thank you Bluefrog, CD, and Sharon & Happy Veteran's Day to all.

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