Hello everyone! First I want to say how happy I am to have found
this group. I have heard nothing but good things so I'm glad to be a
part of it. Now, onto my situation. My 8 month daughter was just
diagnosed with infantile scoliosis on Friday. Originally we were
told her degree was 18, but after luckily getting into see a
pediatric orthopaedic yesterday her degree is really in the 30's. He
said the original xray wasn't a good one. Anyways, to our shock
about discovering this and then being told it was a lot worse than we
had thought I need help. I've been researching like crazy. I've
been told that thus far her's is idiopathic and progressive. Her
RVAD was 26. The dr we saw yesterday is through Beaumont in Royal
Oak, MI. He's scheduled an MRI for her next Friday to rule out
anything else. I did like him and he was very informative,
compassionate, etc. We have another appt for another opinion with a
dr at U of M in Ann Arbor, MI through Mott's. I also have 2 more
appts set up for a Dr at Providence in Novi, Mi and a dr at
Children's in Detroit, Mi. All of them are pediatric orthopaedics.
I guess my concern is do I try to go to one of the dr's associated
with a children's hosp since they specialize in children specifically
or do I go with the one we saw yesterday associated with Beaumont?
So, I wanted to know if anyone out there is from Michigan and who've
they've seen and had good luck with. The good thing is the dr we saw
yesterday with Beaumont follows the Mehta Method. He's an aggressive
dr and said that as long as her MRI comes back normal next week which
he suspects it will, he'll go ahead and start casting her. I was
glad to hear that after all the research I've done. Of course I'm
scared, nervous, emotional. All I do is cry. I know many of you
have been there or are there too, so I want advice, info and help.
Please if anyone has any info on any michigan dr's I'd greatly
appreciate it along with any other help. This is all happening so
fast, which I guess is a good thing considering I've heard it
sometimes takes months to get into dr's, then months of observation.
Thank you in advance for all your time and help. I greatly
appreciate it! I hope to get to know you and your stories for we are
here to help and lean on eachother.