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Scoliosis and hormone problems

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  • Scoliosis and hormone problems

    I have found links between the two in reading research. I'm wondering if anyone has experienced this. I have always had weird hormonal/gynecological things, including very "regular" irregular bleeding and all manner of things like endometriosis, pelvic adhesions, fibroids, PID, etc. etc. and irregular pap smears too.

    I have extremely infrequent bouts of INTENSE pelvic pain and am contemplating laparascopy/hysteroscopy just to check things out...I'm also seeing my regular doc tomorrow to rule out other things, maybe do a coloscopy. Meanwhile, I wonder if I attribute some of my pain to my back when it's really more pelvic...but the fact that scoliosis and hormone problems go together (for women) might make this a common mix up!

    Does anyone else have a history of gynecological abnormalities?

    Oh I also have a heart shaped uterus...Why should I expect any part of me be shaped normally????
    Lynn
    Age: 49
    Fusion: 4/1/74 at A I duPont, Wilmington DE
    Fused from T-4 to L-4
    (all bone/no instrumentation)
    Surgeon: G Dean MacEwen
    Cervical discectomy 3/02 C-6 C-7
    Current problems: L-4/L-5 pain that radiates to left side of butt, all manner of problems at this level

  • #2
    I am with you on that one.

    I had a full hysterectomy in Aug. of 2007. I was suffering with endometriosis but they also found that I had a lot of pelvic pain which was actually my bladder because of Interstitial Cystitis.

    Makes sense in my head that when everything gets shifted around inside that it doesn't work as well as we hope. But not sure??
    Adrienne
    1991 T4 - T12 Fusion
    1993 Rod Removal
    1999 T4-L4 Fusion (7 rib thoracoplasty)
    2002 Rod Removal 58;49 degrees
    Denver, CO; Dr. John Odom
    Rocky Mtn. Spine Center

    Comment


    • #3
      I didnt start menstruating until after I had my harrington rod operation. They did tell me, whether it was true or not, that the side where the spine actually curved, well on me that was the right side, that my ovaries etc was not as mature as my left side.

      It was about twelve months after the op, that my periods actually started and I was 15 which is a little late I guess. I have never had any other problems. I have gone through the change of life with out hardly even realising it, not a problem at all. I have been lucky I guess.
      I dont know if that was all true about my insides before the op, but anyway thats what the specialist told me. Strange but true.

      Macky
      Operation 1966, Fused from T4 to L3, had Harrington rods inserted. Originally had an 85 degree Thoracic curve with lumbar scoliosis as well but had a good correction.
      Perfectly normal life till 1997 but now in a lot of pain daily. Consider myself very fortunate though.

      Comment


      • #4
        Interesting. I was just at the doctor today about my pelvic pain and he said that basically we have ruled anything serious out already (i.e., cancer) and he was wondering if it is bladder spasms.
        Lynn
        Age: 49
        Fusion: 4/1/74 at A I duPont, Wilmington DE
        Fused from T-4 to L-4
        (all bone/no instrumentation)
        Surgeon: G Dean MacEwen
        Cervical discectomy 3/02 C-6 C-7
        Current problems: L-4/L-5 pain that radiates to left side of butt, all manner of problems at this level

        Comment


        • #5
          Like macky, I also didn't start menstruation until several months after my Harrington rod procedure. I was also 15. It took quite a few years for my period to become regular and I used to have cramps so bad they would make me nearly pass out. I also had hormonal acne in my teens and twenties (that improved when I was on the birth control pill). The problems were never connected to the scoliosis by my doctors, but that doesn't necessarily mean the connection wasn't there. The problems have all gotten better as I've gotten older.
          - 39 years old
          - At age 14, curve progressed from 45 degrees to 62 degrees in two months.
          - Surgery in 1990 at the Children's Hospital of Eastern Ontario (CHEO) with Dr. Letts. Fused T5 to L2. Corrected to about 30 degrees.
          - Harrington rod
          - Herniated disc - L5/S1 - January 2008. Summer 2009 - close to making a full recovery.
          - New mommy as of February 2011
          - Second child - September 2013
          - Staying relatively painfree through physio exercises!

          Comment


          • #6
            I can't say I ever had hormonal problems until my fifties. Went through life without so much as a period pain, everything regular and normal, starting at 13. So I wasn't expecting the avalanche at 51 when suddenly my memory ceased to work, I had hot flashes up to 25 x a day, mood swings, insomnia. I'm coming out of it now, at 57, but still experience the hot flashes at least 7-8 times a day and occasionally up to 20 times a day.

            Not sure if this is what you had in mind though.
            Surgery March 3, 2009 at almost 58, now 63.
            Dr. Askin, Brisbane, Australia
            T4-Pelvis, Posterior only
            Osteotomies and Laminectomies
            Was 68 degrees, now 22 and pain free

            Comment


            • #7
              The stuff I found about scoliosis and hormone problems were about the kinds of things I've had, like irregular bleeding ALL MY LIFE, and I forget exactly what else. The theory was that these early hormonal problems were related to the development of scoliosis (some sort of irregular growth pattern).

              On the other hand I have also heard that girls/women with scoliosis tend to be more frail and I am very very muscular.

              What about that one? Are you more frail/small framed vs. muscular and medium framed???
              Lynn
              Age: 49
              Fusion: 4/1/74 at A I duPont, Wilmington DE
              Fused from T-4 to L-4
              (all bone/no instrumentation)
              Surgeon: G Dean MacEwen
              Cervical discectomy 3/02 C-6 C-7
              Current problems: L-4/L-5 pain that radiates to left side of butt, all manner of problems at this level

              Comment


              • #8
                Honey,

                I could say up til about 4 years ago that I was small and frail but I came into my 30's and now I have put on weight!!

                I do have a small frame, 5'1" with a 32" inseam. Ha ha hee hee

                I also heard that people with scoliosis have crooked teeth. Now that doesn't apply to myself. The only thing I do have is a small mouth and had to get teeth removed so that all can fit and wore braces to get things where they should be but they weren't crooked just an overbite.
                Adrienne
                1991 T4 - T12 Fusion
                1993 Rod Removal
                1999 T4-L4 Fusion (7 rib thoracoplasty)
                2002 Rod Removal 58;49 degrees
                Denver, CO; Dr. John Odom
                Rocky Mtn. Spine Center

                Comment


                • #9
                  #7. Oh ok!

                  Well I was rake thin until my late 40s but I was 5'4" and medium boned. No longer rake thin, 64 kilos and getting shorter by the day. Hoping this tummy roll goes when they stretch me out again.

                  I don't think I fit your picture, but that doesn't mean, even if your theory is correct, that everyone will. It's interesting though.
                  Surgery March 3, 2009 at almost 58, now 63.
                  Dr. Askin, Brisbane, Australia
                  T4-Pelvis, Posterior only
                  Osteotomies and Laminectomies
                  Was 68 degrees, now 22 and pain free

                  Comment


                  • #10
                    I am small-boned and around the time I had my surgery, they were doing all these studies on the prevalence of scoliosis in ballet dancers who tend to me smaller-boned as well. So I would have been happier with that conclusion because...the conclusions they were making around the time they were doing these studies, were that not eating enough and too much exercise were the cause (since that tends to be the trend with ballet dancers)! I was a cross-country runner, did gymnastics, played tennis and squash, lots of biking, and wasn't a big eater - for years, I sort of thought that I caused my own scoliosis. Later, someone told me it could be genetic and it turned out my grandmother and her sister had mild cases of it. It was reassuring to find this website and realize there are many theories on it but no one knows for sure.
                    - 39 years old
                    - At age 14, curve progressed from 45 degrees to 62 degrees in two months.
                    - Surgery in 1990 at the Children's Hospital of Eastern Ontario (CHEO) with Dr. Letts. Fused T5 to L2. Corrected to about 30 degrees.
                    - Harrington rod
                    - Herniated disc - L5/S1 - January 2008. Summer 2009 - close to making a full recovery.
                    - New mommy as of February 2011
                    - Second child - September 2013
                    - Staying relatively painfree through physio exercises!

                    Comment


                    • #11
                      I've been irregular my whole life, and never connected the two issues. I wonder if there is some connection.
                      __________________________________________
                      Debbe - 50 yrs old

                      Milwalkee Brace 1976 - 79
                      Told by Dr. my curve would never progress

                      Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
                      Pre-Surgury Thorasic: 66 degrees
                      Pre-Surgery Lumbar: 66 degrees

                      Post-Surgery Thorasic: 34 degrees
                      Post-Surgery Lumbar: 22 degrees

                      Comment


                      • #12
                        I wasn't talking about body fat but actual bone/muscle structure

                        I'm sure there are lots of theories out there!
                        Lynn
                        Age: 49
                        Fusion: 4/1/74 at A I duPont, Wilmington DE
                        Fused from T-4 to L-4
                        (all bone/no instrumentation)
                        Surgeon: G Dean MacEwen
                        Cervical discectomy 3/02 C-6 C-7
                        Current problems: L-4/L-5 pain that radiates to left side of butt, all manner of problems at this level

                        Comment

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