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Thread: Spinecor Adult Users

  1. #61
    Join Date
    Jan 2009
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    Great Lake State, Michigan
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    70

    am I missing something?????

    "It's everyone's responsibility to try to help out those who might be taken in by the latest UNPROVED CURE"

    Am I being too simple minded to say..
    HOW CAN SOMETHING BE PROVED IF IT IS NEVER TRIED!!!!!!!

    Everyone can remember back to the Wright brothers (5th grade history)....Dr. Lister....Robert Fulton(steam engine)...almost ALL advances in Science are met with this very attitude of" it has never been done therefore forget it."

    I just don't see how Scoliosis treatments can improve if people like Maxene DON"T step up to the plate and give some new things a try !!!!

    Even if it fails, we may LEARN something from it to help in the future......Come on, I want something more to offer my grandkids(who may get it) then watch, wait, brace, fuse.

  2. #62
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    Nov 2007
    Location
    Houston, TX
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    Quote Originally Posted by hope404 View Post
    Am I being too simple minded to say..
    HOW CAN SOMETHING BE PROVED IF IT IS NEVER TRIED!!!!!!!
    Hope, do you *really* know none of us tried alternatives before we bit the bullet? Believe me ... surgery was NOT on my "to-do" list ... and I'm *not* simple-minded.

    Most of us *likely* tried them all (ineffective alternatives). Don't assume (or scream) at us because you're still in that "that stage".

    Best to you.

    Pam
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  3. #63
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    Jan 2009
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    Great Lake State, Michigan
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    Thanks Linda!!

    I looked over the links you sent...Thanks...actually I could see some wedging in some of the good xrays they showed...but you were right, it does appear to be much more pronounced in the more severe cases. Which makes sense.

    BUT,(got to love research), they WERE able to correct it!!!!! when forces were reversed in a RAT TAIL MODEL!!!! Maybe that rat tail is on to something!!HaHaNEVER KNOW!!!!!

  4. #64
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    Hi Hope...

    As mentioned above, I have no problem with Maxine trying the Spinecor brace. I just happen to believe it's irresponsible for anyone to encourage others to do the same, until there is some proof that it works. And, since the medical community believes this won't work, I'd prefer that insurance companies not pay for it, since it raises my rates.

    --Linda

  5. #65
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    Jan 2009
    Location
    Great Lake State, Michigan
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    I am simple minded!!!!

    Txmarinemom....
    Believe me, I don't believe anyone jumps with GLEE to get spinal surgery OF ANY TYPE!!! And I believe many case can ONLY be helped by it!!!
    I'm so thankful the surgeons are perfecting it and improving it and people like you are blazing the trail that says a WONDERFUL life can be lived afterwards!!
    I enjoy reading all the success stories...my grandkids may need it someday

    I guess I just empathize with the LACK OF OPTIONS... I just don't see how more will be found, if someone doesn't give something new a shot.

    As far as Spinecore making permanent change in an adult
    "there is no proof that it works...the medical community believes this won't work" (LindaRacine)

    I just can't fault someone for trying..I know I almost did with my skeletally mature daughter...

  6. #66
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    Hope, all I know is it's long been proven a skeletally mature spine cannot be permanently altered without surgery.

    The first path most adults try is NON-surgical ... we have mostly managed to avoid it in adulthood, and regardless of how we're perceived by some here, we're initially opposed to it. We don't all embrace it; I did because I hurt so badly ... I would have just embraced a *different* hurt than that I'd known since age 10. Mostly, when it's said and done, we welcome the outcome.

    I can't blame you for trying alternatives for your child, and I feel very fortunate it was only me I decided for in any capacity ...

    Best,
    Pam
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  7. #67
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    Great Lake State, Michigan
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    70

    sweet

    Txmarinemom

  8. #68
    Join Date
    Nov 2007
    Location
    Houston, TX
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    Thanks, but I think I'll stay ...

    mamamax,

    I'm not sure what you're trying to communicate with identical responses to every single post - other than you've mastered the use of Ctrl+C and Ctrl+V ...

    You've written several times (in ever-increasing font size):

    Quote Originally Posted by mamamax View Post
    This is the NSF Non-Surgical Bracing Forum.

    To ANYONE who does not wish to engage in meaningful adult conversation regarding bracing as a scoliosis treatment (specifically, Spinecore/Adult Users which this thread was specifically created for): Take your comments somewhere else.
    It seems your definition of "meaningful adult conversation" regarding your choice of treatment is "only people who agree are allowed to speak".

    Sorry, but the "meaningful adult conversation" would not be complete without the pesky details of why adult curves CANNOT be altered by bracing. It has nothing to do (as you claim) with flexibility, and *everything* to do with the fact that a skeletally mature spine cannot be altered by bracing.

    I find it somewhat amusing when I first posted (and wished you luck with pain management) your response to me was:

    Quote Originally Posted by mamamax View Post
    You are truly so blessed to have had successful surgery and before joining the forum i read a lot of postings ... you are always here for others, lending your support and sharing information regardless of one's choices. I find that truly meaningful and caring..
    However, when "sharing information" happened to disagree with what you claimed Spinecor can do for adults (permanently alter a skeletally mature curve), your posts became increasingly nasty. You can't have it both ways.

    Now you're basically demanding that anyone who doesn't believe what you do (despite the absence of any proof whatsoever) get out of your thread.

    No can do, mamamax ... not as long as you are making invalid/inaccurate claims.

    As has been said, if YOU choose to wear Spinecor for pain management and believe it can correct your curve, fantastic. It's a whole different story to tell others there's EVIDENCE (that pesky word again, I know) to prove *any* adult has *ever* achieved correction from a brace.

    You know *why* there's no proof? Because it's impossible. Plain and simple.

    Pam
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  9. #69
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    Quote Originally Posted by mamamax View Post
    What a horrible way to use your daughters illness - as a parent myself, i am .. stunned
    You'll have to elaborate on why you think what Sharon wrote is "using her daughter's illness". It's almost as puzzling to me as your post that used the analogy of me screaming at you over your hospital bed ...

    It strangely seems you're trying to garner sympathy by affecting a stance of persecution. Even if that ploy were effective, your assertions of curve correction would still be incorrect.

    Quote Originally Posted by mamamax View Post
    I'm here to heal, learn, and share - not engage in flaming conversation or spend a lot of time trying to ignore it (and suffer the consequences to my nervous system in trying). I'm going to use the feature that blocks someone from posting to my thread to take care of this and asking for NSF forum moderator review/comment.
    You're suffering "consequences to your nervous system" because people disagree with you?

    What exactly do you want the forum moderator to review? She's already commented:

    Quote Originally Posted by LindaRacine
    Maxine... I don't think any of us care very much if you want to pursue this treatment for yourself. But, it is irresponsible to try to encourage others to do the same without any proof that it works.
    And lastly, I'm not aware of a feature that blocks someone from posting on "your" thread. You'll have to tell me where to find that ...
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  10. #70
    Join Date
    Jan 2008
    Location
    NC
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    8,903
    mamamax,

    Look, if you think I'm going to make an important decision about whether to stay or quit this thread without input from Ti Ed, you have another thing coming!

    What crust!

    Love,
    Galileo
    Last edited by Pooka1; 04-17-2009 at 11:41 AM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  11. #71
    Join Date
    Jan 2006
    Location
    near Philadelphia
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    1,260
    Never a dull moment around here
    Chris
    A/P fusion on June 19, 2007 at age 52; T10-L5
    Pre-op thoracolumbar curve: 70 degrees
    Post-op curve: 12 degrees
    Dr. Boachie-adjei, HSS, New York

  12. #72
    Join Date
    Nov 2007
    Location
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    Quote Originally Posted by Singer View Post
    Never a dull moment around here
    You got *that* right, sister ... and it seems to be even LESS dull on the *other* thread ...

    http://scoliosis.org/forum/showpost....9&postcount=16
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  13. #73
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    May 2008
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    reno,nevada
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    After "pushing the envelope of fat" LOL I have had a few more gall bladder attacks and finally broke down and scheduled my gall bladder removal surgery on April 30th. Its quite similar to what happens in scoliosis with pain being the motivating factor. Spinecore needs to invent a gall bladder brace. I might try it. They could call it Gallcore! A strap and a plug. He He Were talking science! Hippocrates would love it!

    But then it would probably "buy some time" and I would eventually succumb. A capitulation in our medical battles.

    Hi Hope...

    As mentioned above, I have no problem with Maxine trying the Spinecor brace. I just happen to believe it's irresponsible for anyone to encourage others to do the same, until there is some proof that it works. And, since the medical community believes this won't work, I'd prefer that insurance companies not pay for it, since it raises my rates.

    --Linda

    And with the above quote from Linda, I have to say that I agree with her statement with a few notes:

    On the issue of increasing insurance premiums, that's an issue that's hardly debatable. We all know that rising insurance costs are "a sure bet" unlike the investment choices that have been executed in the past by the greedy insurance executives that work at companies like A.I.G.(just one in the news)

    When your $750,000,000,000.00 in the hole and funds run dry, from an insurance standpoint, paying a few thousand dollars now for a brace, is the better alternative than shelling out $250,000 to $1,000,000 on a scoli surgery.

    Choices in medical decisions are very personal decisions. These are decisions that need to be examined very carefully by each individual, to achieve the most favorable outcome. Since all therapies, braces, and surgeries are speculative, one should never suggest any procedures. Evidence or not. Evidence "tends to prove", with no guarantee. It should be used with discretion.

    Its disappointing to see some of the posties freaking at 2 weeks post. Its almost as if there should be a test that is required before selecting any medical procedure. That also goes for you Maxine, since you are 59 yrs old, and selecting a brace, you are buying time, which could work well to your benefit, but you have to consider the muscle atrophy consequences that Pam mentioned, osteoporosis which could limit any surgical options in the future, and the fact that IF you need a surgery in the future, you are using up your time as surgeries can become problematic with age. I hope you can control your pain with the brace.

    Dr Benson UC Davis pointed out some historical stuff about scoliosis at a meeting in Sacramento last week
    http://en.wikipedia.org/wiki/Hippocratic_bench
    Just wanted to point out that tension as a force was used 2400 years ago for scoliosis. Spinecor is not a new concept. Its a wearable vertical rack.

    We are all gamblers you know, (not me, I live in Reno) LOL Before stepping up to play craps, know your odds!

    If only I knew how important blood cholesterol was, maybe I could have avoided my stone issues. As human beings, we try our best, and that's all we can do.

    Having faith is important.
    Ed
    Last edited by titaniumed; 04-17-2009 at 06:23 PM.
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  14. #74
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    Nov 2007
    Location
    Houston, TX
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    1,757
    Sharon, I think you have your answer. :-\
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

  15. #75
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    Nov 2007
    Location
    Houston, TX
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    Ed, best of luck on your "removal" ... if it's giving you that much grief, the future HAS to look brighter ...

    Pam
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


    VIEW MY X-RAYS
    EMAIL ME

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