Have you contacted the MS Society? Scoliosis can be a "side effect" of many different things. In my husband's family, there is a history of Charcto-Marie-Tooth (CMT) and only after my daughter was diagnosed with Scoli, did I find out, through my own research, that Scoli is a side effect of CMT. (CMT caused what is called drop-foot, causes loss of feeling in extremeties and things like that) Somewhere along the line, I was referred to the MS Society and they were very kind and helpful.
Good luck and let us know what you find out.
Mom to Jamie age 21-diagnosed at age 12-spinal fusion 12/7/2004-fused from T3-L2; and Tracy age 19, mild Scoliosis-diagnosed at age 18.