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  1. #1
    Join Date
    Feb 2009
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    4

    pectus excavatum

    I have a 16mnth who was born with funnel chest which everyone said was "normal" and nothing to bother about.. so ive never even looked it up until I had him at the doctor for somethng else and she has refered us to the hospital. The app isnt going to be for 3months and looking on the internet im worried!

    the dip in his chest is pretty obvious but he has quite a big stomach which i think makes it look worse. however you can barely notice it when he is lying flat on his back or when he is breathing out and he has always been healthy??? doctor listened to chest-i didnt know they were symptoms to ask but assume all is well as she never mentioned a problem and said hosp app would be a non-urgent app.

    what do they do at the hospital? x-ray? just have a look?
    every web page i look at talks about surgery.. is this always needed? if he has no heart/breathing probs can he just live with it?
    have seen people saying they had the op at 5/6yo.. is this likely or will it happen (if required) when he is grown up?

    really worried that he will need a painful op.. anyone any advice?

  2. #2
    Join Date
    Jan 2008
    Location
    NC
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    8,903
    All I can tell you is my twins daughters had a moderate case of PE as toddlers which resolved completely by itself in adolescence.

    I don't know the stats on the incidence of complete spontaneous correction but it's at least two baby kids.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
    Join Date
    Feb 2009
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    4
    everything ive read online seems to point to it only getting worse. thankyou its reassuring to know that it can fix itself sometimes- hopefully hell be one of the lucky ones! dont know if internet is all just worst case senarios?!!

    having read some of the other threads on the forum.. i dont know how people cope with having to face all those ops/treatments for their children.. must be heartbreakingly hard!!

  4. #4
    Join Date
    Jan 2008
    Location
    NC
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    I'll try to find and send you a picture of my kids when their PE was very noticeable. They also had... ahem... rather large tummies that preceded them into rooms and such. I secretly suspected they were taller laying down than standing up.

    There is no trace of it now at 14 yo... ETA: Either the PE or the tummies!
    Last edited by Pooka1; 02-13-2009 at 04:03 PM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  5. #5
    Join Date
    Feb 2009
    Posts
    4
    that would be fantastic.. ive no idea if it is mild or severe so would be great to see. got a phone app with doctor to see if she can advise but she had to google to get the name so im not too hopeful

    were your girls lucky enough not to have any problems with breathing/heart etc?

  6. #6
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,903
    They didn't have breathing or heart issues.

    PE sometimes is associated with Marfan's Syndrome when other symptoms including scoliosis are present. So they get their aorta imaged every year for the next several years despite the PE resolving long ago.

    The pediatrician characterized their PE as "moderate." I'll go look for a picture to scan now...
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

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