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Thread: Pillow talk

  1. #1
    Join Date
    Aug 2008
    Location
    Salina, Ks
    Posts
    126

    Pillow talk

    Does it ever get to the point you can sleep without pillows strategically placed to be really comfortable? I am taking a trip this weekend and will take them along but just curious (and hopeful) that someday it isn't "neccesary"

    Thanks in advance!
    Nancy Joy

    Surgery- Posterior- Oct. 8th, 2008
    Anterior- Nov. 10th, 2008
    Age 54
    T10 to Sacrum
    Curve 65 degrees
    Very straight now!!!

  2. #2
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    Ni Nancy Joy,

    I wasn't able to sleep without extra pillows until about the last month.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  3. #3
    Join Date
    Jan 2009
    Posts
    2

    Pillows

    Good afternoon, I have dwyer instrumentation and harrington rods in the lumbar area. The surgery was late 1979. I am sad to say, the pillows are still being used! I also get comfort using a back support such as the back of a couch as I rest too. The discomfort out weighs the bad side of doing nothing! I guess the best thing I can say is "improvise, adapt, overcome" straight from Clint Eastwood movie! Good lock in your recovery.... keep any check up requested...and do not be afraid to ask questions!

  4. #4
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Hi NancyJoy,

    I kicked the pillows out somewhere between four and six months post op. Sometimes I think they would help with comfort, but every time I would roll over in bed, I would have to rearrange myself and the pillows and then I was too awake to go back to sleep. I am comfortable most of the time without them. I am a year post op now. Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  5. #5
    Join Date
    Jan 2006
    Location
    near Philadelphia
    Posts
    1,260
    I still use a pillow between my knees when I lay on my side....a far cry from the mountain of pillows I used until around 6 months post-op!!
    Chris
    A/P fusion on June 19, 2007 at age 52; T10-L5
    Pre-op thoracolumbar curve: 70 degrees
    Post-op curve: 12 degrees
    Dr. Boachie-adjei, HSS, New York

  6. #6
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,158
    Pillows are a good thing ! I can never have enough pillows. I have them everywhere and there are about 8 on my bed at any given moment. That became a habit years ago before my operations.

    Of course they are all the high end soft down pillows that cost the big bucks! If they didn't cost so much, you would think that they were breeding and multiplying themselves.

    I keep 2 in my car at all times. Offering a pillow to a non-scoli passenger is usually a very welcome treat. I don't need them in the car anymore, but like to have them if I want them.

    I carry one in my carry on bag on airplanes. That I feel is a must! The seats on the planes are horrible!

    I could be the person on the airplane that hands out the pillows! "Please take a pillow, yes our seats will destroy your back!"

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #7
    Join Date
    Mar 2007
    Posts
    213
    Oh goodness, YES! PILLOWS, & LOTS OF THEM!! But - for me, that's been an "always" thing - before any of my spinal surgeries, & continuing after all of them.

    Nancy, have you ever tried any of the variants on "memory foam" pillows? I have one in ordinary size for sleeping (under head - same size/shape), & a smaller one made of the same gear, but a different shape - much like a wave-form on one side, if that makes any sense, lol (it was marked as a "neck" pillow, but I use it behind my back when in the car or lying on my side). I'm also looking into finding a "contoured" head pillow to see if it will support my neck better (having even worse issues with lying-down neck post-op...*sigh*).

    Anyhow, I find the memory foam pillows to be very supportive - if you've never felt one, think of firm "silly putty". It moulds to whatever weight distribution is placed on/against it, but returns to normal shape once the weight is lifted. I've had mine for.....ages....maybe 5yrs, & it's still as good as new. Weren't cheap when I got them, but are quite reasonable these days.

    Hope you find something that works for you, & pronto! No sleep is no fun.

    Best wishes.

  8. #8
    Join Date
    Aug 2008
    Location
    Salina, Ks
    Posts
    126
    Thanks all! I am using 2 roll pillows from my bedspread set and they work great. Went to dentist this morning and took a pillow. No pain whatsoever and was in the chair for an hour for a root canal. I will gladly live with pillows compared to the pain before surgery!!!
    Nancy Joy

    Surgery- Posterior- Oct. 8th, 2008
    Anterior- Nov. 10th, 2008
    Age 54
    T10 to Sacrum
    Curve 65 degrees
    Very straight now!!!

  9. #9
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Nancy Joy, you amaze me with your recovery. I've put my dentist off until the end of the year, thinking I wouldn't be able to manage his weird chair, but there you are, after what you've been through, having an hour's work done at the dentist, only two months later!

    Great to read!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  10. #10
    Join Date
    Aug 2008
    Location
    Salina, Ks
    Posts
    126
    Jennifer- LOL- Just remember a pillow!!! Actually, I am very excited. I have seen a huge improvement this last week and have cut my mile walk from 24 minutes to 17 (I have always been very active until scoliosis just kept taking away from me!!!) See, there is hope for you also. Debbei totally amazes me and then I have to remember I had 4 surgeries. Thanks for the cheerleading- we can take all we can get!
    Nancy Joy

    Surgery- Posterior- Oct. 8th, 2008
    Anterior- Nov. 10th, 2008
    Age 54
    T10 to Sacrum
    Curve 65 degrees
    Very straight now!!!

  11. #11
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956

    Speaking of pillows...

    a few month prior to surgery, I picked up a few memory foam pillows from Sams Club. I loved them until a month or so ago. All of a sudden, they feel like I'm laying my head on a ROCK!! Is it just becuse I purchased the cheapo variety of pillow?

    I went back to regular feather pillows. I can't even stand the memory foam pillow under my knees.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  12. #12
    Join Date
    Jul 2008
    Posts
    407
    I use 3 pillows. One is a 5' pillow that is either between my knees and ankles, or behind my back, but curved in to go between my ankles. On the other side I have another pillow (regular sized) that is usually behind my back, or between my knees. It all depends on what side I am going to sleep on.

    The two regular sized pillows are diferent thicknesses. One is pretty flat and the other very fluffy. It depends on how I am feeling as to where they end up, under my head or behind my back.

    Brad
    Surgeries July 26th & August 3rd 1983 (12 years old)
    Still have 57 degree curve
    2 Harrington rods
    Luque method used
    Dr David Bradford
    Twin Cities Scoliosis Center
    Preop xray (with brace on)
    Postop xray

  13. #13
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Nancy Joy #10. I hope you continue improving at that great rate. To be walking a mile in that time so soon after your two surgeries, is, to me, amazing. Keep up the good work!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  14. #14
    Join Date
    Mar 2007
    Posts
    213
    Nancy - ditto on what Jen said...your recovery after that one hitch just amazes me! May the rest of you scoli journey be ever smoother, too

    Debbe - very strange about your memory foam pillow turning to a rock. I've never had such problems, & have had the full-sized pillow for at least 4-5+ yrs, & the smaller one maybe 3-4yrs. I don't find they've changed consistency at all, thankfully. I'm not familiar with Sam's Club, but maybe the brand you bought wasn't great, or maybe a bad batch? I certainly didn't go "high-end" with mine at all - not from a proper bedding store, PT, or anything - just from a store called Target (no idea whether you have that over there??....it has everything from clothes to homewares, bedding, music/DVDs, etc.). It was their store brand, & though not cheap at the time (because memory foam was new out on the general market), they've come down in price significantly. Perhaps accompanied by a decline in quality??? I have no idea! What a pity for you....really hope you can find something that works out well.

    Take care, all

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