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Thread: Genetics - Likelihood of passing scoliosis onto children

  1. #16
    Join Date
    Oct 2004
    Location
    Waterloo, Ontario
    Posts
    9

    Skipping Generations

    Well, as mentioned before, none of my children have it but my mother and her sisters all have it and I have it. My sisters and brothers do not have it - I'm the only one. It would be interesting to find out how the gene skipped going to my children.

    Now, my son on the other hand has severe psoriasis - worst case his skin specialist has ever seen - his father has it too - very sad to see him when he breaks out. He's been in a 2 year study where he has had to try different medications and self inject a drug to either eliminate the disease or make it lie dormant - when the study ended he blossomed again like crazy. He was taking a drug that is given to people who have had transplant surgery - this was to boost the immune system. He is now being considered for gene therapy - he's only 20 and has suffered with this for 7 years.

    I'm wondering if gene therapy would be an option for those who have a history of scoliosis or other genetic conditions like it BEFORE they decide to conceive children. Wouldn't mind looking into that one.
    "I won't think about it today, for tomorrow is another day..."

  2. #17
    Join Date
    Oct 2004
    Location
    Waterloo, Ontario
    Posts
    9

    Disability

    Just a few comments on the term "Disability"

    C.P.P.'s criteria:

    * be under 65
    * have contributed to the CPP for a minimum number of years
    * have a "severe and prolonged" disability that prevents him or her from working at any job on a regular basis

    First of all, what is determined by the government to be "Severe" and "Prolonged"?

    In Canada, having scoliosis and having extensive surgery to correct scoliosis may not put you in the catagory as having a disability. I have been out of work since April 2003 and have been trying to get a disability pension.

    The Federal Canada Pension Plan denied me disabilty benefits because I am able to use a computer and have a post secondary education - meaning - I can type and talk.

    This decision was made by a person who was an RN who had never seen me, never spoke to me and merely was going by my medical history and employment history. There were only minimal medical reports available for her review at the time the decision was made. I have appealed the decision and go before a Tribunal Board in December of this year - it has been a long long time.

    Two weeks ago I receive approval from the Provincial government who deemed me as being disabled. I made my application to them in February of this year and was approved on October 6th, 2004. I did not speak to anyone at all nor did I receive mail from them. I called their office to inquire about the status of my file on October 6th and they told me that they had just made the decision that day - and said that I was officially disabled.

    Regardless of what the Provincial Government says, the Federal Government can still refuse my disability benefits - this is because the back problems people have vary from person to person and often times they cannot be physically seen by the naked eye.

    I have been amazed by who they grant disability benefits to and have recently found that someone I know who has been diagnosed as being Bi Polar is on permanent disability through the Canada Pension Plan (she's 20 years old) - I have medical documentation which they also have in their possession which has that very same diagnosis and I'm STILL not deemed as being disabled in their eyes - they told me "Everyone gets depressed..." I couldn't believe it.

    Very very unusual system here - I can only hope for the best at my hearing.

    Has anyone else had difficulty getting their benefits after surgery??
    "I won't think about it today, for tomorrow is another day..."

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